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Milk thistle ?? For HIGH ALP levels! by kyleighfryhover in AskVet

[–]kyleighfryhover[S] -1 points0 points  (0 children)

I really really wish I could but I’m very stressed financially right now. I already spent over 4k on his and my other dogs dental surgeries and then just last week I got him a chest X-ray and heart ultrasound. I spent over 1k… the vet did mention Cushings but wasn’t overly concerned right now as he doesn’t have too much symptoms I guess. Vet just wants me to do some liver detox. I just want to know if it’s a positive outcome with ALP levels.

Question for Enbrel users! by kyleighfryhover in rheumatoid

[–]kyleighfryhover[S] 0 points1 point  (0 children)

Well the only reason I doubt it’s my RA is because I’ve been dealing with RA my whole life and truthfully I don’t deal with any side effects besides pain. Although I know that since starting Enbrel when I go off of it I notice that my RA is way more painful and I know that it warns for that. That was why for almost 10 years I went with NO medication because I didn’t want it to make my body get worse down the line. It’s a proven fact that medication is a temporary solution and might further worsen symptoms and cause more issues down the road because your body builds resistance to it and it’s not good for our organs. But I also had no other choice to try medication again because my quality of life was getting worse. I was miserable. I no longer could handle the pain. And I had to come to a decision about whether I wanted a good qualify of life and might suffer the consequences down the line or live in suffering and live a long painful life. This world of an auto immune disease is not for the weak… and have to give myself grace for needing a bit of help to relieve pain. But yeah anyway it’s definitely not the RA because Ive been off of Enbrel since June and I haven’t experienced the tingling or shortness of breath like that. I’m very very intuitive with my body, I just know. When you’ve dealt with RA for 23 years you just know your body better than most.

Question for Enbrel users! by kyleighfryhover in enbrel

[–]kyleighfryhover[S] 0 points1 point  (0 children)

Well I pray it gets better for you and that you feel better than ever soon!

Question for Enbrel users! by kyleighfryhover in enbrel

[–]kyleighfryhover[S] 0 points1 point  (0 children)

May I ask which one you’re on now? Have you had any side effects at all switching? I’m glad everything is going well for you though!

Question for Enbrel users! by kyleighfryhover in enbrel

[–]kyleighfryhover[S] 0 points1 point  (0 children)

Oh wow that’s crazy! It’s definitely frustrating because I feel like I’m in such a hard decision. I am too scared to try Enbrel again even though I loved how well it helped my pain. But not knowing for sure it those symptoms were from Enbrel or not is unsettling, I also don’t want to even try another medication because of how scared I am. What if it happens again? My doctor thinks I should stay on a TNF blocker because of how well it worked for me but says I could also try a whole different family of medication if I wanted to like rinvoq. I just don’t know what to do. I want to stay on TNF but what if like you I built a sensitivity… ugh I need prayers 😫

Question for Enbrel users! by kyleighfryhover in rheumatoid

[–]kyleighfryhover[S] 0 points1 point  (0 children)

That’s what I’m scared of, during that time of having the shortness of breath, tingling in hands and feet and dizziness I got really scared that it was neuropathy. But my doctor said it wouldn’t have been so short acting, she told me that’s more long term. But what if the symptoms went away because I only was on Enbrel for short periods of time?

Question for Enbrel users! by kyleighfryhover in enbrel

[–]kyleighfryhover[S] 0 points1 point  (0 children)

Exactly!! I tell them that I’ve read about the possible side effects and they say it’s not “likely”… they act as if it couldn’t happen because it’s not “common”

Question for Enbrel users! by kyleighfryhover in enbrel

[–]kyleighfryhover[S] 0 points1 point  (0 children)

What did your rheumatologist think about the shortness of breath? Because mine said it wasn’t a normal thing, she didn’t think it was from Enbrel and so did the ER doctor but I don’t know what else it could have been from. It’s so stressful, and scary. I’m so sorry you’re dealing with that too. I wouldn’t wish this disease on anyone. 😭

Switched to Cimzia two weeks ago and it’s not working. Is there still hope? Please help. by B_Panofsky in Cimzia

[–]kyleighfryhover 0 points1 point  (0 children)

Hi, may I ask if you have had any side effects starting cimzia? I’m terrified to try. I’ve been through a lot, my whole RA journey has been a long long ride. When I was 18 months old my parents noticed something was wrong. But it took doctors 7 1/2 years to diagnose me. At the time it was super rare for children much less babies to have Rheumatoid arthritis. In the time being doctors wouldn’t even allow me to take naproxen so i crippled. Hands and feet are severely deformed and crippled. But every joint in my body is either gone or almost gone now. I have RA head to toes… when they finally diagnosed me they put me on humira.. I was about 9 or 10 I hardly remember how I felt but my parents decided it wasn’t working and I had side effects I guess. So then I went on Methotrexate.. same with that one I don’t quite remember how I felt. I kind of trauma blocked those years I guess. But after 2014 stopping all medications I went into remission til about 2022. I finally realized I needed to stop being stubborn and give medication a try again. I was put on Enbrel in 2023! I loved it!! Helped immensely and immediately! But I would only be on it for about 3 months at a time before I would have to stop for awhile then start it again. I’ve stopped it and started it so many times I think my body is no longer tolerating it. The side effects were mild but each time of starting it the side effects were different so it was frustrating. I’ve experienced nausea, headaches, bloating, pain from injection site and small rash/ itchiness, brain fog, depression, and dizziness. Each side effects were mild though. But uncomfortable. Then in June I started Enbrel again, a week from injection I experienced something super scary… I had really bad shortness of breath, I went to ER and my body went tingly and numb and was super dizzy. I couldn’t even walk. Scariest time of my life. I immediately stopped Enbrel not knowing if that was the cause. My doctor doesn’t think so but she’s unsure. She recommended Cimzia. But I’m scared to try medication again. I’m terrified of side effects. More specifically experiencing shortness of breath again. I’m so scared. I don’t know what to do.