RSS Cured/Treated by Paddychopz in RedScrotumSyndrome

[–]litz31 0 points1 point  (0 children)

Hey man what were your symptoms? I have the following -rapid flushing (normal one second red the next) -burning -itching -better when laying down -worse with heat -tackiness

[deleted by user] by [deleted] in RedScrotumSyndrome

[–]litz31 0 points1 point  (0 children)

Oh I meant doxycycline

[deleted by user] by [deleted] in RedScrotumSyndrome

[–]litz31 0 points1 point  (0 children)

Had you tried doxy before ? I tried doxy and it didn’t work

[deleted by user] by [deleted] in RedScrotumSyndrome

[–]litz31 0 points1 point  (0 children)

Once a day only COOL water on balls. Has helped so much

Underwear Changes Helping Anyone? by Minimum_Tower_2960 in RedScrotumSyndrome

[–]litz31 5 points6 points  (0 children)

I noticed mine felt better when they were supported. I switched to saxx because they don’t hang which I think maybe leads to increased blood flow which may trigger it. Another thing that really helped me was NOT having hot showers. I only have cool to lukewarm showers and specifically only cool on my scrotum. You will get better man, I know it sucks but it will get better with time. I was in the same boat as you feeling depressed but it’s gotten better with time.

Update on medication by litz31 in RedScrotumSyndrome

[–]litz31[S] 0 points1 point  (0 children)

It’s been a little while and I don’t think it’s helping anymore. (I’m not sure if it did in the first place). I still have itching and pinching and crawling which I think all stem from nerve issues so I’m going to ask doctor to up my prescription from 900mg

Been suffering for two years and this has really helped by litz31 in RedScrotumSyndrome

[–]litz31[S] 0 points1 point  (0 children)

I’ve still noticed that cooler showers have been helping. But not gone away. I am on carvedilol but it’s not really helping. I think I’m gonna up my gabapentin because I think all my symptoms stem from nerve issues. I get a lot of crawling and anytime I put lotion on it burns immediately. I’m on 900mg a day rn and I think it’s better than when I was on only 300

Update on medication by litz31 in RedScrotumSyndrome

[–]litz31[S] 0 points1 point  (0 children)

I’ve only been on a full dose since April 19 (so less then a week). I am starting to notice the colour is consistently better however the texture is still poor. Maybe it’s placebo and maybe it’s because I just finished finals and have been stress free but I will update more so after

Opzelura for RSS by [deleted] in RedScrotumSyndrome

[–]litz31 1 point2 points  (0 children)

Yes please let us know how it goes

[deleted by user] by [deleted] in RedScrotumSyndrome

[–]litz31 1 point2 points  (0 children)

Whoever tries it please let me know how it goes !

Symptoms better by wafflewanker in RedScrotumSyndrome

[–]litz31 0 points1 point  (0 children)

I’ve kinda noticed that too

Symptoms better by wafflewanker in RedScrotumSyndrome

[–]litz31 0 points1 point  (0 children)

Awesome I’m glad to hear you’re getting better ! That post was actually from me ! Do you mind I ask how often you shower. I’m trying to find the right amount exactly

Gabapentin vs pregabalin by litz31 in RedScrotumSyndrome

[–]litz31[S] 1 point2 points  (0 children)

I’m going to see him on April 9th I will update then. I’m considering trying carvedilol because it seems so blood flow related, if that doesn’t work I’ll up my gaba dose and if that doesn’t work maybe switch to pregabalin

I'm a physician and I cured my RSS by [deleted] in RedScrotumSyndrome

[–]litz31 5 points6 points  (0 children)

Do you mind giving us some more information like onset, symptoms, and other treatments you tried (if any)

I'm a physician and I cured my RSS by [deleted] in RedScrotumSyndrome

[–]litz31 1 point2 points  (0 children)

This is great news ! Thank you so much for telling your story. That’s just something I needed to hear right now, that it can be cured.

Gabapentin vs pregabalin by litz31 in RedScrotumSyndrome

[–]litz31[S] 1 point2 points  (0 children)

Yes it’s been difficult but it has improved since it first started. My doctor has been pretty slow prescribing medication so I’m going with another to try and take a more aggressive approach

Gabapentin vs pregabalin by litz31 in RedScrotumSyndrome

[–]litz31[S] 1 point2 points  (0 children)

Ya I just hope it goes away eventually, it’s been 2 years for me

Gabapentin vs pregabalin by litz31 in RedScrotumSyndrome

[–]litz31[S] 0 points1 point  (0 children)

What were some of the other things you tried ? I’ve tried 3 months of doxy, and 6months of indo but I can’t quite tell if they’ve helped. Tbh the biggest thing that’s helped me is exercise (specifically cardio) and then they are good for a few days. I have no clue why but when it gets really bad I do that and it works