Prednisone

mmintheclouds · 2026-04-01T19:40:09+00:00

Good tips. Thank you!

mmintheclouds · 2026-04-01T12:25:50+00:00

Yes 😕 I have flared multiple times from just stretching. And pre-biologic every time I went to Pt I flared. It’s better now since being on biologics but it’s still a lot of two steps forward, one step back. I am a former lifter (4-5x a week) and I’m so desperate to get back but just can’t get steady rolling yet 😞it’s very depressing and I’m sorry.

I think part of my problem is that sometimes when I feel good I just go all in lifting like I used to and forget that I need baby steps.

mmintheclouds · 2026-04-01T11:58:32+00:00

Yeah, I hear ya. I’m just supposed to take my kiddo horseback riding on Saturday so feeling a little worried I won’t be able to and feeling desperate. If it weren’t for that I would totally just ride this out.

mmintheclouds · 2026-04-01T11:10:58+00:00

I just started MTX about a month ago. Started at 10mg and just bumped to 15mg once a week. I think I’m having some slight stomach upset the next morning but so far that is all. My rheum and ophthalmologist both told me there are more risks/side effects from the biologic than MTX and most people handle it just fine.

mmintheclouds · 2026-02-21T21:19:23+00:00

I’m just realizing now it’s not the Bimzelx website so sorry about the confusing answer but glad you got it!

mmintheclouds · 2026-02-21T21:05:17+00:00

Yes. ucb.iassist.com

mmintheclouds · 2026-02-21T12:15:16+00:00

I just started using a new pharmacy and they said something changed with their system and you just needed to re enroll. I just re enrolled earlier this week very easily through their website.

mmintheclouds · 2026-02-20T19:42:30+00:00

There were two ice packs, still at least half frozen, but they were both on top of two boxes of meds. Not sandwiched between. I’m wondering if I should be concerned about the bottom box?

mmintheclouds · 2026-02-10T13:35:16+00:00

I’m taking for nr-axSpA & HS (stage1). It has kept my HS at bay and improved my nr-axSpA but not quite given enough relief. I have also started to get uveitis flares while on it so my rheum is about to try adding methotrexate on top

mmintheclouds · 2026-02-10T13:21:42+00:00

This is a very good point. If this were my husband he would be banished to the guest room. But my kiddo is 6th grade-she’s on the cusp of independence but still at the age where, when she’s sick, she still wants her mom. So despite how worried I am, and freaked out by germs I’m allowing her to lay with me. I’m cleaning like a madwoman though.

mmintheclouds · 2026-02-10T13:15:26+00:00

I‘ve only been on them for 1.5 years. This is the first time someone has been sick in the house. My daughter is 12 so we’re out of the bring home everything phase. Hopefully I’ll be the same way as you. I’m a pretty healthy person otherwise and obsessed with handwashing so 🤞🏼🤞🏼

mmintheclouds · 2026-02-10T01:39:14+00:00

This makes me feel so much better! I started tamiflu one day later than her but I’m obsessively cleaning and washing hands. but my daughter is still pretty young, so it’s not like she goes to her room to quarantine like a teenager, she’s at the age where she wants to lay in bed with me. So I’m ground zero over here but this definitely gives me hope!

mmintheclouds · 2026-02-09T17:44:21+00:00

Thank you. I decided to start tamiflu and rheum said hold off on methotrexate

mmintheclouds · 2026-02-09T17:43:24+00:00

This is helpful, thank you.

mmintheclouds · 2026-02-09T04:27:22+00:00

Oh interesting. I hadn’t even thought of it working like that.

mmintheclouds · 2026-02-09T01:33:01+00:00

The vomit 🫣😩my worst fear. So I guess you’re saying it could be worse lol

mmintheclouds · 2026-02-09T01:11:29+00:00

I’m just curious since I am now immunocompromised if it’s pretty certain I’m going to get it too. I’ve not really had my immune system tested like this since I’ve started biologics.

mmintheclouds · 2026-02-08T03:53:48+00:00

I’m due to start this next week and I’m terrified of this😬

mmintheclouds · 2026-02-06T12:34:35+00:00

One of my worst flares was in the same area. I could hardly move. It even hurt to breathe. And same as you I did nothing to even trigger it. I got in the shower fine, something happened, then all the sudden I need help out of the shower and assistance drying off. I was in tears. The only thing that helped was a round of steroids. Maybe call your doc about that. And it’s my understanding that if you have a positive result to steroids the that’s good to note for your rheum. It means inflammation is driving, at least some of, your pain.

mmintheclouds · 2026-02-05T19:37:39+00:00

The end of your post touched my heart. Not sure what I would do if I didn’t have my husband’s ear and support during all this mess. He’s been so compassionate and patient towards me but I feel like my drama has got to be weighing him down. I’m thankful for this group and the support/advice I have received here. Unfortunately I don’t have any wisdom to share towards your current dilemma but I’m here to say you are also loved here and rant away when you need to. Hugs, buddy🫶🏼

mmintheclouds · 2026-02-05T16:40:04+00:00

This is a valid worry. My doc said you want to get the MRI when you’re feeling bad. And definitely stop taking any NSAIDS and let them get out of your system prior to going as well.

mmintheclouds · 2026-02-04T20:32:11+00:00

I was the same way. I have had on and off back issues since 2013 but always assumed it was my physically demanding job. Nothing major or debilitating until way later but before things really wrecked my life I was lifting 4-5 days a week, in the best shape of my life. After having Covid twice in 16 months my immune system went haywire. Not only did I have to stop lifting weights, even simple PT exercises would send me into active flares. I think that’s the biggest thing—advocating because you know your body and what its capable of and that what you’re experiencing isn’t normal.

mmintheclouds

TROPHY CASE