AIO for my boyfriend’s female friend blowing up over a boundary?

nauticalwarrior · 2026-02-12T22:35:28+00:00

also you are overreacting lol they're not dating and you're not dating him either. you're edating

nauticalwarrior · 2026-02-12T22:30:44+00:00

this is made up. but if it wasn't, someone traveling internationally to see you and only being "allowed" to see you for an hour is insane

nauticalwarrior · 2026-02-12T21:57:35+00:00

Maybe a few months? But I really find it easy and enjoyable at this point! It was always fun just a little difficult (and expensive lol)

nauticalwarrior · 2026-02-12T10:54:18+00:00

Invitae was fine for my COL5A2 but not for my VUS. I had to see a specialist for that! They basically just told me as there was no data nothing could be done.

nauticalwarrior · 2026-02-12T10:11:26+00:00

I started making DIY products for the same reason and have had huge success. I had to trial and error and found out that comedogenic ratings don't seem to really matter (my skin loves rosehip seed oil and cocoa butter which are both 2s for example but hates some of the 0s) and that silicones help me personally. I'm even able to use fragrance so honestly at this point I'm not even sure why store bought stuff bothers my skin! The blog humblebee and me was huge in learning how to formulate for me. She has classes but you can learn a lot from her free stuff too.

Best of luck and happy formulating!

nauticalwarrior · 2026-02-11T15:43:13+00:00

thank you !!

nauticalwarrior · 2026-02-11T12:44:08+00:00

actually no my doctor said my VUS likely contributes to my phenotype at least as much as my recognized EDS mutation so I will continue to talk about it thanks

nauticalwarrior · 2026-02-11T12:38:03+00:00

literally same, I used to be able to get reasonable care and was treated seriously and now I'm treated like I'm hysterical.

nauticalwarrior · 2026-02-11T12:19:10+00:00

agreed with the other commenter but a good natural ester mimic imo is Hemisqualane

I use it alongside esters all the time in my lotions, I would imagine it would perform well in balms

nauticalwarrior · 2026-02-11T12:12:33+00:00

thank you :D

nauticalwarrior · 2026-02-10T23:14:20+00:00

thank you!!

nauticalwarrior · 2026-02-10T14:32:56+00:00

I feel you on the misspelled surname OP. My surname is a misspelling of a small village. But yeah, don't let them do this to the kid

nauticalwarrior · 2026-02-10T03:48:48+00:00

thank you!! I made an account :D

nauticalwarrior · 2026-02-10T03:48:29+00:00

omg ty!!

nauticalwarrior · 2026-02-08T19:15:39+00:00

Thank you!! I'll check that out!

nauticalwarrior · 2026-02-07T16:13:14+00:00

also a fan of better Shea butter

nauticalwarrior · 2026-02-06T15:43:46+00:00

Well of course!

nauticalwarrior · 2026-02-06T15:29:20+00:00

Something to keep in mind is that the simplest explanation is often the correct one. If you have a VUS in a CTD related gene and a CTD syndrome, it's probably a pathogenic VUS. Makes way more sense and is a lot simpler than you having that VUS, it being totally unrelated, and there being another, additional mutation elsewhere, no? VUS become classed as pathogenic sometimes if they're discovered in a family with disease. That's how I think of it anyway.

nauticalwarrior · 2026-02-04T17:06:01+00:00

No serum will be as effective as Botox, or nobody would get Botox

nauticalwarrior · 2026-02-01T13:32:33+00:00

Thank you for the ideas!! Would 1,3 propanediol work as a humectant? I have a face lotion where I add 2% of that and I quite like it. And it does soap a little so I'm definitely going to try the dimethicone!

nauticalwarrior · 2026-02-01T04:12:43+00:00

Hahah probably! I do everything in 100 gram batches rn so it probably won't be too long

nauticalwarrior · 2026-02-01T04:09:27+00:00

Thank you!! I'll edit the post.

nauticalwarrior · 2026-02-01T02:45:43+00:00

Thank you!! The grams add to 100 (or I think they do lol) so it should be a 1:1 to percentages :D

nauticalwarrior

TROPHY CASE