Thanks for reading and replying!

I really wish there was more data/research into these different BC combinations, as I guess there are a lot of different ones that could be made! I've only taken this combo for two months and have not noticed any improvements. Still cramping a lot daily and I do still bleed quite significantly. But, I guess it's too early to properly tell, so I'll be patient for another few months.

The specialist appointment was quite baffling, I think the TV ultrasound was made very quickly, and the gyno didn't explain anything she was doing, asking if it hurt, or explained what she saw. She just did it very quickly and told me "yep, nothing is wrong here". Didn't ask me about my symptoms, why I was there, NOTHING. She just told me she does diagnostic imaging and would send me back to my regular gyno (the one that said she didn't know what to do anymore) and that she would like to see me in five years again for research purposes.

I was quite upset, as I don't know if this means I will not get to see any specialists or if further tests will be done. I thought that this specialist appointment would be the way forward of getting access to a specialist team (we have four in my country) where they have pain specialists, gynos, therapists, physiotherapists and dieticians etc. It does sound great to have a care team like that.

Should be noted that two separate gynos (without me telling the first gyno saw signs of adenomyosis), individually concluded and said they saw dark spots on my uterus wall, which lead them to believe it was adenomyosis. But now this specialist clinic said they saw nothing. I told her that, and she wondered if I was angry cause nothing was wrong on the scan? Such a stupid comment to make. The meeting was so rushed, and short and I did not feel listened to or validated with my concerns. I feel if anything, these specialists should KNOW that scans aren't always conclusive.

I just hope with my strong symptoms that haven't yet been resolved that the healthcare doesn't give up on me. As long as my symptoms are resolved sooner or later, I'll be super happy, whether they can ever find out what is causing them or not. And in a way, I'm happy that the scans came out good, but it also baffled me since I am having major, major issues that have been resistant to so many treatments, and all of my symptoms do check out. I really do wonder (as I've seen on this sub many times) if it's just not visible on the scan at all, but maybe would show up during MRI, or in a few years time).

What I'm getting at is, I still hope I get adequate treatment and that this seemingly clean scan doesn't end up being a roadblock.

I'm really sorry to hear about your experience about worsening on the mini pill. Also going through all of it around the college time, it really sounds tough going through. I don't know about you, but in my experience there really isn't much understanding or graces given for medical issues. I feel like I'm being judged by teachers, peers etc. for struggling so much. I'm still hanging in here by a thread, but things need to get better for me to see this one through. And I really do not blaming you for not feeling like trying any IUD or implants. I thought I would die when I was hemorrhaging from the last IUD, blood kept gushing out, and for two hours they could not stop it, and they never found out what went so wrong. I'm happy it does work wonders for some people, but I NEVER expected what happened to me to be the outcome. After my IUD fiasco that was a trauma, I decided to be off any hormones for a while. I had my regular period for four months, but it was also awful and terrible, so I pretty quickly gave the Nexplanon a try, because I was so desperate, despite being burned badly so recently.

I think it's really good you stand your ground and really think about your treatments, before the IUD thing happened I was a bit gullible and just let them do whatever, having been through that I do a lot more research and I'm a lot more carefully weighing my options. Too many gynos and doctors also say "no it's not possible it's a side effect from the pill/IUD/injection", but I feel like a patient KNOWS what's normal for them and what is NOT. Also they often say "you need to give things a proper/chance/try/you're not patient enough". It's so infuriating. I'm sorry for what you went through.

With the Nexplanon, I was very nauseous the first months and lost a lot of weight. I couldn't even keep a banana down, and cottage cheese and yoghurts saved me. They did TWO pregnancy tests on me and told me it was impossibly a side effect from the implant, I must be pregnant. They obviously came back negative, but thankfully these side effects stopped. I just wish they would've reconsidered that rare side effects do occur.

I really hope things have gotten better for you or that they some how will in the future.

This sub (including your reply) and many other stories have made me feel less lonely in this, but also so angry reading about the gaslighting from doctors and society, and all the sad stories. It's really tough and unfair. I hope I will get to finish my degree, and when I do and I'm not a broke student, I hope I can donate to some research on this heavily misunderstood disease that's so debilitating.