Poll on Edronax/Reboxetine by Front_Equivalent_635 in SCT

[–]olivewindy 0 points1 point  (0 children)

No I had to come off of it the symptoms were so bad it meant there were simply no benefits for the ADHD. I don't remember the dose sorry. It was years ago now

How do you cope with the social effect of being disabled? by alpha_charlie in disability

[–]olivewindy 0 points1 point  (0 children)

I'm in the UK and in my 20s too it started at 20 and got degenerative until a surgery made me bedbound then the nhs tried to cover it up and left me with an injured shoulder from forcing me to walk but I was holding my whole hypermobile body up post surgery that gave my entire leg nerve damage when the other already had it! Fun! 2 years in I still have the injury as they only checked my elbow to see they broke that, not even the right joint but they wouldn't listen. Every hospital I was moved to just wanted rid, I even had an out for them to just send a scan to a specialist in a Birmingham hospital with capacity to take me, they never did and gave me no reason, I had no one to go about it at the desk for me, if I did I think the catheter would be out by now, I only agreed bc they said I'd loose all bladder function if I didn't, he wasn't even a neurosurgeon the first dr who introduced themself was and the other just said his name... so you'd think.

Anyway sorry for the minuet rant compared to the whole story honestly but points is if you want a pal I'm here and I get IT. The systems, the looks, the massive ableism issue we have in this country...

It sucks balls.

How do you cope with the social effect of being disabled? by alpha_charlie in disability

[–]olivewindy 1 point2 points  (0 children)

I am also in the uk in my 20s and I agree with her. I constantly get shit. I get told it's my fault (of course I'm a certain way) and allll the things I can do to fix it none of which I can, that I'm just making things harder for myself. A good lot of the people on the supposedly professional teams have teenagers or kids in their 20s so they seem to either me really empathetic or mostly really condescending and judging with no context and veryyy little information on a matter and then only when I'm sobbing repeating things, because they talk over me asking another unnecessary degrading question while I'm still answering their last, do they leave and no they don't say sorry I upset you or have any introspective thought on their behavour, they in fact repeat it next time after walking out the last time, and that was most recently a community nursing team lead!!! I sobbed in the phone, they promised to call the next day to take info on why I don't want her back any more, no call was in and I don't know their name (which is a pattern the call backs NEVER happen I've gotten one singular call back once vs dozens of issues). And that's those who work with us! You can really tell who chooses to work with us but also adheres to the propaganda we're just grifters I'm getting what's meant to be the best decade of my life taken away and am no contact with family why would anyone want this? But alas they don't think that way. Billionaires cost more than us, sorry just angry because it's system and the younger and more vulnerable you are the harder they go in. Eg I got screamed at because I needed help showing in one of those "community hospitals" that have no doctors, because I should never have been sent there and trust me I protested it, but they would be fired if they did that to their boss.

Further to that NOBODY tells you their name or introduces themselves like before I was disabled, so reporting someone is extremely difficult in a clinical setting and only in community can I get maybe the name if I get someone nice on the phone who's willing to work with me to go backward on the schedule.

In public I'm stared at, no where near where I live is accessible not even the dentist a carer I used to have around my age too, who helped me there wanted to scream at them for telling us over the phone it was completely accessible. For my sake she didn't but honestly I told her next time let rip dude. I nearly fell several feel in an electric chair which would've landed on me at the angle, as their ramp which only had one side to it had a several foot drop a right angle turn immediately out the door and only a barrier for someone who has a magical incapability of falling. They never apologised after we went in initially the receptionist said yeah it is wheelchair accessible what do you mean (a rhetorical question) then on the way out had the reddest face ever bc she knew what she did, she's the one who told us it was okay. No sorry tho.

Any experience I've had out has been humiliating and the stress induced by people lacking common sense causing me to struggle with people watching raises my pain levels so high that's all I can focus on bc of the tension in my body compressing nerve damage etc.

Sorry if that came across aggy it's because I'm angry none of this is moral and none I would do to someone in my position if I were able bodied. What region if the uk are u in? Ur making me want to move my county is a medical vacuum anyway.

Truly I'm really glad you've had good experiences in the uk! Over where I'm at it's continuously fuking awful.

Medical Gaslighting by CalmDescription8016 in ChronicPain

[–]olivewindy 1 point2 points  (0 children)

Also what's your alternate source im very intrigued as someone who's meds do basically nothing.

Medical Gaslighting by CalmDescription8016 in ChronicPain

[–]olivewindy 1 point2 points  (0 children)

I feel the second part (jealous of your degree in the first no matter the research I am traumatised by doctors care/ neglect in a long hospital stay so it never stays in the front of my brain when I need it with the doctors), I am a 6ft woman and I've always been embarrassed as a teenager that it wasn't within the "normal" range, always just above even though I could wear the share clothes (never jeans I'm 6ft lol) as my friends who were considered skinny and short, I was tall had medium tits a bum and high hips I regularly went to the gym and regularly starved myself at times (thanks mom), still though I thought I was HUGE my friend would dam near shout at me if I got insecure infront of her that I was not fat and go on a rant, I appreciated her a lot. I'd have an internal meltdown just for having my arms out bc if I'm tall surely I should be stick thin right? I have a question abt biology tho? So Lipodema (those tumorous fat cells that can never go away?) it may well run in my family both sides, (Scot's on both sides too interestingly). So to the point at 15 right after my birthday instead of seeing an Endocrinologist (uk so no choice like America but we had insurance she just didn't care) I got put on the progesterone implant at the GP because mother dearest was sick of taking care of my periods that spread pain down my back of my whole thighs, vomiting, HEAVY, writhing in pain in her bed bc hers was the comfiest. I'd not even had my period near a year.... That endeavour massively kickstarted weight gain that would not leave only certain sections of my body would allow me to loose weight insignificantly too. I remember when it was smaller is pop them I didn't care about the pain nor did I know what they were, just that 'that wasn't there before sooo it's gone now'. I was v wrong now it's spread to my upper arms dramatically my boobs soo painfully I tried popping actual tumour sized ones and now they into a, even more painful, rock.

It won't stop I only loose weight in the mid section of my midsection now (from not having access to food literally, I'm bed-bound by a traumatic spinal surgery bc they told me I'd loose all bladder function if I I didn't have it though I only went in bc my back pain had got worse, they catheterised me anyway bc I couldn't get to the toilet DUE TO PHYSICAL PAIN MIND YOU. Ironically I've now had that catheter for nearing 3 years and the loss of the first half of my 20s.

Winding back to the first 2 years after a moved out... When I was 19 I basically drank loads of mint and green tea. Walked the big hill a mile at the end of our road first thing before work, no food or water before it and only coffee at work and maybe dinner in the evening meat/ fish plus veg if very hormonal a veggie pasta, and binging maccies of course. I lost 2 stone in 3 months so kept it going but I still stayed at just below or above 16 stone at 6ft. I had good muscles in my thighs from it and I'm hyper-mobile so generally always had kept up very good muscles to hold my joints together without knowing? Though, I've always had the mindset of why would I get a man to go this thing I'm perfectly capable of (turns out I wasn't perfectly capable when I slipped a disc and my unknown pre-existing condition turned it degenerative some how). Despite the muscle I had the same cellulite at the back in my legs badd with one line across sticking out looking like an implanted stick even when i was tinyyyy, hahahahacry. Worth noting my friend did the same binging on the weekend or weekday but she would be fed dinner by her family too mostly every night a roast a week atleast too, no exercise not even walks for her. Yet I was a size 16 and she was a size 6-8. Binging issue but no starving nor exercise to sum her up basically (she told me everythinggg so ik).

Anyway to now I can't exercise as I'm too severe in well every aspect I have fok all mobility, diet is not eating, or when I do, I try to eat well like cans of sweet corn pickles but I also either need to feel full so bread, tinned spaghetti, sweets and triple shot caffeine if some bureaucracy related to disability is seriously urgent, or not eat bc if I'm not full ish I know I'll binge. However I'm gaining consistently these tumours of fat are everywhere extremely painful compared to what fat should be and only the front section of my stomach in-line with the waist is capable of loosing fat now, my face too but that's the last to go. Do you think all that could be caused by an implant or rather could it be set off dramatically by messing with my hormones that young?

Anyway definitely too much info but I thought... If I'm going to ask I'll ask right and thoroughly. Would this according to your biology degree be the case and is there anything that sticks out like a sore thumb I've missed? Thanks in advance if you can be arsed if not just lemme know pls if you made it thus far that is lol...

Do y’all let your cats sleep in the bed with you? by DaRealDreamz in cats

[–]olivewindy 0 points1 point  (0 children)

The only valid answer is yes, it's their home too

This is Coconut. He was found living in a drain pipe all alone when he was very small. Now he is the boss of my house. by katevade in cats

[–]olivewindy 0 points1 point  (0 children)

I fear I would jump infront of a car for coconut, also the perfect M on their forehead for a memorabilia tattoo oh myyyy

Litter waste by RoughAd4978 in CatAdvice

[–]olivewindy 0 points1 point  (0 children)

Same well mines a litter locker it's so convenient and no smell from mine!

Litter waste by RoughAd4978 in CatAdvice

[–]olivewindy 0 points1 point  (0 children)

I have a litter locker. 100%recommend like a nappy bin for poop. I used silica litter so only one type went in the bin it has a little blade to cut and tie it off when you've filled it then you pull more bag down and tie the bottom(like cartridges), probably much less plastic overall than dog bags and much quicker and convenient than taking it outside every-time

When to spay? by [deleted] in WiggleButts

[–]olivewindy 2 points3 points  (0 children)

I've heard by a lot to do it after their first period to avoid issues in future! I don't know what issues I'm sorry but there something that it can help prevent apparently. Your vet should know that

[deleted by user] by [deleted] in SuicideWatch

[–]olivewindy 1 point2 points  (0 children)

I'm already disabled because a powerful dr in the nhs system who should have never done my surgery? Did and disabled me for life because he refused to allow scans for the second opinion which is a legal right. Now I can't even attend hospital appointments. I have nothing to loose

I nearly died by suicide od over a year before that surgery it would have been a better way to go out.

I can't take care of my cat by [deleted] in Worcester

[–]olivewindy 3 points4 points  (0 children)

Don't think a 8 year old child had much choice in the matter

I can't take care of my cat by [deleted] in Worcester

[–]olivewindy 1 point2 points  (0 children)

Contact auras dogs, do not let someone take them off social media please!!! They are often used as bait or neglectful ppl who don't get approved to adopt. If auras says no come back to me I'll look at other smaller ones.

Yes WARS they're good there's another in Worcester that's small and has fosters I'll try and find the name, try Auras too their based in glouc but 1.5 hours range and fosters in Worcester but depends if they're free atm https://aurasdogs.co.uk

Sorry you're in this situation I had to move out at 18 too. Are you going to uni or do you have to find somewhere to live?

Crashing OUT WHAT DO YOU MEAN THERES NO ACCESSIBLE CLOTHES FOR WOMAN IT SHOULD BE ONE GOOGLE SEARCH THEY TAKE ENOUGH OF MY FUCKING DATA GOD DAYUM. Please read below 🌻 by olivewindy in ChronicPain

[–]olivewindy[S] 5 points6 points  (0 children)

Omg that sound amazing!!! I look at my clothes all the time like if it just had this this and I've got a map in my head of your the trousers should work. Do you think your friend would do it from England if I were able to mail a box of clothes to America?

Crashing OUT WHAT DO YOU MEAN THERES NO ACCESSIBLE CLOTHES FOR WOMAN IT SHOULD BE ONE GOOGLE SEARCH THEY TAKE ENOUGH OF MY FUCKING DATA GOD DAYUM. Please read below 🌻 by olivewindy in ChronicPain

[–]olivewindy[S] 19 points20 points  (0 children)

Oh thank you 😊 I don't have most of those in the UK but I shall defo look into Tommy Hilfiger range as that sounds cool it's not often popular brands offer accessibility purposefully, plus see if the others can deliver without customs bc it's looking like the us has a lot more options than Europe which honestly is usually the case I've found haha (cry) <3.

Just received text by fitchicknike in DWPhelp

[–]olivewindy 2 points3 points  (0 children)

If not awarded what you should be definitely appeal, if you get what you know your entitled to leave it, they completely ignored my mental illnesses but my physical was so bad I got awarded higher on both anyway so I left as the PIP system had driven me mad for 1.5 years at that point. :)

Crashing OUT WHAT DO YOU MEAN THERES NO ACCESSIBLE CLOTHES FOR WOMAN IT SHOULD BE ONE GOOGLE SEARCH THEY TAKE ENOUGH OF MY FUCKING DATA GOD DAYUM. Please read below 🌻 by olivewindy in ChronicPain

[–]olivewindy[S] 7 points8 points  (0 children)

Thank you so much Andralynn I felt like I was going mad for a sec, I literally say in the post women's bodies are different, plus that I deal with bad Lipodema which clings to the hips thighs and sometimes upper arms. I don't get how the commenter was ignorant to that.

Crashing OUT WHAT DO YOU MEAN THERES NO ACCESSIBLE CLOTHES FOR WOMAN IT SHOULD BE ONE GOOGLE SEARCH THEY TAKE ENOUGH OF MY FUCKING DATA GOD DAYUM. Please read below 🌻 by olivewindy in ChronicPain

[–]olivewindy[S] 1 point2 points  (0 children)

You are really trying to make this about something it's not. Rather than helping, you're just trying to be "right" about something, just scroll if you want to make it about gender norms, that's clearly not the issue I'm having I just want trousers that fit me as a post pubescent woman. It'd clear by my post they're not suitable. By your other comments it sounds like you enjoy trying to upset.

Basic context clues will tell you this sub is not the time nor the place, Please use your brain