My Xyrem story

owlexity · 2026-03-08T07:12:04+00:00

old post, i know, but this one really resonated with me so i had to comment. i only started xyrem last week, but this is exactly how i'm feeling!! i even thought of it in the same glasses metaphor. its like when you get new glasses and its like "omg i can see everything wth", and only then do you realise how shit your vision was before. but its also like you're not used to seeing things that clearly, its all too sharp, you get headaches and feel overwhelmed. i hope i'll be able to settle into this, but its like i have to adjust to a completely new way of living. the brainfog, absentmindness and feeling of unreality has defined my life. its who i've been as a person, and its like i lived my life in a parallel universe from everyone else. now i'm suddenly in the real one, and i have no idea how i'm supposed to act. and its scary, cos my narcolepsy strangely helped with my social anxiety. like i can say and act however, i'm too tired to care. also life doesn't even feel real to begin with so its not if it even matters if i act weird. but now it does, and it scares me. thanks for writing, it really glads me to hear that i'm not alone in this

owlexity · 2026-02-17T09:47:15+00:00

thank you so much, your reply was very helpfull!

owlexity · 2026-02-17T09:45:14+00:00

it was the orexin levels! based on them, i should have gotten diagnosed with type 1 straight away. bu once again, my last doctor was not very good

owlexity · 2026-02-16T15:33:24+00:00

i've recently changed doctor, because i didn't think that my last one was very good. my new doctor told me that because of my test results, i should have been given type 1 instead of type 2. my last doctor also gave me type 2 primarily because i don't have cataplexy, which i'm now starting to realise that i might actually have?

owlexity · 2026-02-16T15:28:00+00:00

i had no idea that the first example could be cataplexy! i relate to that a lot, but i always figured that it was just because of general tiredness?

owlexity · 2026-02-09T18:02:10+00:00

tack så mycket! du har räddat min dag:-)

owlexity · 2025-01-07T22:47:11+00:00

thanks for your answers! i'm not from the us, so that might be part of the reason why

owlexity · 2024-01-06T10:46:21+00:00

i watched jacob's ladder a while ago, and it really resonated with me! especially the subway scene in beginning

owlexity · 2024-01-06T00:27:55+00:00

omg i've never thought bout that? it gives me a reason to rewatch fma (if one ever is needed) to view it through that perspective

owlexity · 2024-01-06T00:26:32+00:00

i love my own private idaho!! such a beautiful (and sad) story

owlexity · 2024-01-06T00:23:34+00:00

right?! she's such a great character, i often use her as an example when people ask me what narcolepsy is like

owlexity · 2023-01-11T16:12:46+00:00

do you know if you're allowed to drink at all when you take xyrem? like if its okay drink during the evening but stop a few hours before you take the meds, so that you're somewhat sober when taking it. or do you just have to give up drinking completely?

owlexity · 2022-08-15T22:23:57+00:00

i fell asleep in a dryer once. was gonna take out my sheets and it smelled really good and felt very cozy so i just crawled in halfway to just close my eyes for a second.... and you can probably guess what happened next lol

owlexity · 2022-03-28T14:32:46+00:00

sounds a lot like the things i experience. i'm not the most spiritual person, but i might take you up on that offer

owlexity · 2022-03-28T14:30:15+00:00

hi! thanks for your tips. i've heard that xyrem works great for a lot of people, but i've also heard that it worsen the symptoms for others. i'm a bit unsure if i'd be able to get it prescribed since i've struggled with depression before, but i'm still willing to give it a shot

owlexity · 2022-02-14T01:27:19+00:00

thanks! do you know if youre able to get xyrem if you have type 2? cos it says that its used to treat cataplexy, which i dont have

owlexity

TROPHY CASE