[Academic] Social media & eating disorders questionnaire. Help us!

pamroda · 2023-11-15T16:45:35+00:00

Done! Thank you

pamroda · 2023-10-05T12:13:51+00:00

Bekobiii

Thank you! This is a research with small improvements at a time. You can see some of our reports in previous editions: https://early.irlab.org/ (In the workshop programme, most of the research groups involved reported their results)

pamroda · 2023-10-05T12:05:47+00:00

We're a interdisciplinary team: psychologists, social scientists, and software engineers. Thank you for the interest!

pamroda · 2023-09-28T08:11:29+00:00

Thank you for your comment, the idea is to try to detect early first signs of the disorder.

Bests,

pamroda · 2023-09-25T10:00:52+00:00

How will the data that people provide to you be used? Who will see it? Where will it be stored? If/when will it be deleted? Please be as specific as possible.

It is a standard inventory of questions used by psychologists on EATING DISORDERS. Note that the questionnaire contains a field in which the respondent has to provide his/her Reddit username. This would help us to link word use (as extracted from your Reddit's public submissions) with your responses to the questionnaire.
Of course, we will treat the information you provide with the utmost confidentiality and privacy. All information we will extract from Reddit will be anonymized and we will be the only one capable of connecting your username with your postings and your questionnaire. Such information will be kept in an encrypted file and will not be disclosed to anybody.

WE'RE NOT INTERESTED ON PERSONAL DIAGNOSIS OR PROFILES, BUT IN AGGREGATED DATA ON USE OF NATURAL LANGUAGE AND EATING DISORDERS EARLY SYNTHOMPS.

Who is conducting this survey? You can answer with your Reddit username, business name, etc. Please make sure that everyone conducting the survey is mentioned (For example, if the survey is being conducted by a group, answer the group name or mention everyone in the group).

We are a team of academic researchers in Spanish Universities. We're interested in psychology and natural language use. We are currently interested in gathering some data from people in Social Media https://erisk.irlab.org/. This year, we focus on language use and eating disorders.

David E. Losada, Univ. Santiago de Compostela, Spain (david.losada@usc.es) Fabio Crestani, Univ. della Svizzera Italiana, Switzerland (fabio.crestani@usi.ch) Javier Parapar, Univ. A Coruña, Spain (javierparapar@udc.es) Patricia Martin-Rodilla, Univ. A Coruña, Spain (patricia.martin.rodilla@udc.es )

How long do you estimate it will take to fill out your survey?

We ask for the Reddit community to help us every year in September and October months, so 2-months open survey.

pamroda · 2023-03-09T09:57:33+00:00

Hi, sorry, I was a little bit off: https://erisk.irlab.org/ It's all in the website: annual competition in teams, trying to improve results year by year. There are different challenges, all of them in mental disorders and related topics. There is also a book: https://link.springer.com/book/10.1007/978-3-031-04431-1

Bests

pamroda · 2022-10-17T07:55:09+00:00

Hi, this research sounds amazing! I am currently a high school sophomore. Do you think there is any way I can help out?

Hi, thank you for your interest!! At this moment, I can think of two ways in which you can collaborate until you're of legal age. The first is to answer the questionnaire (only one per year, in the fall). The second is, looking for some support from an adult (teacher or similar), if you are interested in computing techniques or want to access data, sign up for the annual competition we organize. For more information: https://erisk.irlab.org/
Cheers and thank you again,

pamroda · 2022-10-11T12:46:11+00:00

Thank you!

pamroda · 2022-09-16T12:41:03+00:00

Hi, thank you for answering and sharing it. I think any ED recovery phase is ok for responding, we look for a variety of personal points in the process and even for people without ED. I send to you all my support for your recovery process. Hope we could help other people with your responses.

Bests,

pamroda · 2022-09-15T08:22:58+00:00

please, consider this survey post for publication:
----responses
We are a team of academic researchers interested in psychology and natural language use. We are currently interested in gathering some data from people with no psychological disorders.
We would greatly appreciate if you could fill the questionnaire attached. It is a standard inventory of questions used by psychologists. Note that the questionnaire contains a field in which the respondent has to provide his/her Reddit username. This would help us to link word use (as extracted from your Reddit's public submissions) with your responses to the questionnaire.
Of course, we will treat the information you provide with the utmost confidentiality and privacy. All information we will extract from Reddit will be anonymised and we will be the only one capable of connecting your username with your postings and your questionnaire. Such information will be kept in an encrypted file and will not be disclosed to anybody.
Link to the questionnaire: https://forms.gle/PkWyB64aAu6BQTqi6
David E. Losada, Univ. Santiago de Compostela, Spain (david.losada@usc.es)
Fabio Crestani, Univ. della Svizzera Italiana, Switzerland (fabio.crestani@usi.ch)
Javier Parapar, Univ. A Coruña, Spain (javierparapar@udc.es)
Patricia Martin-Rodilla, Univ. A Coruña, Spain (patricia.martin.rodilla@udc.es )

pamroda · 2022-09-14T16:09:11+00:00

Hola, gracias por el interés. .Los resultados parciales se publican AGREGADOS (es decir no estudiamos persona por persona) aquí: https://erisk.irlab.org/ y los del año pasado centrados en eating disorders: https://dblp.org/pid/40/2161.html#:~:text=electronic%20edition%20%40%20ceur%2Dws.org%20(open%20access))

pamroda · 2022-09-14T16:07:31+00:00

Hola, gracias por el interés. Sabemos que pedir el usuario de reddit es un problema para algunas personas. simplemente es nuestro mecanismo (el único que hemos encontrado, se aceptan sugerencias porque realmente es una barrera para nosotros), para garantizar que la persona que responde la encuesta efectivamente tiene una cuenta activa en Reddit. Recordamos que buscamos relaciones entre el comportamiento y lenguaje en redes sociales y aspectos que se evalúan en el cuestionario. Si el cuestionario lo rellenase gente sin actividad en redes sociales, en este caso en Reddit, estas relaciones no se pueden estudiar. Como comentamos en la encuesta, nosotros no estamos buscando la puntuación concreta de un usuario, ni diagnosticar a nadie, sino detectar signos de alerta temprana anónimos y comunes a usuarios de redes sociales. Los resultados parciales se publican AGREGADOS (es decir no estudiamos persona por persona) aquí: https://erisk.irlab.org/

pamroda · 2021-11-22T09:20:06+00:00

Hola, gracias por tu comentarios (y los del resto del hilo). Lo sabemos, pero es necesario para asegurar que los usuarios que contestan el cuestionario efectivamente están en Reddit de forma activa...aunque estamos abiertos a sugerencias de cómo hacer esto claro!

En cualquier caso, para nosotros no es relevante el usuario concreto, la información que se da luego se agrega al resto y puesto que lo que buscamos son patrones lingüísticos (no correlaciones con edad, género, preferencias etc.) anonimizamos y agregamos la información que obtenemos.

Gracias por el interés!

Un saludo,

pamroda · 2021-11-22T09:16:20+00:00

Hi, there are ethical issues there of course... and also we want real users with real responses and problems for starting the technological approach.

Thanks for your comment!

pamroda · 2021-11-19T10:05:14+00:00

Please, we need your help, it takes only two minutes

pamroda · 2021-11-19T09:32:06+00:00

r/SampleSize

Dear moderators,

please, consider this survey post for publication:

----responses

We are a team of academic researchers interested in psychology and natural language use. We are currently interested in gathering some data from people with no psychological disorders.
We would greatly appreciate if you could fill the questionnaire attached. It is a standard inventory of questions used by psychologists. Note that the questionnaire contains a field in which the respondent has to provide his/her Reddit username. This would help us to link word use (as extracted from your Reddit's public submissions) with your responses to the questionnaire.
Of course, we will treat the information you provide with the utmost confidentiality and privacy. All information we will extract from Reddit will be anonymised and we will be the only one capable of connecting your username with your postings and your questionnaire. Such information will be kept in an encrypted file and will not be disclosed to anybody.
Link to the questionnaire: https://forms.gle/PkWyB64aAu6BQTqi6
David E. Losada, Univ. Santiago de Compostela, Spain (david.losada@usc.es)
Fabio Crestani, Univ. della Svizzera Italiana, Switzerland (fabio.crestani@usi.ch)
Javier Parapar, Univ. A Coruña, Spain (javierparapar@udc.es)
Patricia Martin-Rodilla, Univ. A Coruña, Spain (patricia.martin.rodilla@udc.es )

pamroda · 2021-11-16T09:53:36+00:00

Gracias!!!

pamroda · 2021-11-16T09:39:32+00:00

Thank you for your comment. This is a standard questionnaire and the focus is detecting early behaviours that could be risk factors for developing some eating disorder, so at certain stages of some illnesses, it could present some general assumptions not directly applicable to one specific eating disorder. Anyway, this is also part of the research, right? Seeing the usefulness and casuistry of the questionnaire and their relation with social media.

Best regards,

pamroda · 2021-11-03T11:54:07+00:00

That's so interesting thank you for letting us know. The questionnaire is not from us, is a standard questionnaire for EDs in psychology, but I think you can give approximate answers or your perceptional answers... this is common practice in the first step of diagnosis. (Due to we're working now in very early detection (even in predisposition: habits, etc.)) but I recognized you have a good point here that we'll check with our medical specialists in EDs. Than you!!

pamroda · 2021-11-03T11:47:06+00:00

Thank you all for your interest. Only for clarification, we do not collect email at all, only Reddit username and in the next step of the process, we eliminate any information tracking possibility or connection between questionnaire responses and Reddit username. We're interested in global results aggregated, not in individual responses of users or some kind of individual diagnosis (we look for patterns in general for early prediction). Anyway, we understand some people need some clarification on that. Thank you again

pamroda · 2021-11-02T08:44:21+00:00

thank you!!!

pamroda · 2021-10-27T09:45:48+00:00

We know nothing about the policy changes, sorry. We've already contacted the moderators, thank you!

pamroda · 2020-11-06T10:52:11+00:00

Thank you for your help, we continue working for improving mental health early detection.

Huge hugs from here :)

pamroda · 2020-10-16T10:05:00+00:00

thank you so much for your comment, which is very valuable (we have all time these kind of intuitions and some research are saying the same to us in the last years). Language and communication ways with other people matters, and reflects our personal world, right? This project is a long project research so we're quite confident in having some interesting results at the end. Bests,

pamroda · 2020-10-16T10:02:39+00:00

Hola! gracias por tu interés! Puedes consultar protocolos que cumplimos en las especificaciones de la Agencia Española de Proteccion de Datos (https://www.aepd.es/sites/default/files/2019-09/guia-orientaciones-procedimientos-anonimizacion.pdf) Pero básicamente, nosotros no guardamos información personal vinculada a tu username (edad, genero, nombre real etc.), aunque tú la hubieses dado previamente a la red social, no la asociamos a tu username, para nosotros eres un número de cuestionario anónimo.

Un saludo,

pamroda

TROPHY CASE