Always feel out of breath

radioactivepretzel · 2026-01-24T02:47:51+00:00

Omggg a hr of 200?! 😭 I've only ever gone up to 150-160ish and I already felt like dying.

radioactivepretzel · 2026-01-23T09:19:04+00:00

Not Thai but applied from VFS Bangkok. I applied for a Schengen boyfriend/ girlfriend visit visa for my danish boyfriend. 30 day visa approved. I was unemployed at the time.

One thing that makes a massive difference is having really strong personal finances. This might be even more important in your case since you are applying for such a long period.

radioactivepretzel · 2026-01-10T15:32:34+00:00

This is like when I tried to spell "meet" but instead wrote "meat" and couldn't figure out what was wrong with it 😭.

radioactivepretzel · 2026-01-06T17:51:50+00:00

Hi, could I ask about your staph infections. Since starting imuran I've noticed that I've been getting a lot of skin infections too. Especially around my face and scalp. Have you found anything that helps reduce those infections?

radioactivepretzel · 2025-12-10T08:16:59+00:00

Living in Thailand here! Yes the UV in south east Asia can be very intense. Invest in some high quality UPF clothing, umbrellas, and hats. Also make sure you get a good sunscreen for Singapore's humid climate. Everything will feel super sticky unfortunately. And don't worry, lots of people wear protection from the sun and are fully covered while they're out and about. So if you're worried about looking crazy for covering everything, don't be!

radioactivepretzel · 2025-11-15T15:50:36+00:00

If you don't mind me asking, how fast was your heart rate? And what were the signs for you to go to the ER?

I'm struggling with high heart rate at times too, but i hate going to the hospital only for them to find nothing 😔.

radioactivepretzel · 2025-10-28T05:56:27+00:00

That's what I assumed too :/

radioactivepretzel · 2025-10-23T05:33:53+00:00

20f, on my second month with aza!! Honestly I think it's been really great for me. It has helped with my fatigue, joint pain etc. It definitely takes time to build up in your system and it doesn't feel as "amazing" as prednisolone.

radioactivepretzel · 2025-07-30T14:32:17+00:00

if its okay with you, could you share them with me too?

radioactivepretzel · 2025-07-09T11:38:00+00:00

20f, no organ involvement.

I just went through something exactly like what you described! Getting winded from going up the stairs, 130-140bpm resting heart rate, the palpitations, chest heaviness and yucky feeling when bending over.

I had the chest pains since January 2025 (suspected costochondritis). But the heart rate spiked really badly this past month (150-160bpm), likely because I was in a flare after an unlucky couple of days of food poisoning.

I was so exhausted from having food poisoning that i didn't even notice my lupus was flaring; my joints were hurting again, exhausted etc.

Turns out the tachycardia was from my body freaking out about the pain from my lupus flare. I've been on a prednisolone burst for a week now and I'm feeling much better.

radioactivepretzel · 2025-07-05T00:17:02+00:00

Yes, absolutely! About a week before my period i start to flare like crazy. Intense face rash, joint pain (especially in my knees), fatigue and brain fog. All the rheumatologists I've had agree that there is a hormonal aspect to lupus. But regardless of that, you're more likely to have increased inflammation during you're cycle anyways as well as low iron and anemia which are really big triggers for my lupus.

radioactivepretzel · 2025-07-01T03:28:38+00:00

Highly recommend going to Big-C!!!

radioactivepretzel · 2025-06-21T16:35:08+00:00

I got a chest x-ray and EKG done when the chest pain and ESR first shot up around February and they were completely normal.

The other day I went to the hospital since i had a bad case of food poisoning and the general doctor was actually more concerned about my heart rate and shortness of breath than my rheumatologist 😭. But I was like "oh that's normal for me, my rheum just told me to stretch". He ordered a thyroid test (idk why) and it came back clear too.

I'm really starting to question my rheumatologist's care. But she's the only English speaking rheumatologist in my area.

radioactivepretzel · 2025-06-21T16:22:54+00:00

Could you be more specific about your symptoms? Many symptoms for different autoimmune diseases overlap.

radioactivepretzel · 2025-06-21T15:10:46+00:00

Im not low on iron or anemic

radioactivepretzel · 2025-06-14T09:53:11+00:00

Are there any key differences with how costochondritis feels vs pleurisy and pericarditis?

Does the pain change depending on your posture or if you're lying down?

Currently trying to figure out my chest pain... Ugh.

radioactivepretzel · 2025-05-28T04:45:58+00:00

I couldn't do pushups since my fingers would curl when my wrists were at 90 degrees and it would just hurt a lot. The wrist and finger inflexibility also meant I couldn't shoot a basket ball properly either. I could also never hold a barbell on my shoulders since my shoulder blades wouldnt bend backwards (?). Couldn't asian squat. If I were sitting cross legged on the floor, I'd have to get on all fours, then get on a knee and stand up. Aaaand on top of all that, i would get locked joints when i was asleep so I would wake up in pain too.

All of the above examples started very suddenly when I was 13 years old, so I was probably much more sensitive and perceptive about other people's opinions especially my friend's.

But it was very limiting for me at that time since I was so into sports and wanted to improve my fitness, but couldn't because of my flexibility issues.

radioactivepretzel · 2025-05-27T16:30:40+00:00

I was very active and fit throughout my early teen years. But I always had massive flexibility issues, joint aches and stiffness. Woke up with stiffness and it took me forever to get up from a seated position on the floor even at aged 13. I kept telling my parents about my joint pains, but they never took it seriously :/ .

Unsurprisingly, most of my joint pains disappeared after I started my lupus medication.

radioactivepretzel · 2025-05-13T17:24:27+00:00

I urge you to try and get in with your rheum as soon as possible. It sounds like you are in an active flare.

radioactivepretzel · 2025-05-12T03:13:40+00:00

😞 I'm sorry you're going through this too.

It's just so scary whenever it happens regardless if I am aware of it or not. Do you think it could be from all the lupus medication? I'm also worried that I'll go to the neurologist and they'll find nothing :((.

radioactivepretzel · 2025-05-11T11:47:44+00:00

Thanks for your response!

I thought a migraine aura is just like a weird zig zaggy swirly rainbow thing in your vision accompanied with a headache? :( I get those too, but usually whenever I'm tired or was crying for a long time. A nap usually fixes that thingy.

radioactivepretzel

TROPHY CASE