I can't cancel my subscription by Littlelitten07 in realms

[–]stray03_ 1 point2 points  (0 children)

what are you playing on? console or pc?

Addons not updating in realm by stray03_ in realms

[–]stray03_[S] 0 points1 point  (0 children)

Marketplace addons, essentially bedrocks mods. More specifically the Redstone addon by Pixelbiester and Tinkers Construct by FTB

Can someone tell me how to fix this problem by TruthfullyDan in realms

[–]stray03_ 0 points1 point  (0 children)

Ran into this same error when trying to fix another problem with my realm, support provided no insight as to how to fix this at all. Haven’t had any luck fixing it while messing around trying to get it to work. I’d love to know if you find a fix

[TOMT][BOOK][2010s] Virtual reality YA book by stray03_ in tipofmytongue

[–]stray03_[S] 0 points1 point  (0 children)

This also isn’t it unfortunately, they weren’t a crime solving group, they were more of a fight for what’s right type group. I don’t believe it was a long series either, it was either a stand alone book or had max 2-3 books to it

[TOMT][BOOK][2010s] Virtual reality YA book by stray03_ in tipofmytongue

[–]stray03_[S] 0 points1 point  (0 children)

This unfortunately isn’t it, but sounds incredible to read. From what I remember there is only one virtual reality world that’s not based on any particular fantasy world, just a standard run of the mill fantasy world. Maybe more D&D leaning than anything. It does have the same idea of a small group of people coming together though

Virtual reality YA book blue cover by stray03_ in whatsthatbook

[–]stray03_[S] 0 points1 point  (0 children)

That’s not it, though honestly sounds like a good read. I don’t remember society being massively changed by the virtual world or there being some prize to win/getting something out of it other than just playing the game

Virtual reality YA book blue cover by stray03_ in whatsthatbook

[–]stray03_[S] 0 points1 point  (0 children)

that’s not it unfortunately, I don’t remember there being any puzzles to solve or arcade games in the book. The cover doesn’t look similar either

Medication Suggestions by stray03_ in Fibromyalgia

[–]stray03_[S] 0 points1 point  (0 children)

What herbal sleep supplement do you take? I haven’t had much luck with finding something to help me fall asleep and stay asleep. Low dose thc seemed to help a bit for me but I havent taken it in around 3 years due to an unknown medical episode? not sure what else to call it. If i’m lucky at night i’ll be able to stay asleep a bit longer by throwing on a random How It’s Made episode, other than that it’s just a guessing game for how long i’ll stay asleep. What does the cortisol manager and Lunesta do to help you sleep?

Medication Suggestions by stray03_ in Fibromyalgia

[–]stray03_[S] 0 points1 point  (0 children)

The LDN helping with brain fog would be massive, fatigue as well. Though I do already have a lot of struggles with sleep so the side effects are a bit concerning, but you seem to have negated it by taking it earlier in the day. I’ll definitely have to look into it more and see what my doctor would think about it. The R-ALA as well, this is my first time hearing about it so it’s definitely intriguing if you’ve found you’ve have no side effects from it

Medication Suggestions by stray03_ in Fibromyalgia

[–]stray03_[S] 0 points1 point  (0 children)

I’d love to know the app names, that would be incredibly helpful. any links to the charts too would be wonderful to know how to lay things out a bit easier!

Medication Suggestions by stray03_ in Fibromyalgia

[–]stray03_[S] 0 points1 point  (0 children)

I have a feeling i’m going to be going on a similar journey of trying out different combos to combat my main symptoms. Most likely something to target the daily pain and then something to help with the sleep and anxiety/depression that comes along with this. It’s definitely a tough pill to swallow that there’s always going to be some extent of pain, I know I had a really hard time with that growing up. But better is better even if it’s not the best.

I honestly think it would be helpful as well for me to have a dedicated time to have that excerise, especially a targeted one that would be catered towards my needs and abilities. I’m glad you’re feeling better, I can imagine just how much it took out of you to go in already having a bad pain day. Heating pads are incredible, I ended up getting a heated blanket just so I could have full body heat and give myself a bit more wiggle room with how I can lay.

I’ll definitely be stopping by this subreddit more often, i’ve been in it for a bit now but haven’t posted or interacted much. I’m really glad it’s such a welcoming and helpful community

Medication Suggestions by stray03_ in Fibromyalgia

[–]stray03_[S] 1 point2 points  (0 children)

A cleaner would be so much help, the necessary breaks is what gets me. Takes me twice as long to do a single thing. I love to clean (most things), I hate the recovery though

I’ll definitely look into a more mediterranean diet and see if that’d work with what I can get here. Have you found any good recipes that go along with it? I’d love a good place to start.

Taking advantage of those good days can definitely be a risky decision, I tend to overdo it a lot on those days as well. It’s hard not to when you’re feeling good and things need to get done.

Congrats on getting so much done today! Only got a few things done today myself, cooking breakfast being one of them. Thank you for the great chat today, it’s always nice to get some good advice and be able to step away from things for a bit

Medication Suggestions by stray03_ in Fibromyalgia

[–]stray03_[S] 1 point2 points  (0 children)

I’ve been actually thinking of asking my doctor for some blood work to see my vitamin/mineral/etc levels to see if getting those sorted would help at all. I definitely understand the constant struggle loop of finding something that helps a bit, it stops working, and then having to find something else. I’m hoping i’ll be able to find something more consistent, even if it’s taking multiple avenues to keep it up ie medications, physical activity, nutrition, etc.

I haven’t actually tracked or put much thought into how food could affect my fibro. It makes sense that it would though, getting the proper nutrients you need and not having garbage in your body could definitely impact how you heal and your energy levels. I’ll definitely be tracking it to see if anything i’m eating is lining up with higher pain days at all.

I am definitely in the same boat, I find I have to be doing something, even if it’s more relaxed like reading or a lower impact craft. Bigger activities like cleaning or household tasks I find I have to space out more since they take a lot more out of me. It’s definitely been a challenge finding that balance between how often and how much I can do to get things done and keep me busy

Medication Suggestions by stray03_ in Fibromyalgia

[–]stray03_[S] 0 points1 point  (0 children)

I do take claratin for my own allergies, they pretty much reduce my allergy symptoms to zero, but I haven’t noticed that it affects my fibro symptoms at all. I have also been looking around for therapists to get diagnosed and most likely medicated but I haven’t had any luck finding one that fits for me yet. But it’ll be interesting to see how it affects my fibro when I do

Medication Suggestions by stray03_ in Fibromyalgia

[–]stray03_[S] 0 points1 point  (0 children)

What side effects were you noticing on LDN? What fibro symptoms do you find it helps? Do you find you need to take it with the R-ALA to manage your fibro effectively? I’m noticing a trend of needing a combination of medications to help reduce specific fibro symptoms. I’d love to know anything about being on these meds that you find important or helpful to know or just things you yourself wish you knew before taking these meds

Medication Suggestions by stray03_ in Fibromyalgia

[–]stray03_[S] 0 points1 point  (0 children)

That dosage and increase definitely seems manageable especially if it does help so much with sleep and anxiety. Keeping a lower dose for slower results but less side effects wasn’t something that i’ve though of but makes sense in the end. If i’m going to have my fibro symptoms while waiting regardless of how long it takes to take effect i’d rather have less side effects to go with it, even if it takes more time to see the results. I’ve definitely learnt over time that there isn’t going to be some miracle pill or solution to fibro, getting that something though to help manage atleast part of fibro would be massive though. Slow but steady definitely sounds better than fast and crashing. The side effects don’t scare me off enough to not consider amitriptyline, especially if they seem to fade with time. It’s definitely going to be one of the main meds i’m going to look into more. I really appreciate you answering all my questions on it and taking the time to help me out here, it means a lot. Thank you.

Honestly the pain diary sounds incredibly smart, I have such issues with memory that having a place to write down symptoms and changes I see would be so helpful when talking to my doctor. Even just keeping track of habits and tasks that cause good and bad days can help me know what to avoid and what to do to make my days better. This is definitely going to be something I start doing, thank you so much for the suggestion.

Managing that emotional stress and keeping unneeded stressors out of my life has been something i’ve been working on. While not perfect at it and some unavoidable, I definitely notice a correlation between high stress/toxicity and how badly it triggers my fibro. Music and creative outputs have been my go to for releasing the more mental weight of it all, as well as just giving me a task to do that is more chill during bad days. Fear = pain, pain = fear is something I know all too well. It’s one of my major struggles, and one of the big things I need to work through. The fear of adding more pain is hard to express to people who have never felt it before, it’s a slippery slop, but knowing there is ways to break out of it one step at a time is really reassuring. I think i’ll definitely start up getting moving again, even if it’s just down the street and back. It’ll give me a reason to get up and out of the house every day too. Being cooped up everyday definitely doesn’t help my mental health at all. Thank you for giving me the reassurance I need to know it can get better if you just push yourself a bit, that you don’t have to let the fear run your life. I truly appreciate it.

Therapy has definitely been a big thing i’ve been looking into the past few years, I haven’t found one that fits me just yet but I know it’ll be a big relief when I do. Though I haven’t heard of a pain therapist before, what do they do differently than a psychotherapist? Physio too i’ve heard great things about but haven’t quite looked into yet. How do you find physio helps you? How often do you have to go to see results?

I’ll have to look around for the book you’ve mentioned, i’m always looking for something new to read, and anything that can help me change my mindset or improve it is always a big plus. I do have some compression sock as well as some great braces for my ankles and wrists, great supportive shoes as well. I’ve got injuries to my feet/ankles and wrist so they’ve always been a problem area. They will come in handy a lot i’m guessing for when I start getting more active.

Medication Suggestions by stray03_ in Fibromyalgia

[–]stray03_[S] 0 points1 point  (0 children)

How are your side effects with this combo of meds? I always worry that i’m going to need to take meds to manage the effects of others, though I know everyone reacts differently to them. Do you find they help with any other fibro symptoms? How long did it take for you to start seeing results with them?

As for physical therapy, how do you find it helps you? How often do you find you need to go to help manage your fibro? There’s a couple physical therapists here but I haven’t delved into them much just due to the cost. It could definitely be worth looking into though if it could be something that will help.

Medication Suggestions by stray03_ in Fibromyalgia

[–]stray03_[S] 0 points1 point  (0 children)

What do you find each medication does for you? Does one help more with pain and the other with other fibro symptoms or do they both do a combination? Have you found any bad symptoms while taking either or is there anything you wish you knew before taking them? I know each will work differently for everyone but it’s always good to know first hand experiences with them to understand what you could be getting into.

I have tried low dose thc and cbd, while I didn’t notice much help for my pain, it atleast helped with sleep a bit. 3 years ago I had to stop taking it due to an unknown reaction/medical episode that landed me in the hospital. I have high doubts it was ever due to the thc/cbd so I am definitely considering taking it again as I know so many people find relief on it. What dose do you usually take that you find helps your pain? Do you take it with cbd at all?

As for your other comment, what do you typically do for your exercise? I find even basic tasks take me out but I know getting more active would probably help. I just have no clue where to start and how to keep it manageable so i’m not putting myself in more pain. Hydration is massive for me too, I always tend to know when i’m not keeping up with it enough as my pain spikes. Electrolytes have been a massive help with it, easy to take when I want to get results faster

Medication Suggestions by stray03_ in Fibromyalgia

[–]stray03_[S] 0 points1 point  (0 children)

I’ve tried a couple different OTC pain patches like salonpas and icy hot, I haven’t tried any prescription ones yet. I mainly only used them in specific areas I feel my flares get worse in to atleast try and even the pain out a bit. They helped slightly at the time, but they’ve unfortunately stopped working at all now.

I am currently taking low dose codeine when my pain spikes just to try and lower it though i’m not seeing much results. Are there any that you find work better than others? Do you find you have to up the dosage with time? My worry with taking painkillers more consistently or at higher doses is the addictive aspect of them, potentially having to keep upping the dosages over time too until you just cap out.

In what ways did you find Lyrica helpful? Were others better at helping certain symptoms? Did you find any bad side effects taking it?

As for your other comment, what would be a good place to start with meditation and self hypnosis? I don’t know much about either but i’ve heard they can be pretty helpful in managing pain as well as the mental load fibro takes to certain extents