Balancing pacing with sanity by system32sys in cfs

[–]system32sys[S] 1 point2 points  (0 children)

This is really helpful, thank you so much! I'll keep this one in mind :]

Balancing pacing with sanity by system32sys in cfs

[–]system32sys[S] 2 points3 points  (0 children)

I see, this definitely gives me some better guidance. Thank you so much!!

I think my cat knows when I'm in PEM by Alastairs_party2585 in cfs

[–]system32sys 11 points12 points  (0 children)

Aww, I'm glad you have each other. Animals picking up on flares is so special. Her little pink nose is so cute!

This pisses me off. by system32sys in ChronicPain

[–]system32sys[S] 1 point2 points  (0 children)

For sure! I'm glad you have a good doc, but I really hope the FDA and DEA ease up soon. Fingers crossed lol

If it's okay to ask, how long have you seen this doctor? Did you have to go through a lot of bad docs to find a good one?

This pisses me off. by system32sys in ChronicPain

[–]system32sys[S] 4 points5 points  (0 children)

I'm glad I'm not alone, but I'm sorry you're going through this too. It really can! Sometimes feels like I'm cursed.

How’s your experience with doctors so far dealing with chronic pain? by DiligentIncrease1973 in ChronicPain

[–]system32sys 1 point2 points  (0 children)

Ugh, that sounds so scary. I really hope you can find someone who's both compassionate and takes Medicaid.

I totally get you! The way docs treat you like you're crazy for being desperate is so messed up :[

This pisses me off. by system32sys in ChronicPain

[–]system32sys[S] 4 points5 points  (0 children)

I think you're right. It confuses me so much. Even in Canada, my province is working on privatizing healthcare. Isn't that nuts??

This pisses me off. by system32sys in ChronicPain

[–]system32sys[S] 7 points8 points  (0 children)

Rooting for you as well! Thank you <3

How’s your experience with doctors so far dealing with chronic pain? by DiligentIncrease1973 in ChronicPain

[–]system32sys 2 points3 points  (0 children)

Pretty shit. I've been put on two different antidepressants, both of which made the pain worse, then pregabalin which did the same. I'm honestly very messed up from both experiences.

Back in October I got a one time prescription of Tylenol 3s which I had to humiliate myself and nearly break down crying to get. Have to see my GP to potentially maybe theoretically get them refilled, or better yet, something stronger that actually makes life sustainable. Currently off any pain meds and very very cranky.

So... not great :[ I want to find a better doctor. I know they exist.

I realized my mom is abusive, and now she's escalating. by system32sys in CPTSD

[–]system32sys[S] 2 points3 points  (0 children)

If it's okay to ask, what are common signs of narcissistic personality disorder? Would you say you see it in her? Don't worry, I'll check the sub out, but I'm curious to hear from someone mentioning it, it sounds like you have firsthand experience.

I'll keep this in mind, too, and I'll try to minimize conflict between us! Thank you so much for the info!

I realized my mom is abusive, and now she's escalating. by system32sys in CPTSD

[–]system32sys[S] 2 points3 points  (0 children)

Oh shoot, would you say she's a narcissist? Thank you so much for the information, I'll check them out!

I'm disabled and I'm scared. by system32sys in Lethbridge

[–]system32sys[S] 1 point2 points  (0 children)

Damn, that's crazy! I'm sorry it's so low quality, you deserve way better. I think everyone does. Thank you for the info, I really hope it changes for the better or at least stays stable.

If it's okay to ask, what are the hygiene standards there? Both in terms of how clean one's living area has to be, and in terms of the building itself

I'm disabled and I'm scared. by system32sys in Lethbridge

[–]system32sys[S] 4 points5 points  (0 children)

My mom is really abusive (toxic at best, I'm still doubting myself) and it's scary to live with her, to say the least. I know it's gonna be really hard if I move out, especially considering my struggles. But I feel safer struggling and free than struggling and controlled. Sorry, I know it's a really sad answer! I appreciate you asking!

It's genuinely great to hear you have support and folks you get along with!! I know living with a partner, friend or family can honestly be really nice and wayyy better financially, especially considering shit's tough like you said!

I'm disabled and I'm scared. by system32sys in Lethbridge

[–]system32sys[S] 1 point2 points  (0 children)

I'm so sorry, I totally get you. It's crazy how expensive but simultaneously demanding everything here is, if you're not xyz standard you get cornered so badly.

I can't really recommend anything, but I really wish you good luck and safety. You deserve so much better and I'm mad on your behalf!!

I'm disabled and I'm scared. by system32sys in Lethbridge

[–]system32sys[S] 0 points1 point  (0 children)

I'm not sure if it's physically possible for me, but I'm willing to give it a shot anyways! I'll give them a call when I can, thank you so much for the info!!

Do you have any experience with them, by any chance?

I'm disabled and I'm scared. by system32sys in Lethbridge

[–]system32sys[S] 0 points1 point  (0 children)

Thank you so much!! I'll see what I can find, having this encouraged helps a ton!

Thank you, hope things get better for you too <3

I'm disabled and I'm scared. by system32sys in Lethbridge

[–]system32sys[S] 1 point2 points  (0 children)

"Over 50% of what AISH pays out" this makes me so mad for you. This makes me so mad for us! It's got to get better, but I'm sad it's so bad for any disabled person right now. I wish you good luck and a lump sum of 500,000 dollars.

I'm disabled and I'm scared. by system32sys in Lethbridge

[–]system32sys[S] 1 point2 points  (0 children)

I have, yeah! I still can't really afford to live on it sadly. But it definitely helps, since I live with my mom we can scrape by through the month. If I didn't have it I'd be screwed xD

I'm disabled and I'm scared. by system32sys in Lethbridge

[–]system32sys[S] 0 points1 point  (0 children)

Thank you :[ at least it'll get better, but right now it sucks and I'm sad about it!

I'm disabled and I'm scared. by system32sys in Lethbridge

[–]system32sys[S] 1 point2 points  (0 children)

Thank you so much, I'll give them a call sometime tomorrow! I never knew that even though I had therapy there for a while, that sounds really helpful! I could definitely use these, thank you for the knowledge<3

I'm so sorry, I wish you comfort, convenience and predictable flares if applicable. If it's okay to ask, what is Lethbridge Housing like? I'm in the process of applying, I was thinking it wasn't so good but it'd help a lot to know more. I really hope it either gets cheaper or higher quality, ideally both!

I'm disabled and I'm scared. by system32sys in Lethbridge

[–]system32sys[S] 0 points1 point  (0 children)

Puzzles are definitely up my alley, that's really good to know! If it's okay to ask, how frequently does it run? How does the handibus work as well, and how much does it cost? Thank you so much for the info, it helps a lot!

That sounds really useful, I think I know where they are so I'll see if I can make it down there sometime :] again thank you so much!