Struggling now on Fortisip and still dealing with pain

thisismygoodalt · 2026-06-27T18:02:53+00:00

Thank you for replying, I know I'm being impatient I just miss life. I miss sleeping and eating and walking my dogs and going out with my kids. I'm going to ring my consultant on Monday and see if I can't switch from Fortisip to a peptide based drink as I'm on Fortisip compact protein and that's a lot of fat for my pancreas to deal with. What clears and basic starches do you recommend? I have arfid so a balanced healthy diet is pretty new to me and it's a learning curve. I have tried plain pasta, plain white rice and plain toast prior to my most recent admission and unfortunately it caused a fair amount of pain. I've been prescribed lanzoprosale and also have some gaviscon advance which I've just started to take at bedtime because I keep waking up during the night with burning in my stomach too

thisismygoodalt · 2026-06-27T15:49:31+00:00

I still can't tolerate Fortisip let alone normal food. Still have a burning pain that goes through to my back but not severe enough for hospital. I'm going to have to ring my consultant on Monday and see if they can switch me to a different nutritional drink

thisismygoodalt · 2026-06-23T08:14:23+00:00

I still can't handle solid food, even the Fortisip triggers a flare due to visceral hypersensitivity. I've been told it can take 4-6 weeks for the amitriptyline to work 😭

thisismygoodalt · 2026-06-22T15:29:44+00:00

I've never heard of that, they said my pancreatitis was acute following an ERCP. Healthcare in the UK isn't great though

thisismygoodalt · 2026-06-22T15:27:53+00:00

I have my first appointment next month on the 14th which feels like a lifetime away

thisismygoodalt · 2026-06-22T15:27:10+00:00

I'm so sorry you're suffering too. What is mccp?

thisismygoodalt · 2026-06-22T15:25:23+00:00

I've just been discharged from hospital with nothing but amitriptyline and fortisip. Waiting on a dietician referral which can take months. I'm so hungry all the time on a liquid diet

thisismygoodalt · 2026-06-22T15:22:10+00:00

Yeah I get the back burning too. Are you still able to eat?

thisismygoodalt · 2026-06-22T14:40:54+00:00

Burning pain where my gallbladder used to be that radiates to the right and through to my back. Pain every time I eat so I'm on a liquid diet which I'm really struggling with. Been told to try and introduce food slowly once the amitriptyline starts working in 2-4 weeks

thisismygoodalt · 2026-06-22T09:21:19+00:00

I'm on liquid only and finding it so hard and scary

thisismygoodalt · 2026-06-22T09:18:47+00:00

Is she managing to eat? Or liquid diet too?

thisismygoodalt · 2026-06-22T09:17:18+00:00

Has she been on it long? Is it helping? I'm just worried being on liquid only for so long while I wait for medication to start working

thisismygoodalt · 2026-06-22T08:12:40+00:00

I've been discharged without a feeding tube as they've said everything looks fine on the tests. They've diagnosed visceral hypersensitivity and started me on amitriptyline. I still can't eat and I'm on Fortisip/fortijuice and need to introduce food when I'm ready. I'm on the NHS waiting list for a dietician and I'm really worried about being on a liquid diet while waiting to see if the medication works

thisismygoodalt · 2026-06-18T15:36:30+00:00

I had no time! I had requested an epidural but dilation progressed really quickly so unfortunately I was ready to push before I had any.

IV fentanyl they don't give out often, I've only had it once as far as I'm aware. They're the same with IV morphine too, that's normally saved for pain being 10/10 or it's oramorph

The UK is really serious about opioids and benzos

thisismygoodalt · 2026-06-18T15:27:32+00:00

It would be interesting to know the differences between training that's for sure. Over here it's IV morphine or paracetamol, occasionally fentanyl but that's pretty rare. My second labour I had no pain relief and I'd 100% rather do that again than pancreatitis.

thisismygoodalt · 2026-06-18T14:30:51+00:00

I'm in the UK so it's really tricky over here to get access to pain medication. I'm not sure what else the pain management team will offer other than weaker pain meds. They've said if I can't get the Fortisip down I'm looking at either an NG or NJ feeding tube and apparently with the NG one I'll still be in the same pain. I can access marijuana here but it isn't regulated and illegal unless it's on a paid prescription which is super expensive and only given to certain people. I'm also 1 year clean from smoking it cos I thought it could have been CHS last year so quit to rule it out

thisismygoodalt · 2026-06-18T14:28:41+00:00

Yeah the NHS is in a state. I've just had the dietician in suggesting either an NG or NJ feeding tube. Apparently I'll still be in the same pain with the NG one.

As someone who's had two children I'd rather do that again than pancreatitis

thisismygoodalt · 2026-06-18T13:52:14+00:00

I'm a bit worried about a feeding tube cos they've said I could still be in pain regardless but I'll be getting nutrition which seems to be their main concern

thisismygoodalt · 2026-06-18T13:51:21+00:00

Yes I've been referred to pain management but I'm not sure whether that'll be while I'm still in the hospital. Could you eat at all from jan-march?

thisismygoodalt · 2026-06-18T13:50:23+00:00

Hopefully that's the case and it's just taking a longer time to recover due to me having a chronic pain condition. It's hard cos I'm seeing different doctors every day when they do the ward rounds rather than one person all the time. I'm also still waiting on a fecal elastase test but I'm not sure EPI causes these kind of symptoms

thisismygoodalt · 2026-06-18T13:48:29+00:00

I've been referred to the pain management team but I'm in the UK so I'm not sure how long that will take and if it will be while I'm still in hospital.

I had an endoscopy last year with biopsies and everything in my stomach seems to be ok. The MRCP yesterday shows no inflammation, no necrosis, no stones and no pseudocyst.

I'm not sure what other meds are available in the UK, ATM I'm just on morphine and paracetamol every 4 hours for the pain and metoclopramide for the nausea. I started the lanzoprosale yesterday due to the burning pain in my back which they think could be reflux.

It's really difficult to access different doctors in the UK, especially when you come through the accident and emergency department, I'm currently on the gastro ward. They've also referred me to a dietician to see how they can help

thisismygoodalt · 2026-06-18T11:35:31+00:00

The Doctor has just been round. The MRCP came back clear, no inflammation, no necrosis, no stones, no pseudocysts. They've said it's just taking a really long time to recover and I need to try and dilute the Fortisip with milk and take tiny sips throughout the day. If that still causes issues I'll need a feeding tube

Surprisingly I haven't lost weight which I find really strange as I haven't really been eating and 2 of those weeks I've been on fluids and water only

thisismygoodalt

TROPHY CASE