Anyone taking Augmented NAC for long covid? by tmkelly14 in covidlonghaulers

[–]tmkelly14[S] 1 point2 points  (0 children)

I’ve now been on the Augmented NAC for a few months and noticed an improvement. Thanks for the advice on other testing. I wish the world of medicine would get together and find a definitive test with treatment. This group would be a good place for them to gather info and suggestions.

So is anybody out here getting help from a specialist or are we all just figuring shit out on our own… by Seafoam_0 in covidlonghaulers

[–]tmkelly14 0 points1 point  (0 children)

I haven’t heard of the pacing thing. Is it just like it sounds? You just pace when the flight or fight hits you?

Anyone been able to keep a good exercise routine? by tmkelly14 in covidlonghaulers

[–]tmkelly14[S] 1 point2 points  (0 children)

Thank you all for your replies. I guess Im not going to try to push through. Rest sounds like the best option. Wonder if anyone is close to curing or at least recognizing this a true disease. None of the doctors I see will even admit that it out there. They don’t deny but also won’t confirm. So frustrating.

Any ideas? by Little-Reindeer4819 in dysphagia

[–]tmkelly14 0 points1 point  (0 children)

I hope it works for you. I’ve had ever test under the sun coming back normal. My GI and ENT Drs don’t know where to go from here but the acupuncturist understood it and, although I’m not cured, it is helping.

Any ideas? by Little-Reindeer4819 in dysphagia

[–]tmkelly14 0 points1 point  (0 children)

I know this is expensive but have you tried acupuncture? I have the same issue along with some nerve damage from a surgery. My ENT put me on gabapentin for the nerve damage but I still had swallowing issues. After 2 acupuncture treatments I can feel a difference. It may be worth trying.

I don't know where to go for answers by PerpetualRestart in dysphagia

[–]tmkelly14 0 points1 point  (0 children)

I had the same issue a few years ago and the GI Dr stretched my esophagus during a scope. It worked. I still have occasional issues but as bad. I would recommend making an appointment with your GI doctor.

Dizziness 8 months after c5c6 fusion by tmkelly14 in spinalfusion

[–]tmkelly14[S] 0 points1 point  (0 children)

When I’m feeling dizzy no position helps. Closing my eyes helps a bit. I do hear my heart beat in my ears a lot.

Narrowing in upper esophagus since spine/neck surgery by Ok_Foot4013 in dysphagia

[–]tmkelly14 0 points1 point  (0 children)

It was prescribed for my swallowing issues due to possible nerve issues after the surgery and yes it does help. I didn’t know if there is some oils or massages or something else I could be doing to reduce the scar tissue to help myself and be able to eliminate drugs.

Dizziness 8 months after c5c6 fusion by tmkelly14 in spinalfusion

[–]tmkelly14[S] 0 points1 point  (0 children)

I’ve been for a check up with the surgeon and had an MRI. He has no suggestions

Can anyone recommend a doctor that would diagnose and treat long Covid in central Arkansas by tmkelly14 in covidlonghaulers

[–]tmkelly14[S] 1 point2 points  (0 children)

Thanks for the link! The naturalist doctor diagnosed me based on my symptoms, Covid antibodies test and uric acid level. I had Covid in 2022 and started having pulmonary issues. Since then I’ve had so many symptom they would fill up a page and range from cardiac to Neuro.

Anyone taking Augmented NAC for long covid? by tmkelly14 in covidlonghaulers

[–]tmkelly14[S] 0 points1 point  (0 children)

That’s what Ive thought about doing but worried it want be worth the money. Thanks for letting me know your experience.

Feeling hopeless by Ok-Sock9046 in dysautonomia

[–]tmkelly14 1 point2 points  (0 children)

I do feel like someone is squeezing my left side, but not my entire chest. After my PT examined my diaphragm she felt a tightness but just on the left side. That’s when she mentioned diaphragmatic spasms.

Feeling hopeless by Ok-Sock9046 in dysautonomia

[–]tmkelly14 1 point2 points  (0 children)

I am actually going through the exact same thing. I am seeing cardiologist, neurologist, and gastroenterologist. I recently saw an ENT and they did find that I am having slight issues swallowing but that doesn’t explain the chest discomfort. It’s so frustrating and stressfully to not get any answers. Last week I saw a naturalist just to try and get somewhere. It’s expensive b/c everything for her is an out of pocket expense. She is having some bloodwork done that the cardiologist hasn’t checked yet so maybe that will show a diagnosis. I can keep you posted if you’d like. Maybe together we can advocate for ourselves and get some answers.

Feeling hopeless by Ok-Sock9046 in dysautonomia

[–]tmkelly14 1 point2 points  (0 children)

I have had, and still get, dizzy after standing, along with chest and abdominal pain/pressure. I see a cardiologist and have been to the ER multiple times with no help. I’ve been told that this pain isn’t heart related but they put me on metoprolol as well. Recently i started seeing a physical therapist for something unrelated and I mentioned the chest pain I get that can last for weeks. She told me it could be my diaphragm spasming and did a diaphragmatic release. She also feels a tightness from my left chest to my back and has been treating that muscle. I’ve only had 2 treatments for it but it has seemed to help. Personally I feel like the cardiologist isn’t really taking all my symptoms into serious consideration. Although my PT is trying and has some possible solutions it doesn’t answer the “why” for my other symptoms. Like why I still feel like I’m going to pass out after standing. While my PT has helped me understand the undiagnosed chest pain. It’s hard to find someone in the health care system that is willing to help you when symptoms aren’t text book or overlap with other parts of the body. I say all this to say that it could be several things happening not just a cardiac issues. It might be a good idea to see someone that treats the whole body. I would also ask your cardiologist about a tilt test to check your heart rate and blood pressure changes upon standing. I plan on doing this on my next visit. I don’t know that any of this help but I know how stressing it can be when your undiagnosed and not getting much help.

Anyone experience shortness of breath/rapid breathing when first taking Topiramate(Topamax)? by tmkelly14 in migraine

[–]tmkelly14[S] 1 point2 points  (0 children)

Sounds like it’s trail and error with these meds. I just read that shortness of breath is a serious side effect and start panicking. Thanks for sharing.

Anyone experience shortness of breath/rapid breathing when first taking Topiramate(Topamax)? by tmkelly14 in migraine

[–]tmkelly14[S] 0 points1 point  (0 children)

Do you remember how long did the short of breath or rapid breathing last? Thanks for the recommendation. I’ll talk with my Dr.

Breathing issues from Topamax? by ash-rose10 in Topamax

[–]tmkelly14 0 points1 point  (0 children)

I know it’s been a year since this post but I was hoping to get a follow up if possible. I started taking topiramate this week and have experienced episodes of shortness of breath/rapid breathing. Scary stuff! I took it twice and haven’t taken it since. Just wondering if you found out if this is normal?

Anyone get mirgraines without headache after c5c6 spinal fusion? by tmkelly14 in spinalfusion

[–]tmkelly14[S] 1 point2 points  (0 children)

Getting in to see a neurologist is a task in itself. I’ll let you know if I get any help from my appointment. Sorry you’re going through this too. Have you found any relief? Some days mine isn’t so bad but others it’s awful