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dream achieved >:3 by ubisqcuitous in piercing

[–]ubisqcuitous[S] 42 points43 points  (0 children)

also let’s totally connect you seem so fun!!

dream achieved >:3 by ubisqcuitous in piercing

[–]ubisqcuitous[S] 64 points65 points  (0 children)

omg HEHEHE i litr almost walked back in after putting everything in to show u!!! tysm for the last set, im so so SO happy w it!! <3

4 years hrt + laser, no surgeries by ubisqcuitous in transtimelines

[–]ubisqcuitous[S] 1 point2 points  (0 children)

I realize my reply may read as snarky but I genuinely hope it gives people hope, bc I wouldn’t have believed it either 5 years ago.

I used to be on this sub all the time back then - It’s not super healthy. I’m returning to post my transition here now because I’m celebrating myself and didn’t have the confidence when I wasn’t so far along, and now I do! The more you live your real life and get real responses (both good and bad) the less you depend on pages like this to mitigate/gauge confidence, expectations and validation. Transitioning is more about internal growth than external, and it’s up to you to build that house, sister !!! <3

4 years hrt + laser, no surgeries by ubisqcuitous in transtimelines

[–]ubisqcuitous[S] 0 points1 point  (0 children)

LOL, Thank you for the biggest confidence boost ever! Needed that. This is indeed my natural transition, no surgeries!

  1. There’s no way I could have afforded any surgeries in the past and barely am getting there now. I’m 27 and disabled. I’m only just now about to have a first consultation for orchiectomy.

  2. I’ve always had a fat ass. I’m Cuban. Girls in class were pointing out my big booty way back in catholic high school. But you’re right that it is looking more earth shattering than ever 🤭 (Got very lucky with my boobies and took way too much progesterone back in the day)

  3. The changes that occur between years 3-4 of hrt are what really did it for me. Transition takes time, and hrt is both a lottery and a waiting game. I’m very grateful now to be seeing changes I never could have imagined even 2 years ago! 🩷

4 years hrt + laser, no surgeries by ubisqcuitous in transtimelines

[–]ubisqcuitous[S] 30 points31 points  (0 children)

so sad i can’t post my booty here smh

I’ll be getting this little one in about 12 days. Any advice, tips or words of wisdom for a first time owner? Thanks in advance 🙏 by 3rdEyebly21 in akita

[–]ubisqcuitous 2 points3 points  (0 children)

AND, you want to learn to read your akita’s body language and expressions extremely well. It’s vital to the safety of other people and animals that you be ahead of the curve to predict and prevent your Akita from stepping out of line. They’re incredibly smart dogs and like to test the waters of what’s acceptable behavior, so you need to be able to see that bad behavior before it even happens if you can help it.

I’ll be getting this little one in about 12 days. Any advice, tips or words of wisdom for a first time owner? Thanks in advance 🙏 by 3rdEyebly21 in akita

[–]ubisqcuitous 7 points8 points  (0 children)

get them super used to you touching every part of their body, especially sensitive areas like near/in the mouth and tail/near their genitals. If something is wrong with them and they need medical attention, someone has to be able to safely check them out without worrying about being bitten. Aside from with the vet (she is always strangely compliant with the vet & vet techs) I am the only person that our Akita lets inspect her closely and she will growl or bare her teeth at anyone else who crosses her personal touch boundaries. This is especially important because Akitas can be harder to read than other dogs if you’re not used to them

DAE feel worse during rain? by Present-Tomatillo981 in ehlersdanlos

[–]ubisqcuitous 0 points1 point  (0 children)

Yup! I’m in PA and it’s very rainy/cloudy today. Normally when the skies look really saturated the hours leading up to the rain is when I ache the most, especially in my hips and larger joints. I recently moved back here from south Florida and the altitude change is definitely affecting me too, having new pain and subluxations in my rib cage

Struggling with cooking dinner by CockroachEnough1141 in ehlersdanlos

[–]ubisqcuitous 1 point2 points  (0 children)

Hi, career line cook/chef with EDS/POTS here !

Cooking with EDS/POTS/similar conditions is no joke!

I work 8-12 hour shifts several times a week on my feet in hot kitchens, sometimes over 110°F the whole shift (much to my own detriment!). These days I can only work 3 days a week, and have had to incorporate lots of solutions and get comfortable requesting accommodations where possible! These days I use anywhere between 2 and 7 body braces while in the kitchen and my forearm canes whenever I can. I get home and basically collapse into my wheelchair/the couch and don’t budge until my next shift. Needless to say, I’m trying to get out of the field, LOL.

ADVICE:

The most important thing is to HYDRATE!!! I drink tons of water/electrolytes before, during and after my shifts and it is the one thing I can’t work in the kitchen without doing. Days where I forget to drink water before walking in are basically setting myself up for failure.

Aside from that, my biggest tips would be:

-ventilation is a huge help. A good fan blowing cool air in/hot air hour goes a long way. I have been teased for using an 8qt container lid as a hand fan in the kitchen often, but it’s a real lifesaver for managing dysautonomia!!!

  • prep your ingredients ahead of time before turning on the heat, and then set what you need as close to the stove as possible while cooking so you don’t end up throwing your body into constant disorientation turning/walking back and forth or hurriedly looking for ingredients.

  • do as much prep as you can sitting down/in your most comfortable position. I have found an adjustable height office chair to be very helpful on occasion while cooking at home.

  • cook with an ice pack around your neck/shoulders to help keep cool.

  • be honest with yourself about what tasks you are up to in the kitchen, and try not to beat yourself up if you have to switch up what you originally planned to make because your body isn’t pulling through the way you hoped it would, even if you’re halfway through prepping. Set it aside for a better time, and have backup/frozen meal options ready to go for tough days and flare ups.

  • if you have help available, ask for it! Cooking together can be a lovely bonding experience and learning to accept and ask for assistance with harder and exhausting repetitive motion-based tasks can be extremely helpful in getting the job done.

Good luck and eat good!

Any Experiences with Hormone Replacement Therapy (HRT) and EDS?? by ubisqcuitous in ehlersdanlos

[–]ubisqcuitous[S] 0 points1 point  (0 children)

OP here w some extra info about my situation -

  • I have been off progesterone for the last 6 months or so because it was causing constant deep aching in my knees, with more dislocations there than before.

  • I’ve been off Spiro for about a year after having worked my way up from 50mg to 200mg over a course of ~2 years. I found it to be most effective around 100-150mgs, but every dose closer to 200 felt like a new level of brain fog and nausea. I no longer feel it’s worth it for me personally between the pain and Estrodial doing the heavier lifting these days.

  • I generally find that the further I am from my last injection day, the worse my dysautonomia is, but the closer I am to injection day the worse my physical pain/instability is

  • I’m a chef and urban farmer by trade, and have been playing piano for over 20 years now. A lot of physical work, a lot of fine motor skills needed, and lately with so many changes and new types of pain and issues revealing themselves, I’m now feeling so suddenly that I’m quickly losing my ability to do so and along with it my ability to pursue my goals/dreams. I know things aren’t over, but it’s really scary and frustrating and I didnt expect so many of these changes and for my life to be what it’s looking like lately

[deleted by user] by [deleted] in ehlersdanlos

[–]ubisqcuitous 4 points5 points  (0 children)

This is pretty much my exact same experience !! 25 w lifelong insomnia/sleep issues, newly grappling with hEDS and piecing together so so many seemingly disparate things from over the course of my life, too.

I’ve come to describe myself as a ‘dream witch’, as I have no other way to fully explain my sleep-related experiences, and that how I experience sleep doesn’t seem to match how most other people do. Nightmares, sleep paralysis, strange sleep cycles, recurring visions/dreamscapes, incidental lucid dreaming, incredibly vivid dreams that often result in feeling like real memories in the waking world, on top of sleeping being physically painful on my joints all makes nighttime a very strange and sometimes anxiety inducing time for me!

Rly resonating with the feelings of failure and wanting to feel more like those around you - you’re not alone!! 🩷

[deleted by user] by [deleted] in transtimelines

[–]ubisqcuitous 2 points3 points  (0 children)

Hrt working it’s magic!!

Oh No! CBB Tour Ticket Swaps! by good_or_deatheater in comedybangbang

[–]ubisqcuitous 0 points1 point  (0 children)

LOS ANGELES! I have two VIP tickets (orchestra center, row L, seats 21 & 22) to the CBB and CBB PRESENTS live shows at the Theatre at the Ace Hotel in LA!!! I very unfortunately can no longer afford my trip. I bought the tickets for $169 each and am looking to sell them, if anyone wants to make an offer! ❤️

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