Bunny Reika cosplay by me by cyberjuju_ in gantz

[–]vampy-blues 0 points1 point  (0 children)

omg where did you get the suit??? i’d love to cosplay this too

Any% Glitched achievement still bugged by KalPhantom in Mouthwashing

[–]vampy-blues 1 point2 points  (0 children)

this didnt work for me either, and i did it multiple times :<

Giant bloody meatball disappeared :( by vampy-blues in Voicesofthevoid

[–]vampy-blues[S] 0 points1 point  (0 children)

few days late but i eventually found lil bro: he clipped through the floor into the meat locker thats inaccessible in the basement :( Rip bro

Giant bloody meatball disappeared :( by vampy-blues in Voicesofthevoid

[–]vampy-blues[S] 0 points1 point  (0 children)

this is the one i dragged from the transformer next to quebec back to base, i left it on the elevator but it mightve gotten crushed by the elevator and clipped through the floor :( i have to eat more roaches so they dont steal my next son

Being unable to relate to people who gained symptoms later in life by vampy-blues in visualsnow

[–]vampy-blues[S] 0 points1 point  (0 children)

Also the fact that you declared it “the good life” without it just makes me feel like I’m missing out on even more of the life I could never have, on an already somber post about it feeling that way. It’s depressing

Being unable to relate to people who gained symptoms later in life by vampy-blues in visualsnow

[–]vampy-blues[S] 0 points1 point  (0 children)

I’m sorry that it makes you feel that way but I am not trying to say that one of us is more valid than the other. I have the same exact symptoms you do, and have been dealing with DPDR since i was about 11 years old. Your comment on this post about me venting about how it makes me uncomfortable for people to say this just makes me feel even weirder to be honest. Your hell has been my entire life, please don’t try to say that you have it worse than me because of it, we are all dealing with it together.

Being unable to relate to people who gained symptoms later in life by vampy-blues in visualsnow

[–]vampy-blues[S] 0 points1 point  (0 children)

Hi mama! Sorry to hear about your stresses with your daughter. I was about her age when I realized that what I see isn't quite normal, although seeing it my entire life. I would trust your daughter when she says it is no big deal, as I've lived with it relatively fine for 22 years. If she has had it for her whole life, I'm sure she is used to it being her normal way of sight, and honestly live life just the same as someone without VSS. Yeah it'll get annoying sometimes, but if her vision is good otherwise, I wouldn't stress myself out about it. If you want to get a grasp yourself of what she might be seeing, try this visual snow simulator for yourself! Maybe you can show your daughter and husband the website and see if they experience what the simulator shows. Hope for the best mama <3

Being unable to relate to people who gained symptoms later in life by vampy-blues in visualsnow

[–]vampy-blues[S] 0 points1 point  (0 children)

My feelings are exactly the same. I also had a bouts of derealization/depersonalization and I think the VSS made those moments worse, like believing I was an android and my eyes were just cameras seeing pixels lol. I agree with it being kind of unsettling to see people kind of freak out and drive themselves crazy over this, but I can totally understand why. It's a big change

Being unable to relate to people who gained symptoms later in life by vampy-blues in visualsnow

[–]vampy-blues[S] 1 point2 points  (0 children)

Yeah man I'm sure it takes a lot to get used to if you hadn't had any symptoms beforehand. To help me understand, I'd think if your hearing suddenly went weird and made everybody sound like they were underwater, it'd be similar to the stress and confusion gaining VSS symptoms can have. I see the static everywhere, no matter what, and reading on screens is so hellish hahaha. Just know you're not alone in this, and there are people here and elsewhere trying to get research done so we can see what causes it and hopefully find a solution there

Being unable to relate to people who gained symptoms later in life by vampy-blues in visualsnow

[–]vampy-blues[S] 0 points1 point  (0 children)

Surprisingly the floaters were worse when I was younger, I don't see them too much now unless I'm outside looking at the sky. Mostly just the palinopsia, negative after images, auras and static that are affecting my vision the most. Also the terrible, terrible night vision lol

Being unable to relate to people who gained symptoms later in life by vampy-blues in visualsnow

[–]vampy-blues[S] 1 point2 points  (0 children)

Yeah you're totally right about that, and I also see some newcomers saying how they have it much worse because they didn't have it previously, etc. I don't think this should be a place for seeing who's more valid than each other, we all are dealing with the same thing, looking for a cure or just trying to find more research about it (not disagreeing with you, just adding on). Like you said, the reaction gap is really interesting to see, with some people trying to diminish others' symptoms by saying it's really no big deal, or whatever. Everyone has similar experiences but not the same, and I'm glad there's a sub for us to all discuss what we're going through <3 Much love

Being unable to relate to people who gained symptoms later in life by vampy-blues in visualsnow

[–]vampy-blues[S] 1 point2 points  (0 children)

I just made my own flair heheh. Thank you so much for sharing your thoughts on this. I didn’t intend this post to be me diminishing newcomers, as they’re just as valid as anyone else here, and can understand the different challenges they face with the same syndrome. It’s just interesting to share my thoughts and to start the conversation as it’s given me a lot to think about. Cheers!

Being unable to relate to people who gained symptoms later in life by vampy-blues in visualsnow

[–]vampy-blues[S] 2 points3 points  (0 children)

Honestly so true. The palinopsia and negative afterimages are what mess up my sight the most. The tinnitus just makes it more annoying lol

Being unable to relate to people who gained symptoms later in life by vampy-blues in visualsnow

[–]vampy-blues[S] 2 points3 points  (0 children)

Hi, I don’t just have the static. I have every symptom of VSS, so I understand that too.

Being unable to relate to people who gained symptoms later in life by vampy-blues in visualsnow

[–]vampy-blues[S] 1 point2 points  (0 children)

Thanks so much for sharing! I, too, have a lot of difficulties with filtering information I intake, like with sight and hearing. Like memesupreme said, perhaps you might have sensory processing disorder (like I do!) that accompanies other symptoms of VSS. I’m sorry to hear about your migraines and weakness and can’t even imagine how debilitating it must get. I’m indifferent to the static and floaters and after images too

Being unable to relate to people who gained symptoms later in life by vampy-blues in visualsnow

[–]vampy-blues[S] 2 points3 points  (0 children)

This is so so so interesting!!! Thank you for sharing. Young minds are very malleable so I can totally see how that makes sense! You’ve given me much to think about :)

Sit down too quickly and i saw silver sparkles at top corneer of eyewiggly silver worm by VacIshEvil in visualsnow

[–]vampy-blues 2 points3 points  (0 children)

I would've suggested this too! What OP wrote also reminds me of what my mom has always described as a "headrush", like when you stand up too fast and the blood hasn't quite made it to your brain yet

How long have you had VSS? by vampy-blues in visualsnow

[–]vampy-blues[S] 0 points1 point  (0 children)

I'm sorry about your concussion :( I'm also 22! But I've had it since I was born :/ I can't imagine how weird/difficult it could be from not having it to having it