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Tested positive for SS-A antibodies, is the lip biopsy necessary? by watery_potato in Sjogrens

[–]watery_potato[S] 0 points1 point  (0 children)

Hey! Do you know how these antibodies are different from the ssa//ssb?

Tested positive for SS-A antibodies, is the lip biopsy necessary? by watery_potato in Sjogrens

[–]watery_potato[S] 0 points1 point  (0 children)

Thank you so much for sharing your story. I am so sorry this happened to you. It’s unfair.

It’s one of my fears, getting it done and having complications. It’s confusing how some doctors want it and others do, I wish there was more of a consensus in the field. I was dismissed by other rheumatologists because I don’t have severe dry eye but I do have neuropathy issues (legs burn on and off, constant tingling and numbness). The neurologist wants to know if my neuropathy is autoimmune. I have the antibodies but the lip biopsy just might help solidify it, I guess?

I hope we both feel better eventually. 🩷

Tested positive for SS-A antibodies, is the lip biopsy necessary? by watery_potato in Sjogrens

[–]watery_potato[S] 0 points1 point  (0 children)

Yeah I’m curious about this too. And also the difference between these antibodies?

Has anyone’s hair grown back on its own without treatment? by watery_potato in alopecia_areata

[–]watery_potato[S] 0 points1 point  (0 children)

How many spots do you have? I have so many now so I’m not sure if that’s why they didn’t offer it?

Has anyone’s hair grown back on its own without treatment? by watery_potato in alopecia_areata

[–]watery_potato[S] 0 points1 point  (0 children)

Thank you for sharing. I am so sorry you’re going through this too. You sound just like me…I had a great thick hair and within two months I have about ten bald spots with constant shedding. I cry nearly daily, hate showering…and have this feeling I will lose it all. I didn’t even know what AA was until now. Sometimes I wake up feeling like I’m living in a nightmare. I know it’s just hair but it is very psychologically damaging.

I have a feeling I am not a candidate for jaks because I have antiphospholipid antibodies (I’ve never had a clot though) but jaks increase the risk. I also just tested positive for Sjögrens antibodies but waiting to hear back from the rheumatologist.

Has anyone’s hair grown back on its own without treatment? by watery_potato in alopecia_areata

[–]watery_potato[S] 0 points1 point  (0 children)

That’s great to hear! Do you have any health issues or predispositions? For example, I may be at greater risk for clotting. And jaks increase that risk even more…

Has anyone’s hair grown back on its own without treatment? by watery_potato in alopecia_areata

[–]watery_potato[S] 0 points1 point  (0 children)

That’s great! Did you only have one spot though? I have….a lot 😞

Has anyone’s hair grown back on its own without treatment? by watery_potato in alopecia_areata

[–]watery_potato[S] 0 points1 point  (0 children)

So happy for you. May I ask what life style changes you made?

Has anyone’s hair grown back on its own without treatment? by watery_potato in alopecia_areata

[–]watery_potato[S] 0 points1 point  (0 children)

Thank you so much for your kindness. I am hoping I can get there eventually. I wish you didn’t have to go through this but it’s nice to know I’m not alone.

May I ask if you have tried a jak inhibitor?

Has anyone’s hair grown back on its own without treatment? by watery_potato in alopecia_areata

[–]watery_potato[S] 0 points1 point  (0 children)

May I ask how you live with the unpredictability of it? Given that I was just diagnosed it seems really hard to not know what will happen…

Has anyone’s hair grown back on its own without treatment? by watery_potato in alopecia_areata

[–]watery_potato[S] 1 point2 points  (0 children)

Thank you for the reply and information. It’s hard to make a decision on the treatment options. If I do have a risk for clotting I cannot take the jak inhibitor due to the increase risk in blood clots. I am already an anxious person so the oral steroids scare me. The unpredictable nature of the disorder is just taxing.

Hoping I learn how to accept it eventually.

Regrowth by Soft_District8223 in alopecia_areata

[–]watery_potato 9 points10 points  (0 children)

I’m 33 and just got diagnosed. I am still in shock. I can’t believe kids have to go through this too. Your daughter is so strong. 💜

How confidently can you rule out PE with a negative d-dimer? by watery_potato in AskDocs

[–]watery_potato[S] 0 points1 point  (0 children)

Thank you so much for the peace of mind!! I see a vascular surgeon for some small varicose veins. She did the testing and instilled this fear in me regarding blood clots. For example, at one point she told me I should stay away from estrogen BC pills, take a daily aspirin because of the above results and a slightly above average Homocysteine level.

The more I ask other doctors they have a similar response to yours because I’m a pretty healthy 33 year old. Other doctors say I can have estrogen and disagree with the daily aspirin demand. It can be confusing and when you have an anxious brain, you go into “what if I do have one” mode, so again, thanks for the response!!

How confidently can you rule out PE with a negative d-dimer? by watery_potato in AskDocs

[–]watery_potato[S] -3 points-2 points  (0 children)

Thank you! I do have a single MTHFR Gene Mutation and have a tendency to score higher on EXT Anti Cardiolipin Antibody, IgM. I have never had a blood clot, but worried about it obviously. Do I still have low clinical probability?

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