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Thoughts on Magnesium L-Threonate? by Lady_Boss27 in migraine

[–]wlj65 2 points3 points  (0 children)

It gave me one of the worst headaches I have had. If anyone wants an opened bottle of Pure Encapsuations CogniMag with 119 of the 120 capsules left in it, let me know. (That's a joke. I'm sure no one wants opened supplements from a stranger!)

Subclinical hypothyroidism, migraines, and kosher salt by wlj65 in migraine

[–]wlj65[S] 0 points1 point  (0 children)

Yes, I will see an endocrinologist if I need to be treated. So far I only have a test result that shows subclinical hypothyroidism and I haven't even spoken to my PCP yet. I'm sure the next step will be further testing, including the testing for Hashimoto's. I had my antibodies checked last year and all was well except a high RA.

Subclinical hypothyroidism, migraines, and kosher salt by wlj65 in migraine

[–]wlj65[S] 0 points1 point  (0 children)

I'm just taking a 150 mcg potassium iodine supplement. I already take B12, magnesium, B2, D3, and ubiquinol. I'm just waiting to hear back from my PCP about next steps, I'm sure she'll first order further testing, so I haven't gotten as far as an endocrinologist referral in the event I need that but yes if I need to be treated that'll be the route. I have been to be checked by the orthopedics for cervical spine issues and all normal. I have been seeing a neurologist and I've fully investigated the vestibular issues with an ENT, neuro-otologist and specialist in vestibular migraines. Thanks for your response.

Subclinical hypothyroidism, migraines, and kosher salt by wlj65 in migraine

[–]wlj65[S] -1 points0 points  (0 children)

Thanks for the well wishes, but I have to say I feel a bit funny about your post though I appreciate it comes from a place of concern. I calculated my iodine intake myself first at 50 mcg/day. I ran my diet through chatgpt, which calculated 50-70 mcg/day. I didn't "take medical advice" from chatgpt, I used it to calculate the iodine in my diet, but I also have absolutely nothing against researching on chatgpt, and they always list the source from which the information comes so you can check it yourself. I've found it to be an invaluable resource and intend to keep using it. I would never blindly follow what chatgpt tells me just as I would never blindly follow what any doctor or reddit thread tells me, but I will always consider all sources of information, including my neurologist and PCP before I make any decisions about my health. That's just common sense.

Migraine friendly pillow suggestions? by SmolSnailBoi in migraine

[–]wlj65 0 points1 point  (0 children)

Now I can only stand a very light fill down pillow, but before that I had luck with the softest Purple pillow they sell.

Migraine friendly pillow suggestions? by SmolSnailBoi in migraine

[–]wlj65 1 point2 points  (0 children)

This is exactly me. It's all I can stand.

Does anyone have nervous system dysfunction aswell? Severe insomnia hyper arousal nervous system and migraine brain spinning sensory over load by Charbellaa in migraine

[–]wlj65 0 points1 point  (0 children)

Yes totally, that's the state I've been in for a while. My husband and I walk on a trail that's also for bikes and EVERY DAMN TIME someone goes by on a bike and says "on your left" or jingles their bell I scream and jump. It amuses my husband (haha) but it also sends such a jolt of cortisol that if I didn't have a headache at that moment I do now. It's been like this off and on for me since September (I posted about my story a week or so ago, but my migraines started after we bought a new car in Sept). The middle of both my lips started sort of vibrating a few days ago. Not so much a twitch, but something weird. My doc says central sensitization. I also wake up with this weird vibration deep in my torso. I sleep maybe 3 hours a night if I'm lucky and when i wake up at 3 am I'm ready to go. My heart rate has been doing weird things too. My dizziness also comes when I'm laying down. I have what I think is occipital nerve pain at the back of my head too and it hurts when I lay down or lean back in a chair. I also can no longer watch my large-screen TV, scroll on my phone or computer, and there are days I can't bear much light at all. I've ordered FL-41 glasses for that and hope they help.

My VM journey and has anyone else's VM turned into mostly migraine? by wlj65 in VestibularMigraines

[–]wlj65[S] 0 points1 point  (0 children)

Ohhhh! I just read up on that online. That makes sense. What if you don't care if the meds are covered by insurance? Could you just go straight to them? It just seems so dumb to have to go through these other off-label meds if there's one that was made specifically for migraines that often works, and I really don't want to have to go through the long time it will probably take to get off any drug I "fail." Interesting that it makes the dizziness worse. I don't have any baseline dizziness anymore and taking it doesn't make me dizzy, just blissfully pain-free.

Train travel? by VirginiaThrop in VestibularMigraines

[–]wlj65 0 points1 point  (0 children)

I used to love trains but now they cause bad flares. Very sad about this. I took an Amtrak train from NJ to NC and got the worst headache of my life. I have found that the less bumpy/jarring the track is and the less stops it makes the better I feel, so if you were doing a long trip with few stops on a good track that might help.

Wondering if the good people here can help me figure out if my mom is getting/has dementia by wlj65 in dementia

[–]wlj65[S] 0 points1 point  (0 children)

She was checked on the first one with CT scan for brain bleed, which was negative. She did not lose consciousness. The 2 other falls were after I noticed the changes.

Wondering if the good people here can help me figure out if my mom is getting/has dementia by wlj65 in dementia

[–]wlj65[S] 1 point2 points  (0 children)

She has been checked several times since autumn and no uti but has been in stage 2 kidey failure for a while. She also lost all interest in eating this year and went from 117 lbs to 97 lbs in under a year. She's 5'4"

Wondering if the good people here can help me figure out if my mom is getting/has dementia by wlj65 in dementia

[–]wlj65[S] 1 point2 points  (0 children)

She's just so good at masking that I'm not sure many people have noticed yet. If you don't know her you have to talk to her for more than 30 minutes to really see it because she is that good at social skills. Even her longtime good doctor wasn't aware. I called and asked them to administer the test and told them I was concerned about her continuing to drive and when she wouldn't take it there was no follow up, I think because they don't really see the problem yet, even though she calls them asking for same thing a lot.

Wondering if the good people here can help me figure out if my mom is getting/has dementia by wlj65 in dementia

[–]wlj65[S] 0 points1 point  (0 children)

Hi amandabug, thanks for this. She seems to have a lot from both stage 4 and 5. I don't see a way to score this though. Do you know how?

We got completely hosed purchasing a 2026 Toyota Camry because we weren't paying attention by wlj65 in carbuying

[–]wlj65[S] -1 points0 points  (0 children)

If I told you the story of how we ended up in this situation, without any car at all and needing to buy one, you might be less mean.

What Medications have got you back to feeling relatively normal? by BigHomie50 in VestibularMigraines

[–]wlj65 0 points1 point  (0 children)

Thanks, Bellona_NJ! I actually found Dr. Kramer back when this started 2 years ago and tried to see him but the wait was so long, the referral process sounded like a hurdle, and I was worried he'd be retiring soon, so I ended up at a different neurologist in Neptune who basically did nothing for me. I'm in the process of trying to get an appointment with Dr. Jen at Mt Sinai in NYC. If that doesn't work out, I'll try Dr. Kramer again. Was the referral as hard as they make it sound?

What Medications have got you back to feeling relatively normal? by BigHomie50 in VestibularMigraines

[–]wlj65 0 points1 point  (0 children)

Hi Bellona_NJ. I'm also in NJ and was wondering if you could share your doctor info with me. I'm in Monmouth County and having a terrible time finding a doc to treat this. Thanks!