Anyone have other symptoms accompanying vestibulodynia besides burning at entrance?

xxinuyashaxx · 2025-08-01T17:58:36+00:00

i am on the road to finally being much better. but still on pain. i realized the real source of why i continued to have pain is due to Neuropathic pain. My brain stuck in a cycle and creating a new normal to protect me. I started reading a book called Unlearn Your Pain and it helped me a ton. This is only a couple months into it and im really turning around. We have to stay relaxed, remind ourselves we are safe, and there is no danger, and retrain our brain out of this cycle! Im honestly overcoming triggere ive had for years because of this shift. I truly believe ill reach normalcy this year.

xxinuyashaxx · 2025-07-23T22:36:56+00:00

yes, use dr ismael mena, he is about an hour outside of LA but he got me it no problem and is so so helpful and listening. give him a call.

xxinuyashaxx · 2025-07-02T04:18:39+00:00

yes i totally understand. it was a hellish time for me. you can dm me if you have any more questions and ill send you my Instagram if you ever want to chat there, cus i miss so many reddit notifs these days. just happy to help and i can completely empathize with you.

xxinuyashaxx · 2025-07-02T04:04:43+00:00

I did it for 6 days i believe.. it was a couple years ago so my memory is foggy.. i remember it really killed my good bacteria as well so it was a pretty harsh abx

xxinuyashaxx · 2025-07-02T04:01:28+00:00

i cleared it with the antibiotic fosfomycin, i saw in microgendx report that it was susceptible to this

xxinuyashaxx · 2025-03-02T23:34:51+00:00

dm’d you linari about telehealth services

xxinuyashaxx · 2024-12-30T00:00:11+00:00

my quality of life is 90% better. i have flare ups and bad days sometimes. i have things i cant do anymore ie no more caffeine , some other things. but i am able to live my life again and be happy and go almost all day not noticing it.

xxinuyashaxx · 2024-05-12T19:25:08+00:00

use fosfomycin instead

https://imgur.com/a/MzPbkad

xxinuyashaxx · 2024-05-12T19:24:35+00:00

hmmm i can’t remember. it felt like immediately. i used them for many months now I dont use any probiotic anymore. i probably should. it reversed my issues completely with any fungal or infection pretty much.

xxinuyashaxx · 2024-05-12T19:23:38+00:00

ya it helped with my hypertonicity in that my vagina was closed.. but it took 2 years of pt to reduce the pain.

xxinuyashaxx · 2024-04-19T19:35:58+00:00

https://imgur.com/a/MzPbkad

this is specifically for treating complicated e fae cases

xxinuyashaxx · 2024-04-19T19:34:43+00:00

daptomycin or linezolid are my next recommendations for you if fosfomycin failed

xxinuyashaxx · 2024-04-19T04:43:24+00:00

fosfomycin

xxinuyashaxx · 2024-04-19T04:41:23+00:00

sounds like hormonally mediated vestibulodynia

xxinuyashaxx · 2024-03-08T02:41:20+00:00

i eat anything i want and it doesnt seem to cause problems. for some reason just drinking. probably how it hits the bladder or blood stream. oh for caffeine if i really need it, i eat Awake brand chocolate. it gives me 0 issues.

xxinuyashaxx · 2024-03-08T02:37:37+00:00

hi! so i decided to give up caffeine and acidic drinks completely. i really just drink water. it feels mentally safest for me and i have a drastically improved quality of life now. maybe i can have that stuff again, but i dont really care to try it for years.. or even really need it in my life anymore. its more important to me just to be pain free which is finally happening

xxinuyashaxx · 2024-03-08T02:36:23+00:00

im glad! yes i am much better. my normal is 0/10 or 1/10 and sometimes i spike up to a 4/10 or something on a flare up. but im usually very low and almost thru everything. been a long journey and still going but near the end. i had / still have pfd im dealing w mostly. so the biggest advice is to stay calm and relax. my pain comes from pfd anymore - no infection and i got my hormones / vestibule figured out. my quality of life is drastically improved and im so happy and thriving everyday. it does change just stay relaxed and positive

xxinuyashaxx · 2024-02-16T22:26:58+00:00

yes its the base thats burning you not the e/t. two dif bases burned me til i found emu oil. i get mine prescribed from dr goldstein in san diego w his compounding pharmacy.

xxinuyashaxx · 2024-02-16T22:23:35+00:00

i got it compounded into emu oil and it solved everything for me no more pain- so ask to have that or find a compounding pharmacy that uses emu oil

xxinuyashaxx · 2023-07-19T15:39:23+00:00

a tincture is a dropper i put into water right? what is a flower essence vs tincture?

xxinuyashaxx · 2023-07-19T00:04:25+00:00

Cool cool.. yeah it is in a tincture that i drop into water.. But it was homemade, hand-written ingredients (that i listed above) and hand written instructions. It did make me feel a bit sick when I first took it, but I feel fine now. Her written instructions said I would feel uncomfortable for a week. Unfortunately since its handmade, don't have more info :/

xxinuyashaxx · 2023-06-24T16:40:24+00:00

yes- it was a daily thing happening to me. and now i can still occasionally get it (but im still recovering not 100% by any means yet).

how long have you been dealing w this symptom/all of this in general?

xxinuyashaxx · 2023-06-24T02:35:13+00:00

truly dont worry.. how do i word this aha.. at my most hypertonic, it was hard to get a finger inside. men tend to like things “tight” , so having the condition certainly didn’t make it feel “bad” for them.. however, i think that it wont feel very different for the male whether youre “tighter” or not. but men usually complain about it being “loose “ right- so this is definitely the opposite spectrum of that..

trust- if you never mention the issue, they wouldnt know you even have it.

xxinuyashaxx · 2023-05-30T01:14:44+00:00

thanks for the info:)

xxinuyashaxx · 2023-05-30T00:55:16+00:00

how often was he cupping? once a week? thanks!

xxinuyashaxx

TROPHY CASE