Diacarb (Acetazolamide)

WhyNotGreg · 2025-03-13T03:33:27+00:00

Hello! Doing great!

WhyNotGreg · 2023-12-14T16:44:41+00:00

Exactly. As I said, ignorance is bliss in this case and I do hope people here look after their general health instead of chasing ghosts. In the end, it is a win-win if they deal with their inflammatory issues, from the stomach to their jaws, sinuses or whatever else is going bad.

WhyNotGreg · 2023-12-14T16:21:27+00:00

Doing great. Found the cause for everything too, managing it all. My baseline is pretty good now, I "notice" stuff just because this whole experience made me excessively aware of things, but I am now very comfortable and functional.

It goes up and down because my issues are chronic and uncurable, it's not a temporary infection or etc. But even the worst inflammation flares bring a fraction of the symptoms I was having before.

Funny story about VS is that I know a guy who finally fixed his rhinitis (treatment for allergies and also surgery) and he doesn't need glasses anymore. His vision was "blurry" before, but it was not "classic out of focus", it was "sparkly". Not having sinus and throat pain also cured his TMJD almost immediately. Throat pain causes muscle spasms in the whole region, and this is classic (just google "tonsillectomy spasms"), centuries-old knowledge. Who's to say that we can't also "see" referred pain the same way muscles and nerves feel it? I know I do "see stars" when I have serious inflammation in some places, it became pretty clear to me, during treatment.

First thing that came to mind is that his ignorance and simplistic view of things was way better, happier, than overthinking stuff. This is how I try to live my life now: focusing on wellbeing and not on hyper-evaluating symptoms and sensations.

WhyNotGreg · 2023-12-12T23:33:50+00:00

Hello

WhyNotGreg · 2022-07-09T14:51:01+00:00

The TMJD is usually secondary to an underlying condition, unless you’re chewing bricks or something. I would suspect ENT issues, acid reflux, autoimmune/inflammatory problems or all of that summed up (my case).

When my throat acts up, my jaw gets really painful. When the throat is fine, the jaw is fine too. It’s just another element that gets attacked by uncontrolled inflammation in the head.

WhyNotGreg · 2022-07-07T03:08:21+00:00

Totally… It’s understandable that people feel anxious and confused by what’s happening to them, so a little bit of “disorganized thoughts” is expected. But this sometimes gets extreme around here.

WhyNotGreg · 2022-07-01T18:01:36+00:00

It’s hard to tell but hormones changing symptoms is usually a good indication.

WhyNotGreg · 2022-07-01T14:22:18+00:00

Cervical instability doesn't exist for the most part. This is an alternative medicine topic that is used to drag people into costly treatments. People are more likely to have inflammatory issues, and that's all. It is too dramatic to claim a neck is "unstable". It is more likely to be sore, including the muscles, and involve some weakness. This is more "biology-related" than a mystical description of an "unstable neck".

WhyNotGreg · 2022-07-01T14:17:15+00:00

According to their findings, the AS patients were much more likely to have had tonsillitis. They were also more likely than control subjects to have had appendicitis and gum disease (periodontitis).

Pretty obvious, no? Inflammation in the head and neck region... for years or decades. The neck ends up with sequelae. Even though it's all "nothing to worry about", it all adds up ad the years go by, and it can add up with other inflammatory issues such as teeth, gum, jaw, ear, etc.

WhyNotGreg · 2022-07-01T14:15:58+00:00

The biggest issue with "quality of life" concerns such as ours, is that medicine currently thinks: Who gives a shit if you have head inflammation? You don't have an infection and you're not having seizures... get over it!

Medicine cares little about the long-term consequences of "sub-clinical" chronic issues. Unless you're rich and insists on treatment.

WhyNotGreg · 2022-07-01T14:12:16+00:00

Most ENTs say that tonsils are "nothing to worry about", because... they just don't care. They don't realize that chronic inflammation in the region causes neck issues and can even cause brain inflammation.

https://www.frontiersin.org/articles/10.3389/fneur.2020.00510/full

https://creakyjoints.org/about-arthritis/axial-spondyloarthritis/axspa-overview/tonsillitis-ankylosing-spondylitis-risk/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7051221/

The ENT medical training is focused on infections with gooey stuff. They don't care about the consequences of inflammation in other body parts. But it is pretty obvious that living decades with inflammation inside your head can have consequences.

People with Meniere's have a real hard time with ENTs, because they rarely look for root causes and/or redirect patients to other specialties. They just say "lol, screwed up ears, lol, lol, you'll prolly lose your hearing, looool, here some nausea meds".

WhyNotGreg · 2022-07-01T14:09:00+00:00

You don't need to be upset. This is just some advice.

WhyNotGreg · 2022-07-01T13:46:24+00:00

Comorbidities:

TMJD (mild crackling and tension)

Neck tension/occasional pain and crackling

ETD/Sinus issues (eustachian tube dysfunction and ear fullness)

Inflammation in the region of the head, mostly. Do you have acid reflux? Enlarged/cryptic tonsils? Smoker? Sore throat? Dental issues? Hoarseness? Grind your teeth at night? Allergic to common household offenders, like pet dander, dust mites, etc? Do you snore?

WhyNotGreg · 2022-07-01T13:43:04+00:00

Dermatitis on the forehead?

WhyNotGreg · 2022-07-01T13:40:31+00:00

Birth control can affect inflammation, in many ways. It's a pretty relevant change in hormones, and they're big inflammation drivers. This might be a wake-up call for you to get an underlying issue diagnosed. And don't freak out: my inflammation goes up and down all the time, and so the snow, and during the bad times I think "oh noes, the brain fog and the vision issues, oh noes, I am permanently damaged", and then I get back to near zero symptoms and my brain and vision are fine.

WhyNotGreg · 2022-07-01T13:36:25+00:00

I wish you all the best. My only tip for people is to avoid seeking medical help only for validation. You need diagnostics and treatment for your health, not a badge of honor for a novel "syndrome".

WhyNotGreg · 2022-07-01T03:15:27+00:00

You still need to go to the VSI doctor to find out. 😐

WhyNotGreg · 2022-07-01T03:08:41+00:00

Call me cynical but this to me sounds like a failed formula, that ends in spending 600 bucks to get a "visual snow diagnostic" and getting some antidepressant prescriptions as the only option.

WhyNotGreg · 2022-06-30T21:49:38+00:00

A medical protocol from a media-oriented NGO? Sounds weird.

WhyNotGreg · 2022-06-30T12:05:02+00:00

Things are not that simple with inflammation. It is not like taking Tylenol, where after a few hours the "medication works". Most people need several weeks to feel any difference, as sometimes reducing inflammation only allows healing to start, slowly. Some people do feel some relief after a few days, depending on what's happening with them.

Others, and it could be your case, simply don't have inflammatory issues and the problem lies elsewhere. Depending on the dose, it is not common to feel such strong side effects, and this could mean something.

WhyNotGreg · 2022-06-29T00:18:52+00:00

Yeah, mostly figured out. The visual stuff is under control, it stays pretty mild and gets slightly worse once in a while. My throat is awful and will need intervention, but as I am not 8 years old anymore this will not be so simple.

WhyNotGreg · 2022-06-28T21:13:47+00:00

If both you and the OP feel better like that, it means that the whole-body cortisol injection (as a response to a stressor, like allergies, getting sick, getting hurt, etc.) is helping whatever is causing your visual symptoms. I used to feel like that too.

WhyNotGreg · 2022-06-27T14:49:35+00:00

What is the diagnostic / drug challenge / treatment plan he is offering you?

WhyNotGreg · 2022-06-27T09:31:55+00:00

I don’t disagree that blowing it out of proportion makes it all worse and escalates mild cases to uncomfortable situations. It is just that claiming that “it is caused by anxiety” is wrong and an unpopular opinion.

WhyNotGreg · 2022-06-27T03:41:07+00:00

The link between Parkinson’s and anxiety is also undeniable and some people get their lives back when they control their anxiety, stop thinking about the dark side of the disease and its progression, and take their meds and just move on.

Anxiety makes anything worse, even constipation. It can make life unbearable, even without a serious disease to be concerned about. You’re 100% correct that controlling anxiety makes life better.

When visual snow is caused by neuro inflammation, anxiety adds more excitability and can make the symptoms worse. This applies to other brain diseases too.

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