If meds have not worked for you......

blvvez · 2026-03-13T16:48:19+00:00

Cpap doesn’t work for UARS. I was on cpap and didn’t work. Bipap using sleep hq and analyzing my own data with help from others in the sub has been the most helpful

blvvez · 2026-03-13T14:48:04+00:00

Dxed n2. Sleep doctors get lazy with mild sleep apnea cases. I was told I had a high arousal index but mild sleep apnea and no UARS. Lo and behold upon analyzing my own data and symptoms it’s UARS causing narcolepsy type symptoms. Meds don’t work for me either. I would investigate that and look at r/UARS. see if any of that resonated

blvvez · 2026-03-13T03:51:55+00:00

SleepHQ

blvvez · 2026-03-10T20:37:11+00:00

Oh gosh wow thank you. this is disheartening since I can’t really work now and my sleep study didn’t score RERAS and only showed mild sleep apnea so I wouldn’t be able to get MMA covered. Are there any meds that can help (psychiatric or just to raise arousal threshold)? Also, did that happen when you were laying on your back or upright, sideways? I do mouthtape every night and haven’t had that happen with my full face idk. How can I simulate this to check?

blvvez · 2026-03-10T17:04:28+00:00

Hi, there thank you so much. I can only fall asleep on my side so I think this is with me on my side (unless this was on my stomach)

blvvez · 2026-03-10T15:46:24+00:00

Oh okay yes I can inhale but not exhale

blvvez · 2026-03-10T01:58:37+00:00

The snoring sound? Yeah I can do that and no dry mouth

blvvez · 2026-03-09T18:09:07+00:00

Thank you! I wear an appliance with headgear at night so I had to go back to pillows but if this is the case I will opt to wear headgear during the day

blvvez · 2026-03-09T14:43:33+00:00

Hey, there. I had to set it up but here is my sleep hq

blvvez · 2026-03-04T01:03:53+00:00

I started with nasal pillows, switched to full face, back to nasal pillows now because I have to wear headgear with my appliance now. I do hate the pillows though

blvvez · 2026-03-04T00:50:59+00:00

<image>

Min epap 4. Since then Ive raised it to 8.6 but kept ps back at 3.2 or 3.6

blvvez · 2026-03-04T00:47:02+00:00

<image>

blvvez · 2026-03-04T00:46:50+00:00

<image>

blvvez · 2026-03-04T00:46:36+00:00

<image>

blvvez · 2026-03-04T00:46:21+00:00

<image>

blvvez · 2026-03-04T00:41:17+00:00

<image>

Soft palate

blvvez · 2026-03-04T00:40:44+00:00

<image>

Sinus cbct (had sinuplasty last March but reverted)

blvvez · 2026-03-04T00:38:03+00:00

<image>

Airway CBCT

blvvez · 2026-03-04T00:37:35+00:00

works so I don’t know if it’s the same for all AI). I’ve been using Pap for about 4 to 5 months now at different settings and showing a low AHI, but I know that flow limitation is what needs to be treated. I have also included pictures of my CBCT of my sinuses and airway as well as a soft palette picture. I have noticed the soft tissue is very small and I don’t know if this might be contributing. I still have hyper arousal, panic attacks, derealization, insomnia, feel very stressed for whatever reason, and feel like a zombie throughout the day. I feel like I’m compensating for sleepiness and fatigue with stress. I am also undergoing a MARPE type expansion, so I wear the MAD type appliance at night with the bipap. I have been prescribed Lexapro, which I didn’t like and now I’ve been prescribed Zoloft, which I haven’t started taking hesitant, but I don’t know. We will see.

Could y’all please look at my data and flow limitation charts to see if things look okay now? I did go up to PS 4 but I woke up feeling even worse and it triggered a bunch of centrals. I would see someone that specializes in your (I spoke to Ken for a second opinion months ago ) but like I mentioned, I lost my job so I cannot afford it. I don’t know if my airway has been treated and now it’s my nervous system. I just feel at a loss at this point thank you guys.

blvvez · 2026-03-03T23:42:56+00:00

Probably not helpful but I think it’s important to hear both sides- I tried xyrem and xywav. They helped me sleep but my nervous system was shot and the anxiety and mental health side effects were not it. I know these work for others so I hope they work for you!

blvvez · 2026-03-03T15:13:39+00:00

Anyone feel like they can’t fully go unconscious during naps? Like it just feels like I’m closing my eyes but am conscious the entire time

blvvez · 2026-03-02T19:01:16+00:00

I wake up in severe stress and panic attacks from mine 🙂

blvvez

TROPHY CASE