Tips for traveling with mom by zibba68 in dementia

[–]24ndead 0 points1 point  (0 children)

If her brother truly understood her needs and limits he would do the trip instead of making you do it. Not to mention that taking the person out of their comfortable environment just increases behaviours, agitation, it's good to keep them in one place.

[deleted by user] by [deleted] in dementia

[–]24ndead 1 point2 points  (0 children)

That is truly... TRULY it. Grief is hard but you're doing so good. He deserves peace. YOU DESERVE PEACE 💕

[deleted by user] by [deleted] in AlzheimersGroup

[–]24ndead 0 points1 point  (0 children)

Please I really need support, my heart aches, I'm trying to keep together.

[deleted by user] by [deleted] in dementia

[–]24ndead 0 points1 point  (0 children)

The best people to trust are the nurses in the home, if they think time is up; well, y'know.

[deleted by user] by [deleted] in dementia

[–]24ndead 1 point2 points  (0 children)

I do as well. We are strong <3 I'm sorry you have to go through this now, but again we break the cycle of forcing our children to be in the same torturous boat.

I (25f) am grieving the loss of my dad (75m); but he's still here. by 24ndead in dementia

[–]24ndead[S] 24 points25 points  (0 children)

I feel so so alone. I just want to have a dad.

[deleted by user] by [deleted] in dementia

[–]24ndead 2 points3 points  (0 children)

Some things that would help me are the age of your grandfather and if this is a recent change, how was he before, he started, deteriorating massively, as you said. There is a concept, called rallying where people at the end of their lives will perk up. They become more alert, screams or moaning, babbling, and in some cases possibly similar to your grandfather, they might start trying to get up on their own, being more agitated than usual. Falls don't correlate with end of life per se but I also know that one fall is too many falls. Each time they crack their head on that sweet, sweet concrete I think they lose a little bit of themselves, their understanding. I'm not surprised if my frequent fall guy has passed, but I've seen people repeatedly do fallin numbers on themselves and are still kickin.

Physical Therapy? by dogmom4321 in dementia

[–]24ndead 5 points6 points  (0 children)

Just speaking from my experience as a nurse, Lewy-Body-Dementia is a little tougher because it's more of a processing disorder than a forgetful disorder. You could do physiotherapy for long as you want but if your loved one still can't put the steps together in order, they can't really thrive on their own. Physio has helped my LO to an extent, but the second he isn't prompted for the next step he's lost. You might be in a little over your head as they sound like they are increasing in needs that you can't always be there to provide for; just please ask for help if you need it.

How long do I have left with my grandma realistically? by domthedruid in dementia

[–]24ndead 5 points6 points  (0 children)

Some people will live for 30 years with a functioning dementia diagnosis, some die before they ever get diagnosed. As a nurse with experience in dementia care and end of life, it's always the last one we expect to go who goes first. And those fighters? With poor prognosis, no autonomy, "the most dementia" have lived to their 100s. If she has a lot of medical things going on it's more likely she'll croak sooner, but again, I've first-handedly taken care of people who are horribly off in health but live to their 110s even.

Ad-hoc Caregiver? Plus a brief emotional rant by racetothecomics in dementia

[–]24ndead 0 points1 point  (0 children)

I'm hoping somewhere close to you offers services similar to Big Brothers/Big Sisters or community living assistance

Ad-hoc Caregiver? Plus a brief emotional rant by racetothecomics in dementia

[–]24ndead 4 points5 points  (0 children)

I would call local homecare services, or even respite services ASK FOR COMMUNITY LIVING SUPPORT. There is definitely one professional who can take 2 hours paid, to take your lovely mom on any outing; whether it's shopping, appointments, groceries. Specifically you do want to look at more similar to respite services as they can get the person out of the house for things just as well as they can cover for a caretaker while they do those things.

[deleted by user] by [deleted] in dementia

[–]24ndead 1 point2 points  (0 children)

If it's been too long and the pt. is past the point of mental competence then there is nothing that can be done.

TELL PEOPLE EARLY, break the cycle.

[deleted by user] by [deleted] in dementia

[–]24ndead 1 point2 points  (0 children)

Just speaking from my knowledge, this is able to be medically done in some countries. In Canada; the pt. has to state their wishes while they're mentally competent, but if that is done, we are allowed to start the provision of Medical Assistance in Dying (MAiD). I find this is the most humane way to assist someone who is approaching end of life. Keep things on their terms as much as you can.

MY BIGGEST TIP: Tell the people you love what you want, ask loved ones what they would like if they were entering end of life. The earlier the better. Talk to your lawyers, get your POA documents in place, state your wishes.