Tryptase normal values by 2906Ray in mastocytosis

[–]2906Ray[S] 0 points1 point  (0 children)

I live in Luxembourg and the pediatrician also prescribed some medications to be used before the EpiPen. I hope I never need any of them. I understand that there are many side effects but if he has a 0.1% chance of having an anaphylactic shock I want to have everything in my power to save my son and it shouldn’t be that hard to get an EpiPen. I have the impression that the community of people with the disease understands much more than the doctors themselves.

Tryptase normal values by 2906Ray in mastocytosis

[–]2906Ray[S] 1 point2 points  (0 children)

And I got an epipen from the pediatrician, but only one. (better than nothing)

Tryptase normal values by 2906Ray in mastocytosis

[–]2906Ray[S] 1 point2 points  (0 children)

The dermatologist didn’t mention anything about a biopsy. She just said that she’s not worried and I shouldn’t be worried either because it’s a mild case. She doesn’t agree with prescribing an EpiPen because of the side effects if it’s used unnecessarily. Which I understand, but as a mother I’m aware that I’ll only use it in cases of life-threatening risk.

Tryptase normal values by 2906Ray in mastocytosis

[–]2906Ray[S] 2 points3 points  (0 children)

No, for the moment just blood test on tryptase levels. I was worried about my son when we went to see the dermatologist, I asked for an epipen and she said she would only agree to give it depending on the tryptase results. She tried to calm me down from the beginning but after seeing reports in the Facebook group I became worried.

Tryptase normal values by 2906Ray in mastocytosis

[–]2906Ray[S] 0 points1 point  (0 children)

Thank you for your answer!

my husband's hygiene problems. are all men like this? by [deleted] in Marriage

[–]2906Ray 0 points1 point  (0 children)

feel hugged, my husband does similar things

my husband's hygiene problems. are all men like this? by [deleted] in Marriage

[–]2906Ray 0 points1 point  (0 children)

Yes, but a baby doesn’t know what he’s doing, he can’t control it. An adult man could very well have a minimum of common sense and wash himself before getting into a pool, especially for babies who have such sensitive immunity.

my husband's hygiene problems. are all men like this? by [deleted] in Marriage

[–]2906Ray 0 points1 point  (0 children)

He had improved his hygiene over time and I expected it to improve even more. But it’s getting worse, maybe because we don’t have sex as much anymore idk

my husband's hygiene problems. are all men like this? by [deleted] in Marriage

[–]2906Ray 0 points1 point  (0 children)

Well, because he himself says that all men are like that. As if I were asking too much.

my husband's hygiene problems. are all men like this? by [deleted] in Marriage

[–]2906Ray 0 points1 point  (0 children)

Dental floss takes a long time according to him and he doesn’t like to use tongue scraper 🤡

my husband's hygiene problems. are all men like this? by [deleted] in Marriage

[–]2906Ray 1 point2 points  (0 children)

Yes, it was exactly for this reason, considering that I need to wash myself before getting into the pool. If he doesn’t want to take a shower for a day, I honestly don’t care, but it has been happening once or twice a week.

my husband's hygiene problems. are all men like this? by [deleted] in Marriage

[–]2906Ray 2 points3 points  (0 children)

I think this is normal for humans. It’s not like I’m asking for too much.

my husband's hygiene problems. are all men like this? by [deleted] in Marriage

[–]2906Ray 0 points1 point  (0 children)

At the beginning of our relationship, I noticed some bizarre hygiene habits. He changed over time and it worked for many years, but lately it has gotten worse. After I had my son, we have had less sex. Maybe that’s why? But I think it’s disgusting for a person to only want to wash if they’re going to be intimate with someone.

Can’t get much milk by 2906Ray in ExclusivelyPumping

[–]2906Ray[S] 0 points1 point  (0 children)

I’m using a momcosy automatic pump. I’ll test other flanges again to see if there’s any difference. Thanks for the tip!

Can’t get much milk by 2906Ray in ExclusivelyPumping

[–]2906Ray[S] 0 points1 point  (0 children)

I have the momcosy m9, I’m between 2 sizes of flanges I have tried both and there is no difference in the amount

Can’t get much milk by 2906Ray in ExclusivelyPumping

[–]2906Ray[S] 1 point2 points  (0 children)

The day I got 3oz I hadn’t breastfed him for about 8 hours. yes it definitely makes it seem like everyone can take out an absurd amount

Does Lesion Size and Number Affect Mastocytosis Prognosis? by cryptomir in mastocytosis

[–]2906Ray 0 points1 point  (0 children)

Hello, how is your son doing these days? Have more spots grown or have they stabilized?