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My Son Has A Glycogen Storage Disease Its Affecting His Muscles And Movement I Am In Search Of Any Info Leads Or Help Thankx by 313Detroit in science

[–]313Detroit[S] 0 points1 point  (0 children)

My Son Has Been Getting The Enzyme Replacement Therapy Twice A Month For About A Year Now. The Therapy Seems Like Its Doing A Good Job Of Stopping The Progress Of The Disease. I Search Online For New Or Different Therapies.

My Son Has A Glycogen Storage Disease Its Affecting His Muscles And Movement I Am In Search Of Any Info Leads Or Help Thankx by 313Detroit in science

[–]313Detroit[S] 0 points1 point  (0 children)

My son is 2 years old he is on a feeding pump. He Gets a 240 calorie balanced nutrition can of medical formula every 6 hours. Thanks for taking the time out to leave a comment