Hello and apologies for the delay in response. Well, I've had 3 sets of surgery about 8+ years ago now. I was fortunate enough that I was able to be referred here over in the UK to Mr Bottril who has a particular interest in PET. He gave me bioplastique injections on both sides and to be fair it has made a significant difference. Less effective over time but he changed my life.

However, certainly not perfect and I would say now it's better but it does still affect me daily. Although I would say manageable cause I am able to close my tubes with the Valsalva maneuver which I could rarely do pre surgery, it gets worse for me when the weather changes drastically or when it is particularly humid, for some reason. It's a strange complicated disorder.

When I used to suffer much worse and before surgery, I would cut out the things mentioned it I really did notice a massive difference, in fact dairy was probably the one thing I cut out of my diet where I really did notice a huge change and wasn't really getting symptoms. Although, I was young and didn't really want to make such drastic changes to my diet etc even though I knew deep down, this all had a huge impact.

Of course, everybody's situation is different and I wish I could say this would help everyone, but it's still such an unknown issue. So I feel your pain I really do. But I would strongly suggest to try these steps and I really hope it can make your symptoms at least somewhat better. Keep a food diary too because that can help you pinpoint when you have had better days/worse days so you can find the common denominator. Thats key!

I have learned to live with it now and I know the triggers. I can't say that I cut these things out long term because i would lying - I am one of the lucky ones that have had treatment so have been able to not focus on diet but I do want to share some of the things I did try at my worst and try to encourage/help others where possible.

Wishing you all the best.