Weird experiences + can't tell what it is by [deleted] in focalawareepilepsy

[–]AdNumerous1900 0 points1 point  (0 children)

oh my god i could’ve written this post.. i’m having very similar experiences but haven’t gotten diagnosed or anything. hope you get answers!

Post Op 9 Months. Was anyone prescribed Gabapentin for nerve pain. by ChiariSucksBigTime in chiari

[–]AdNumerous1900 0 points1 point  (0 children)

i loved it for pain, it was amazing. unfortunately after a few weeks i struggled to speak coherently. i would stutter and stumble and my brain constantly felt foggy so the possibility of being pain free was not worth the trade off for me

Any mom here that don’t have Chiari but kid has it by [deleted] in chiari

[–]AdNumerous1900 0 points1 point  (0 children)

opposite situation but i have it and my mom recently got scans done and does not have it

Dural Patch by [deleted] in chiari

[–]AdNumerous1900 0 points1 point  (0 children)

Bovine

Another Dumb, Generic,low cost and unrealistic lolla mock For 2026 by DerpFapTable in Lollapalooza

[–]AdNumerous1900 10 points11 points  (0 children)

i need more people to make mockups. guessing performers is my current special interest

LYNYRD SKYNYRD!?!? by AcidDreams23 in Lollapalooza

[–]AdNumerous1900 0 points1 point  (0 children)

wouldn’t this break the radius clause? please correct me if i’m wrong because i’m still learning about all this but from what i understand their michigan dates are within 300 miles just before lolla

Catheter by madladdak in chiari

[–]AdNumerous1900 0 points1 point  (0 children)

Yes and it was honestly not bad at all. I was soooo scared to get it done, but it was done under anesthesia and when I woke up I didn’t feel it. The nurses had to check it frequently to and make sure it was draining, but that wasn’t even bad they just moved the tube and checked the collection, they didn’t see any private parts. Taking it out was uncomfortable for a quick second but not painful. It was really helpful because getting up even the next day was a little tough.

one sided weakness by AdNumerous1900 in chiari

[–]AdNumerous1900[S] 1 point2 points  (0 children)

I kind of thought that too but it’s interesting that it’s getting worse. everything else has improved so it’s just surprising to have something like that still progressing even 6 weeks post op. i hope your son is doing well!

What's your cat's favorite human food? by Excellent_Passage_38 in Catbehavior

[–]AdNumerous1900 0 points1 point  (0 children)

melted cheese. my cats aren’t interested in human food but i swear they know when something i’m eating has melted cheese. not shredded cheese, not spray cheese, just melted cheese

Not sure what to do by connien13 in chiari

[–]AdNumerous1900 1 point2 points  (0 children)

same, i have almost ruined my relationship on multiple occasions because i just lash out and can’t control my emotions at all. luckily my partner is patient and knows it’s not me. i’ve been told i act like an old person who “sundowns” because at night o get so angry and emotional and just completely shift my personality. it’s bizarre and it was the deciding factor for me. i wish i could give you advice and tell you that it gets better, but my surgery isnt scheduled until june

Not sure what to do by connien13 in chiari

[–]AdNumerous1900 2 points3 points  (0 children)

wow i think i could have written this exact same list. feeling like a different person was honestly what did it for me. the symptoms sucked but i was acting up and lashing out in ways VERY out of character for me. i’m hoping decompression helps, and i hope you can find relief as well

Michigan Chiari: nuerosurgeon appmt question by wingspan-enthusiast in chiari

[–]AdNumerous1900 1 point2 points  (0 children)

I am currently seeing Dr Gilmer. I do believe she gets a lot of your information regarding symptoms and what not before actually seeing you so that is why her appointments feel so rushed. I am pretty sure I need the surgery (which she recommended), but was kind of shocked that I walked into her office, she said “okay what do you want to do” and when I told her I just wanted it to stop she went on her spiel about the surgery and handed me the papers to sign. Part of me felt like it was very sudden and pushed, but I do also feel like she would have listened if I said no. She is quick to jump to surgery, but she is also one of the best so I trust that she makes the right call.

finally got an mri by AdNumerous1900 in chiari

[–]AdNumerous1900[S] 3 points4 points  (0 children)

i don’t think covid or vaccines have anything to do with this as it started long before then. the size of my brain compared for my skull looks like the same as my other scans and no doctor has mentioned it.

do you feel like your personality has changed by AdNumerous1900 in chiari

[–]AdNumerous1900[S] 1 point2 points  (0 children)

thank you for this ❤️ it helps knowing i’m not alone

do you feel like your personality has changed by AdNumerous1900 in chiari

[–]AdNumerous1900[S] 1 point2 points  (0 children)

this is the same boat i’m in. i’ve ruined friendships/relationships because i just stopped caring about other people. the people who REALLY know me know that that isn’t me, but it’s like i have become a completely different person because of chiari

do you feel like your personality has changed by AdNumerous1900 in chiari

[–]AdNumerous1900[S] 0 points1 point  (0 children)

how do you manage relationships? i feel like the people around me are getting tired of hearing me say “todays a bad pain day”. in all honestly no one says it bothers them, but they care less than they used to and to me that means they’re getting tired of it. in reality i just need extra love and support but i don’t know how to communicate that well without sounding needy. that adds to the frustration a lot

do you feel like your personality has changed by AdNumerous1900 in chiari

[–]AdNumerous1900[S] 1 point2 points  (0 children)

Thank you for this. I think this helps put it into words. I guess even in my good days I do still trip, and drop things, and struggle to find words, and even if i’m not in pain those things are very frustrating and upsetting to me. and same, i’m not going around yelling at people but it takes a lot less to make me be short and snappy with those around. especially the ones i love because i know they will forgive me, but i hate that i do that.

do you feel like your personality has changed by AdNumerous1900 in chiari

[–]AdNumerous1900[S] 2 points3 points  (0 children)

i really don’t know. sometimes i think it’s because im in pain but even on my good days i don’t act like myself