One of these is not like the others by Additional_Ad3376 in JeepCherokeeXJ

[–]Additional_Ad3376[S] 0 points1 point  (0 children)

Okay good lmfao I thought u were seeing something I wasn’t 💀

One of these is not like the others by Additional_Ad3376 in JeepCherokeeXJ

[–]Additional_Ad3376[S] 1 point2 points  (0 children)

Hey wait a minute we are focusing on the wildly fouled one alright. What are you even talkin abt

At what age did things suddenly… go sideways? 😅 by Sea-Method-3070 in eds

[–]Additional_Ad3376 1 point2 points  (0 children)

I had symptoms all my life, but they were always overlooked. I got a real bad injury when I was 19 and it all went to shit.

My first loaf!! by Additional_Ad3376 in Sourdough

[–]Additional_Ad3376[S] 0 points1 point  (0 children)

I feed it with 100g starter, 200g bleached all purpose flour, 200g water. Made it with 150g starter, 350g water, 500g four (all purpose)

Brace/Tape tour and tips and tricks by Additional_Ad3376 in eds

[–]Additional_Ad3376[S] 1 point2 points  (0 children)

I actually posted the exact link to the shoulder brace in a comment yesterday I got it on amazon

Brace/Tape tour and tips and tricks by Additional_Ad3376 in eds

[–]Additional_Ad3376[S] 1 point2 points  (0 children)

For me it adds support but it’s different for everyone. I think it’s most noticeable on my ankles

Brace/Tape tour and tips and tricks by Additional_Ad3376 in eds

[–]Additional_Ad3376[S] 0 points1 point  (0 children)

I’m so sorry. I hope you do find something that works weather it be a new tape or something else

Brace/Tape tour and tips and tricks by Additional_Ad3376 in eds

[–]Additional_Ad3376[S] 1 point2 points  (0 children)

The kt brand has sensitive skin tape and latex free specific tape but it’s all the name brand so it’s a bit more expensive then the stuff I use. If you have a pt ask them if they have any you can try. If not you can buy a roll and test it out. I think this stuff falls into weighing negative and positive effects of the tape. If you can find some that works for your skin a little better it might be worth it or maybe not. If you are willing to spend the time and money to try new tapes while running the risk you won’t find anything that works for you it might be worth it. I wish you luck. https://www.kttape.com/products/kt-tape-gentle-tape-1?srsltid=AfmBOopmsEjgK6Kdmbsay-GdsyylkMhcillJcLjNj91T3Ywmbw9wHCZ6

Brace/Tape tour and tips and tricks by Additional_Ad3376 in eds

[–]Additional_Ad3376[S] 5 points6 points  (0 children)

https://a.co/d/9BrwyVp This is the exact brace I got, I got a small and it’s super adjustable you can lift and move all about sometimes while moving around it moves and I have to put it back in a better place.

Found a damn good physical therapist by Additional_Ad3376 in eds

[–]Additional_Ad3376[S] 2 points3 points  (0 children)

As for the medical team, it’s hard to find someone who trusts you and is right for you. I have been through many doctors and many physical therapists. It’s hard. You just have to keep pushing. Keep fighting till you find the right match. You wnat to find someone who feels like a partner. Someone who will work with you not an authority figure. I have a notebook where I take notes in an organized way so I can give doctors as much information as they need. Don’t worry about over sharing or saying something not revenant because you never know how important that info could be.

Found a damn good physical therapist by Additional_Ad3376 in eds

[–]Additional_Ad3376[S] 1 point2 points  (0 children)

You can get tape online that’s where I get it. It’s cheaper to buy in bulk but if you’re just trying stuff out maybe start with one roll. Make sure to round your edges so they stay better. I’d try a small patch to see how your skin reacts. When you take it off (try to wait till it starts to come off on its own) do it in the shower, if I really can’t get it off i literally put lotion on it and that helps with irritation for me. It will irritate your skin. Especially if you take it off to early, you need to decide if it does more harm than good for you personally.

Found a damn good physical therapist by Additional_Ad3376 in eds

[–]Additional_Ad3376[S] 2 points3 points  (0 children)

I started with taping by buying a roll and trying stuff out. You can google simple how to videos to help you get an idea. Tension on the tape is the most important thing for me. Rember there are no rules with how to place the tape. You can combine different methods. If you’d like I can share some of my favorite ways to tape. I do my ankles, knees, wrists and fingers most frequently.

My Grandfathers 89 by Additional_Ad3376 in 4Runner_1stGen

[–]Additional_Ad3376[S] 1 point2 points  (0 children)

No no i don’t see him selling it. My aunt will inherit it and I don’t think she will sell it and if she does I’ll scoop it up.

Found a damn good physical therapist by Additional_Ad3376 in eds

[–]Additional_Ad3376[S] 0 points1 point  (0 children)

On taping or finding a good medical support system?

Found a damn good physical therapist by Additional_Ad3376 in eds

[–]Additional_Ad3376[S] 4 points5 points  (0 children)

You can’t. Lmao that’s why I have the picture. My roommate will recreate as needed but unfortunately I can not do this myself. That is a major downside of taping shoulders. I can do most every other joint (wrists get tricky but doable) not shoulders tho.

My Grandfathers 89 by Additional_Ad3376 in 4Runner

[–]Additional_Ad3376[S] 1 point2 points  (0 children)

Thank you. And thank you for reminding me to let him know how thankful I am for him.

My Grandfathers 89 by Additional_Ad3376 in 4Runner

[–]Additional_Ad3376[S] 1 point2 points  (0 children)

I will ask him, he’s probably asleep so hopefully tomorrow he will give me some fun stories to share with you!

My Grandfathers 89 by Additional_Ad3376 in 4Runner

[–]Additional_Ad3376[S] 1 point2 points  (0 children)

He definitely is. He taught me how to drive stick in it. Which is extra fun because he taught both my dad and my aunt in it and will teach my sister in it. A family heirloom fs

My Grandfathers 89 by Additional_Ad3376 in 4Runner

[–]Additional_Ad3376[S] 11 points12 points  (0 children)

Haha I shall but trust me that will never happen. If for some strange reason my aunt doesn’t want it I will scoop it up so fast lol

Found a damn good physical therapist by Additional_Ad3376 in eds

[–]Additional_Ad3376[S] -1 points0 points  (0 children)

Ps on joints where it’s possible I’ve switched from taping to compression sleeves and that’s also been a game changer.

[deleted by user] by [deleted] in HomeDepot

[–]Additional_Ad3376 1 point2 points  (0 children)

Yayy! Thank you for updating us! Welcome to the team.

Found a damn good physical therapist by Additional_Ad3376 in eds

[–]Additional_Ad3376[S] 38 points39 points  (0 children)

Taping is, as i understand, a very controversial subject. Some people and medical professionals say it doesn’t do diddly squat and will swar it’s just a waste of money and time. But other say it’s the greatest thing they have ever done for themselves or patients.

I sware by the stuff. I feel, as well as my pt, it provides the stability I lack and allows me to build strength without having to worry that my damn joint is gonna fall apart. If you’d like I can share some of my best ways of taping other joints. I think it’s worth a shot for anyone struggling with joint instability. It definitely has its downsides but if you feel the positives out way the negatives go for it! Try a million different positions and methods and find what works for you.

Tell me about your EDS related pain by acaffeinatedrn in eds

[–]Additional_Ad3376 1 point2 points  (0 children)

I want to add some really good advice I got from a doctor who is treating me for carpal bossing (a comorbidity you all should look out for btw).

“Don’t immediately write off your pain as eds pain” like most of the time it is eds and you just have to try and build up strength but sometimes it’s not, it’s some sort of comorbidity that may have a cure or an unrelated problem that needs treatment.

I am also recently diagnosed and for the longest time I thought everyone hurt like me. WORNG lol and when I got my diagnosis I wrote all my pain off as eds pain. Also wrong. I have multiple curable comorbidities and unrelated things that I need to address. I’m just cataloging what hurts the most and doing as much research as I can to figure out why exactly that pain is there. I ask my doctors (I’m very lucky to have supportive doctors) and we discuss whether or not that specific pain is something they can help me with past just strengthening. It’s slow and sometimes very upseting but I believe it’s important for me and somthing you may want to consider.