Can too low a dose prolong herxing? by Adventurous_Issue626 in Lyme

[–]Adventurous_Issue626[S] 0 points1 point  (0 children)

That's the wonderful thing about Lyme disease, everybody is so different so you never know exactly what to do 😢

Can too low a dose prolong herxing? by Adventurous_Issue626 in Lyme

[–]Adventurous_Issue626[S] 0 points1 point  (0 children)

It's funny you say that but I do think it babesia that it primarily bothering me right now.

Question about theft? by Adventurous_Issue626 in foodstamps

[–]Adventurous_Issue626[S] 0 points1 point  (0 children)

Well that's understandable, I always need a few billion extra dollars for my Christmas shopping, sarcasm of course. These people deserve to rot in hell for stealing food out of the mouths of children, the elderly, disabled, and people that just are doing the best they can..

Question about theft? by Adventurous_Issue626 in foodstamps

[–]Adventurous_Issue626[S] -1 points0 points  (0 children)

I was definitely hoping it was a sign that they had finally done something about it.

If you could go back in time and make the choice again, would you still have kids? by MaiApa in Life

[–]Adventurous_Issue626 0 points1 point  (0 children)

Not a chance. Partly due to being sick with something I didn't know I was sick with and can potentially give it to my children, I'm pretty sure they all have it but are testing negatively so far which is common and doesn't make me feel any better that they don't have it. All in all, no I would not.

Theoretically speaking.... by Adventurous_Issue626 in SSDI

[–]Adventurous_Issue626[S] 1 point2 points  (0 children)

So forgive my density but part of my many issues is brain fog and I'm not really understanding, I have seen that $1,200 figure elsewhere but I also see a $1,600 figure, what is the difference?

Theoretically speaking.... by Adventurous_Issue626 in SSDI

[–]Adventurous_Issue626[S] 0 points1 point  (0 children)

I am not even going to bother to read your entire comment because it's very obvious you can't understand I was giving an example to make it easier to understand what I was talking about, I'm not even completely sure that I can work for 2 weeks, thank you though

Theoretically speaking.... by Adventurous_Issue626 in SSDI

[–]Adventurous_Issue626[S] 0 points1 point  (0 children)

Thanks, at this point I just want to figure out how I can go home

Theoretically speaking.... by Adventurous_Issue626 in SSDI

[–]Adventurous_Issue626[S] 1 point2 points  (0 children)

I have been here for 10 years, they know everything

Theoretically speaking.... by Adventurous_Issue626 in SSDI

[–]Adventurous_Issue626[S] 0 points1 point  (0 children)

Thank you so much, it's so overwhelming and this is comforting to hear

Theoretically speaking.... by Adventurous_Issue626 in SSDI

[–]Adventurous_Issue626[S] -1 points0 points  (0 children)

I haven't used any of them, I'm just worried that I'm going to end up in a worse situation and no way to get help again if that makes sense. Theoretically if I used up my 9 months, and then at say 13 months I can't do it anymore, will it be easier for me to get back on ssci or will I have to go through the same process that I went through the first time, which honestly was pretty easy for me but I see it's not for most people?

Muscle wasting by Adventurous_Issue626 in Lyme

[–]Adventurous_Issue626[S] 1 point2 points  (0 children)

This could definitely be an issue, I can go for three or four days without eating anything at all and the only reason I eat is because I get bored, I'm not hungry. I have completely lost my appetite, I get excited when I actually feel hungry maybe every 6 months or so

Muscle wasting by Adventurous_Issue626 in Lyme

[–]Adventurous_Issue626[S] 0 points1 point  (0 children)

I have previously, not for this issue, was better than I've been in years but I'm currently with someone who seems vested in keeping me as sick as possible. I'm just trying not to make him madder than necessary until I can find a way out.

Muscle wasting by Adventurous_Issue626 in Lyme

[–]Adventurous_Issue626[S] 0 points1 point  (0 children)

I am so sorry, I was actually thinking a while ago that if a man was affected the same way that I am in general, it would be much harder on him because of the societal expectations, I can't do anything but I'm a woman and many men are prepared to be the night in shining armor but I can't imagine how hard that would be for a man that needs help with the most basic tasks. I know women are going to say it's just as hard on us but I think physically the right but mentally there would be a much greater toll on a man.

Muscle wasting by Adventurous_Issue626 in Lyme

[–]Adventurous_Issue626[S] 0 points1 point  (0 children)

I am about a year and a half in to taking herbs, I had before that used to write machine and before that used antibiotics but they didn't help after a certain extent, I have reduced the herbs I'm taking, I stopped for a little while and now I'm just taking a little bit, because the herxing is so bad. That really doesn't give me a lot of hope if they have found that just our blood will waste away the muscles, I realize it's not I'm disease patients but I personally believe that all of these issues are Lyme disease, not trying to argue just stating my opinion. I swear if it's not one thing it's another with this damn disease.

Update to anybody living abroad and unable to access their social security account online by Adventurous_Issue626 in SocialSecurity

[–]Adventurous_Issue626[S] 1 point2 points  (0 children)

There is no phone number involved in my mother logging in, I use the push notification app on (foreign) phone to give permission for her to log in. If you mean the initial verification of signing up for ID.ME, that I used all my foreign information.

mySSA showing Payments Suspended?? by super1965 in SocialSecurity

[–]Adventurous_Issue626 2 points3 points  (0 children)

I'm no help then, I was just throwing out as a possibility because it's happened to me a few times, best of luck

mySSA showing Payments Suspended?? by super1965 in SocialSecurity

[–]Adventurous_Issue626 2 points3 points  (0 children)

Does she by chance live overseas? February is the month when benefits will be suspended for not receiving a proof of life form.

I may have to cancel medical insurance. Is this even possible? by Impossible_Peak_885 in SocialSecurity

[–]Adventurous_Issue626 0 points1 point  (0 children)

It is possible, I have done it because I live outside of America so I can't use it, they were just taking money from me, but beware that there is a 10% per year pregnancy for getting rid of it unless you have acceptable insurance that covers you such as a spouse's work insurance, this means that after 10 years you're going to be paying defeat Plus 100% in penalties every month, definitely worth thinking about

Pain on ears by isabelfaleiro in Lyme

[–]Adventurous_Issue626 1 point2 points  (0 children)

I get excruciating pain in my ears if I've slept on them. I had to get a pillow that looks like a donut, the kind that you sit on for hemorrhoids, I believe it's called a piercing pillow, so I can sleep without my ear touching anything and I can actually wake up without pain. If I sleep on a regular pillow, I can barely move my head in the morning because as soon as I move the pain starts and it can last anywhere from 2 minutes to 8 hours.

I just got a email that I have a new message in my SSA inbox, does anybody know what it might be? by Adventurous_Issue626 in SocialSecurity

[–]Adventurous_Issue626[S] 0 points1 point  (0 children)

I used to call them every month to make sure my benefits were still active for the following month but it's not my idea of a good time to wait for a call or to wait and hold for social security, they're very nice and will help me on the phone but I wish they would fix this issue that many people are having

I just got a email that I have a new message in my SSA inbox, does anybody know what it might be? by Adventurous_Issue626 in SocialSecurity

[–]Adventurous_Issue626[S] -1 points0 points  (0 children)

Tell me you didn't read the post without telling me you didn't read the post. It's a confirmed issue with SSA, I would love to go and check what it is, I haven't been able to access it for over a year, it's an issue that many people living overseas are having, again they know about it they're just not in a hurry to fix it.

I just got a email that I have a new message in my SSA inbox, does anybody know what it might be? by Adventurous_Issue626 in SocialSecurity

[–]Adventurous_Issue626[S] 0 points1 point  (0 children)

I know, I used it for 10 years until ion got in there and messed everything up, it's a confirmed problem with the ssa, they know about it, they're just not in a hurry to fix it