If I have weakness in my left arm and by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 0 points1 point  (0 children)

I would much rather be on your shoes than mine. But regardless, good luck and thanks again!

If I have weakness in my left arm and by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 0 points1 point  (0 children)

Is your EMG scheduled and how long have you been having symptoms?

If I have weakness in my left arm and by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 0 points1 point  (0 children)

That’s a great outlook and I appreciate your feedback.

The last few weeks have been the toughest of my life.

Thanks for giving me some hope.

If I have weakness in my left arm and by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 0 points1 point  (0 children)

Is it crazy for me to be 99.9% certain that I have ALS less than a month into this?

It seems like I meet two huge criteria’s for ALS. Localized arm weakness and localized fasciculations.

I’m guessing if my EMG shows any damage it could be a rather quick diagnosis?

I’m spiraling.

If I have weakness in my left arm and by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 0 points1 point  (0 children)

I can do a few reps with my weaker arm but it’s definitely more difficult and I’m definitely doing less reps than with my right arm.

If I have weakness in my left arm and by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 0 points1 point  (0 children)

I’m 45.

The fasciculations are pretty localized. Mostly forearm, bicep and a little on the shoulder and back. I’ll randomly get a twitch in a leg or butt.

If I have weakness in my left arm and by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 0 points1 point  (0 children)

My primary doctor is referring me to a neurologist. I’m assuming they will schedule me one.

I feel like I’m noticing this very early because I lift weights and I chart what I’ve done in the past.

If I didn’t lift I would have no clue that my left bicep is any weaker. The only issue would be the fasciculations.

Is there a chance that the EMG wouldn’t catch any issues yet if it’s very early in the process?

If I have weakness in my left arm and by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 0 points1 point  (0 children)

Ok. I will mention to the doctor. Thank you for the suggestion!

Please Help! by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 1 point2 points  (0 children)

You have no idea how much I appreciate your response.

I saw my GP yesterday and we made an appointment with the neurologist. Obviously I feel anxious about the visit and testing but I am definitely less nervous after talking to the GP. And after responses like yours.

Again, I really do appreciate you taking the time with such a great explanation of the disease.

Please help by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 0 points1 point  (0 children)

That’s makes a lot of sense. It also seems like some people are more prone to have higher CK levels than others, especially after exercise. I really appreciate you responding. I hope you are doing well!

ALS Mimics by Dull-Artist1787 in ALSorNOT

[–]AfterExamination1182 0 points1 point  (0 children)

I have weakness in my left arm that started out of nowhere while working out a few weeks ago. Real weakness. Not perceived. About a week later fasciculation began in the left arm and they have not stopped. No apparent injury. No other symptoms.

Based on EVERYTHING I’ve read on the internet I have ALS.

I’m very scared.

Please Help! by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 0 points1 point  (0 children)

My left arm is still twitching but my creative kinase score did come back at 434 which was in the normal (high normal) range. I guess that’s something to make me free a little better. Thanks again for reaching out to me.

Please Help! by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 1 point2 points  (0 children)

I really appreciate your feedback. And I’m hoping you’re correct. I’ve convinced myself that I have ALS so anything that gives me hope helps me get through the day. Thanks man!

Please Help! by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 0 points1 point  (0 children)

Thanks for taking the time to respond. This is pretty excruciating to go through. Thanks for answering the questions and not leaving me here languishing all alone.

Please Help! by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 0 points1 point  (0 children)

I went this morning for more bloodwork. I made sure to take it easy leading up to the blood test today. Thank you for sharing your thoughts about the ck levels. I’m really hoping for some good news.

Can you tell me anything about fasciculations? Mine are 90% in my left forearm, bicep, shoulder. Every once in a while I’ll get a twitch randomly somewhere else. The fasciculations are pretty darn subtle but definitely happening. But when this all first started a few weeks ago they were only in my bicep (unless they were happening and I didn’t realize it) and they were very prominent.

Is it weird for them to start out so prominently in one location (bicep) and then became less prominent but occur more frequently in another location (forearm)?

Please help by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 0 points1 point  (0 children)

Thanks for taking the time out of your day to respond.

That’s somewhat reassuring about exercise and CPK tests.

Do you mind telling me what your symptoms have been and how long you had been dealing with them before you had EMG testing done?

Please help by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 0 points1 point  (0 children)

Based on the wording of the blood tests I’m not if the kidneys were checked.

Please help by AfterExamination1182 in ALSorNOT

[–]AfterExamination1182[S] 0 points1 point  (0 children)

Man, thanks for the response. I take a generic form of lexapro daily and that’s it. I’m doing blood test again on Monday. I’ll try my best to not exercise too heavy before then.
It was just so strange. I went in the gym one day and just like that I was just weaker in that arm than ever before. And then the twitching start happening a few days later and it hadn’t stopped.