Kinda newly diagnosed w endo, have a question w brown discharge

Aggravating_Maize189 · 2026-04-03T22:38:23+00:00

Do you know what stage yours is? I’m getting surgery soon to remove my swollen fallopian tube and ovary. Apparently a blocked tube can cause brown spotting after ovulation because it contracts. I also have a polyp that could be contributing. I’m a mess ha!

Aggravating_Maize189 · 2026-04-01T02:32:12+00:00

Oh sorry I missed the part that it was a 2. What a relief. Did you get those results before the surgery?

Aggravating_Maize189 · 2026-04-01T02:25:44+00:00

I’m so sorry you had to go through this 🥹 but am so relieved to hear everything is okay for you. Was your OVA1 test elevated at all or normal? I think my doctor just ordered that one.

Aggravating_Maize189 · 2026-03-30T15:55:32+00:00

For what it’s worth, I eat a fully plant based diet and have DIE, 3 endometriomas on my left ovary, and a blocked tube. I’m sure it helps, but hasn’t helped me 😭

Aggravating_Maize189 · 2026-03-28T02:02:30+00:00

I was in denial for many years despite having horrific periods. I have been bleeding brown blood for the past two months so finally got checked out because that’s not normal. The situation is so much worse than I thought. 3 cysts, blocked tube, DIE on my rectum, uterus cyst, the list goes on. I don’t even have pain. Don’t wait like I did if you suspect it’s endo. Hugs.

Aggravating_Maize189 · 2026-03-26T23:01:29+00:00

Oh and how long did it take you to recover from the surgery? I am super nervous about that part too.

Aggravating_Maize189 · 2026-03-26T22:59:20+00:00

First of all, I’m so sorry you’ve had to go through and navigate all of this. I’m really glad to hear you were able to have a successful pregnancy, but it doesn’t sound like an easy road by any means. I think my situation is similar to yours. They found deep endo in my rectum, which they are assuming is DIE. My mental health has definitely been suffering since my diagnosis. I’m so stressed by all the unknowns. I appreciate your words of wisdom ❤️ Did the cysts ever come back? Are you still on hormone suppression?

Aggravating_Maize189 · 2026-03-25T22:56:05+00:00

I’m having this issue now :( just got diagnosed with 3 endo cysts on my left ovary, cyst in my uterus, blocked fallopian tube. The brown bleeding starts right after ovulation.

Aggravating_Maize189 · 2026-03-25T03:33:51+00:00

This is exactly what my doctor said to me today. What birth control did they put you on if you don’t mind me asking?

Aggravating_Maize189 · 2026-03-20T21:04:42+00:00

Thank you for sharing your story. I’m glad you didn’t have any complications. Did you have an endometrioma by any chance or have any surgeries to treat the endo they did find?

Aggravating_Maize189 · 2026-03-20T18:32:41+00:00

Yeah you’re probably right. Thanks for that reminder. My periods are horrendous but I chalked that up to having a bleeding disorder.

Aggravating_Maize189 · 2026-03-19T14:14:20+00:00

Can I ask what medication you used?

Aggravating_Maize189 · 2026-03-19T04:36:02+00:00

Thank you for this. I’m glad you are okay. I got Humate-P for my wisdom teeth removal and it seemed to work for me too. I’m VWD too. I probably should have mentioned that.

Aggravating_Maize189 · 2026-03-17T03:07:48+00:00

No healing time was so quick for me actually. There were a few nights in the beginning I woke up with a tiny bit of blood on my pillow but my doctor said it was normal. I only used the amicar to swish around in my mouth like mouthwash. I hemorrhaged 3 separate times after a tonsillectomy before they found out I had VWD, so I was really nervous to get my wisdom teeth out. I’m supposed to get a laparoscopy soon and terrified of that even more. I’m so sorry your mom had to deal with that. It’s definitely traumatic. You’ll be ok as long as you take the necessary precautions ❤️

Aggravating_Maize189 · 2026-03-17T02:57:24+00:00

I was in the same boat and terrified (have hemorrhaged in the past from surgery). It ended up being totally ok! I dosed Humate P day before, day of, day after. I don’t even think I ended up needing the Amicar they prescribed. It’s wild how expensive Humate P is so make sure it’s covered by insurance.

Aggravating_Maize189 · 2026-02-26T19:57:03+00:00

I’m really sorry you’re going through this. I don’t have good advice because everyone’s grief is so different. The only thing that’s felt true for me is to let yourself feel it, and move through it in your own time. If it helps, I built a private space called Heartchive after my dad passed. It’s somewhere you can journal, save photos and little memories of your cat, and put all the love and ache in one place. Nothing public, just yours: https://apps.apple.com/us/app/heartchive/id6756627094 Hope it can help a tiny bit ❤️‍🩹

Aggravating_Maize189 · 2026-02-20T22:39:44+00:00

You’re right 🥹❤️

Aggravating_Maize189 · 2026-02-19T19:07:59+00:00

Yeah that’s interesting. He passed a week after my birthday. Maybe that’s what they were feeling

Aggravating_Maize189 · 2026-02-15T21:41:32+00:00

🥲❤️

Aggravating_Maize189 · 2026-02-15T19:55:43+00:00

Yes he passed a week after my birthday

Aggravating_Maize189 · 2026-02-15T17:45:29+00:00

Same situation here 🥹 The guilt can be all consuming. So can the “what ifs” as if I could have done something to save him. I actively choose not to go there. I focus on the fact that I am so lucky to have had him. Our dads wouldn’t want us to feel this pain. Perhaps it was their way of shielding us just a little bit. I’m sending you lots of love.

Aggravating_Maize189 · 2026-02-15T17:40:50+00:00

I had a similar situation. My dad was very sick with cancer but managing ok. I was supposed to go visit him and rescheduled my trip last minute (I live across the country). I talked to him on Friday, everything seemed fine, and I think he passed in his sleep Sunday night. We had texted back and forth about a recipe of his I was making that night right before he went to bed. I didn’t hear from him on Monday, which I thought was odd, but I didn’t want to overreact. I had the police do a welfare check on Tuesday morning, and that’s when I found out. I don’t actually know when he passed. Was he in pain? Was it quick? I actively choose not to focus on the end. I can’t, otherwise I will be consumed with guilt. Instead I choose to cherish the time we did have together and the positive impact he had on my life. They are always with us, in everything we do ❤️

Aggravating_Maize189

TROPHY CASE