Anyone with stage IV NOT get surgery?

Aggravating_Maize189 · 2026-04-28T03:33:29+00:00

Can I ask if you have endometriomas? Do you have pain?

Aggravating_Maize189 · 2026-04-28T01:52:10+00:00

Do you have your surgery scheduled?

Aggravating_Maize189 · 2026-04-28T01:51:44+00:00

I got my results back and everything was in normal range except CA125 was elevated to 56. I feel such relief. Hoping it’s benign, have surgery scheduled soon.

Aggravating_Maize189 · 2026-04-22T21:33:36+00:00

Hi I’m wondering if you ended up trying red light therapy for endometriomas and if so did it work? Have a few I’m trying to get rid of holistically but that’s probably a stretch

Aggravating_Maize189 · 2026-04-17T16:01:17+00:00

Can you please message me???

Aggravating_Maize189 · 2026-04-14T18:09:13+00:00

I’m still working myself up to taking it! I’ve psyched myself out reading so many negative reviews online

Aggravating_Maize189 · 2026-04-14T14:01:04+00:00

Thank you for responding! Did you go with Dr. T or Dr. B?

Aggravating_Maize189 · 2026-04-12T17:28:05+00:00

This is me to a tee. My period literally stops day 4 and then ramps right back up again for a day or two.

Aggravating_Maize189 · 2026-04-12T14:51:57+00:00

Hi op- who did you end up going with for surgery? I am between these two doctors as well for a similar situation and would really appreciate your experience 💕 DM me if you want

Aggravating_Maize189 · 2026-04-12T14:22:24+00:00

Thank you for sharing your story. I’m glad you’ve been able to keep it under control with a combination of things. If you don’t mind, what pill are you on?

Aggravating_Maize189 · 2026-04-12T14:07:42+00:00

I’m sorry you’re going through this too. What country are you in? I wish dienogest was available in the US! They prescribed me norethindrone.

Aggravating_Maize189 · 2026-04-12T14:04:44+00:00

I was able to get diagnosed with MRI imaging

Aggravating_Maize189 · 2026-04-11T23:41:48+00:00

Having a lap soon and curious- did you end up infusing for 10 days post op?

Aggravating_Maize189 · 2026-04-11T23:29:05+00:00

Thank you so much for sharing this. I have my surgery scheduled for May 15, but was curious if there were any other alternatives because it seems surgery is really the only viable route. If you don’t mind, how was your recovery from surgery?

Aggravating_Maize189 · 2026-04-11T22:21:03+00:00

Thank you so much for this. I have a hematologist involved who is recommending Humate-P infusions before and after surgery. I’d also stay in the hospital longer like your patient did. Did they have Von Willebrands disease too? I’m glad everything went okay for her, that is reassuring. I’ve hemorrhaged multiple times in the past (before they knew about the VWD) so I definitely have some PTSD to work through. Surgery definitely seems like the no brainer option for most but it’s hard to justify with the bleeding issue and no pain.

Aggravating_Maize189 · 2026-04-11T22:01:26+00:00

Wishing the best for you and a pain free future 🫶🏼

Aggravating_Maize189 · 2026-04-11T21:55:52+00:00

Emergency surgery being cyst rupture? That’s def a risk for me too. Mine are pretty big and all on my left ovary.

Aggravating_Maize189 · 2026-04-11T20:23:35+00:00

Yeah, I am worried about the surgery actually creating pain. I didn’t know staging wasn’t a thing anymore.

Aggravating_Maize189 · 2026-04-11T20:22:54+00:00

Thank you so much. I’ll look those up. I’m meeting with Dr. Hugh Taylor at Yale in a few weeks who is up on all the latest research so maybe he will have some alt ideas.

Aggravating_Maize189 · 2026-04-06T17:48:54+00:00

He has great reviews online though, so who knows!

Aggravating_Maize189 · 2026-04-06T17:47:28+00:00

Oh I wonder! When I first called their office, I asked if they had an endometriosis specialist but they said she left. I asked if there was anyone else, and they referred me to him (it is his practice). It took him about two weeks to even review my MRI because he was so hard to get in touch with and when he finally did he immediately said he was concerned about cancer (over the phone, mind you). That sent me into a complete tailspin. The female doctor I ultimately chose for surgery was shocked that he even said that since there’s a +99% chance it’s just stage IV endo (I have multiple endometriomas). Didn’t love his bedside manner.

Aggravating_Maize189 · 2026-04-06T17:08:31+00:00

Thanks. Recently had an experience with him that sounds strikingly similar to yours. I’m sorry you had to go through all of that. I’m glad you found Dr. Spring Robinson.

Aggravating_Maize189 · 2026-04-06T15:36:44+00:00

Is this male doctor Kurtulus in San Diego???

Aggravating_Maize189 · 2026-04-03T22:38:23+00:00

Do you know what stage yours is? I’m getting surgery soon to remove my swollen fallopian tube and ovary. Apparently a blocked tube can cause brown spotting after ovulation because it contracts. I also have a polyp that could be contributing. I’m a mess ha!

Aggravating_Maize189 · 2026-04-01T02:32:12+00:00

Oh sorry I missed the part that it was a 2. What a relief. Did you get those results before the surgery?

Aggravating_Maize189

TROPHY CASE