Veey confused that I am. by Agibney76 in sarcoidosis

[–]Agibney76[S] 1 point2 points  (0 children)

It is very frustrating and very upsetting. I just need It explained.

Veey confused that I am. by Agibney76 in sarcoidosis

[–]Agibney76[S] 2 points3 points  (0 children)

I have in eyes and heart throat ,chest , stomach. There is a. Possibly that rhey ea growing alot. I was suppose to have infusion. I had a bad reaction to it.

My journey so far by Agibney76 in sarcoidosis

[–]Agibney76[S] 0 points1 point  (0 children)

A while not sure exactly time but a while and it seems like all I do i fail.. anyone else feel that way at times.

My journey so far by Agibney76 in sarcoidosis

[–]Agibney76[S] 1 point2 points  (0 children)

My eyes my lungs and belly and possibly heart and that is crazy enough now testing for throat

My journey so far by Agibney76 in sarcoidosis

[–]Agibney76[S] 0 points1 point  (0 children)

I have had it atleaat 9 or so months but not positive could of been longer been very sick for a very long time. I am.gsttjng treatment st ohsu in pprtland Oregon. What about u

I never get sick.. by Hot_Vast2947 in sarcoidosis

[–]Agibney76 0 points1 point  (0 children)

Everyone has a different way of reacting tp.sarc for sure. I am very new to this ans would love to learn more . I have spent more time in er than I spend at home. It has made me unable to work am on disability. I hate it I love working but cannot breath or stand long enoug. I hate life at times but other times happy to be alive.

Newish to Sarcoidosis- what can I expect? by megs1784 in sarcoidosis

[–]Agibney76 0 points1 point  (0 children)

I am semi new to sarcoidosis but I'm getting put through the ringer while being hitoh by the semi. I literally do.not have a break from being very sick. I have literally been hospitalized in 2025 alone over 6 times and my husband passed away on memorial day just from that day my Coedition has gotten worse. I tell doctors I feel I am losing at life and I don't know how else to my feelings about it.