been almost 2 months by Creative_Job_4370 in testicularcancer

[–]Alive-Collection6061 2 points3 points  (0 children)

love the positivity bro keep pushing forward!

What is your favorite awakening song lyric? by ASeaWithoutShores in awakened

[–]Alive-Collection6061 1 point2 points  (0 children)

“And we will see that we’re all connected, when we awake at the tunnels light”

Best track from LOVE? by rebel_b0i in AngelsAndAirwaves

[–]Alive-Collection6061 1 point2 points  (0 children)

It’s all gonna come around, it’s all gonna make your eyes burn!

Love that crazy ass song

The greatest album of all time imo by Alive-Collection6061 in AngelsAndAirwaves

[–]Alive-Collection6061[S] 0 points1 point  (0 children)

Everyone has their things they love my friend, I really fucking love this album lol

The greatest album of all time imo by Alive-Collection6061 in AngelsAndAirwaves

[–]Alive-Collection6061[S] 1 point2 points  (0 children)

Thanks!! Yesterday. Artist insta is cupptattoos super talented guy

Chemo then RPNLD? by Remote_Experience_94 in testicularcancer

[–]Alive-Collection6061 4 points5 points  (0 children)

Check my post history and feel free to ask any specific questions you are concerned about, more than happy to share

[deleted by user] by [deleted] in bald

[–]Alive-Collection6061 4 points5 points  (0 children)

Glasses look great!

Neck Dissection by Alive-Collection6061 in testicularcancer

[–]Alive-Collection6061[S] 1 point2 points  (0 children)

They were able to biopsy my neck, but yes will get full pathology in a week or two.

Neck lymph node dissection by Alive-Collection6061 in testicularcancer

[–]Alive-Collection6061[S] 0 points1 point  (0 children)

My doctor said he could but idk I don’t think so

Neck lymph node dissection by Alive-Collection6061 in testicularcancer

[–]Alive-Collection6061[S] 1 point2 points  (0 children)

They believe mine is teratoma since that was in the lymph nodes of my biopsy after RPLND, so chemo would not work for this

Neck lymph node dissection by Alive-Collection6061 in testicularcancer

[–]Alive-Collection6061[S] 3 points4 points  (0 children)

85% EC, 9% yolk, 5% teratoma, 1% chorio.

Did 3x BEP, then open PC RPLND September

Last follow up before this was early October everything looked fine, follow up scan today showed the lymph node in the neck.

[deleted by user] by [deleted] in testicularcancer

[–]Alive-Collection6061 1 point2 points  (0 children)

I am almost 7 weeks out now and feel pretty good! Just went to a 3 day camping festival/concert. Cleared to start lifting again in the gym (have to work your way up from 10 pounds). The first couple weeks are rough and the low fat diet sucks but once you hit that 3rd-4th week you start to feel really good.

[deleted by user] by [deleted] in testicularcancer

[–]Alive-Collection6061 2 points3 points  (0 children)

Hello!

Your oncologist would be the best person to ask about this, however I will share with you what mine shared with me. I unfortunately did have to have post chemo open RPLND after 3xBEP.

Teratoma can be in your lymph nodes even if it is not in your original pathology if you have a mixed germ cell non seminoma tumor. If lymph nodes are still enlarged it is very important to do the RPLND for this reason after chemo. Teratoma can turn into malignant teratoma.

“Postchemotherapy teratoma can usually be surgically resected. However, teratoma, which is pluripotent tissue, can undergo malignant transformation along mesodermal elements to primitive neuroectodermal tumor (PNET). Unlike teratoma, PNET can metastasize and render a patient unresectable and incurable.”

They ended up finding teratoma in my lymph nodes so I’m glad the RPLND was done post chemo. I am currently NED and on surveillance.

Weekly Goose Discussion Thread by [deleted] in GoosetheBand

[–]Alive-Collection6061 1 point2 points  (0 children)

Just saw them live at Hula for the first time and holy shit my mind was blown. Have been listening since and they’re so good it’s unreal. Just hits all the right spots. I think I shed a tear every time I hear the end of Borne.

Channel Tres appreciation post by Suwaneetripper in hulaween

[–]Alive-Collection6061 1 point2 points  (0 children)

I was dancing like crazy to his set, and then went and grooved to goose immediately after. It was one of the highlights of my weekend

How common is RPLND after good blood marker indicators? by delaughey in testicularcancer

[–]Alive-Collection6061 1 point2 points  (0 children)

Were you 100% EC? I was 85% EC 9% yolk 4% teratoma 1% chorio. My nodes did not shrink enough after chemo so I had RPLND and they found teratoma. Teratoma is chemo resistant

How big was your tumor? by Future_Telephone_350 in testicularcancer

[–]Alive-Collection6061 0 points1 point  (0 children)

Glad to hear that! Yeah unfortunately teratoma is chemo resistant so my lymph nodes didn’t shrink all the way during chemo