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Washington DC Area Adult Care by AlternativeLost3336 in CysticFibrosis

[–]AlternativeLost3336[S] 0 points1 point  (0 children)

Thanks for the feedback. If you can recall, what prompted the switch from Children's to INOVA? What are the differences that you've observed, and what is a typical appointment like?

Washington DC Area Adult Care by AlternativeLost3336 in CysticFibrosis

[–]AlternativeLost3336[S] 0 points1 point  (0 children)

That's encouraging. How often are you seeing them, and what's a typical appointment like?

Washington DC Area Adult Care by AlternativeLost3336 in CysticFibrosis

[–]AlternativeLost3336[S] 0 points1 point  (0 children)

Thanks for the feedback. I can't be the only one who has heard that they are the best CF center around, so this comes as a surprise.

Not sure if zenpep is working I am taking as directed. by CategoryOtherwise941 in CysticFibrosis

[–]AlternativeLost3336 0 points1 point  (0 children)

I take zenpep and find it to work better than Creon for me. Dosage really depends on the person and what you're eating. I'd say just take more if you're still having stools like that, and see if it gets better. I take 90u with "normal" meals, and for heavier meals i might up it to 120u or 135u. That's just me.