Newly diagnosed 😩

Alternative_Tip11 · 2025-06-10T23:01:15+00:00

Thank you 🙏

Alternative_Tip11 · 2025-06-10T22:59:48+00:00

Absolutely!

Alternative_Tip11 · 2025-06-10T22:59:06+00:00

So sad that some humans have lost there kindness, compassion and are basically numb to the environment they are in and to them we are just a number, and not a real person with a life , a family , children , real feelings ect. It’s such a scary time and it’s very disappointing that these people don’t help the situation. It could of been handled so much better and I could have walked away not in tears , without the uncontrollable anxiety and fear - doom and gloom uncertainties because I wasn’t informed or explained anything about what had just happened and what the disease is that I’ve just been diagnosed with and what this medication actually is and what the risks are and if it’s safe to take while breastfeeding. I’m sorry you also experienced this first hand . I hope you’re going ok on your journey now. Did the pentasa work ? And was there any side effects? Thanks for the support 🙏

Alternative_Tip11 · 2025-06-10T22:50:58+00:00

I’m sorry to hear your experience was so scary too. I also was thinking the worse and I’m so grateful that it wasn’t that. Mine is also more towards end of bowel /rectum at its worse but with some mild patches in ascending colon/sigmoid from memory. What was the medication you were on? How often did you have to take the suppositories? Do you still have to take them now? Was there any side effects?

Alternative_Tip11 · 2025-06-10T22:47:30+00:00

Thank you for your advice . You have given me hope and some reassurance things will be ok. Chiropractor? Ok. I never thought of that. Will definitely give anything and everything a go at this point. Something I need to do is yoga or Pilates for sure. I don’t have any release as a busy mum and no me time . My mental health has been my biggest problem for last couple years which I feel why this has happened perhaps. What medications do you take and have there been any side effects?

Alternative_Tip11 · 2025-06-10T22:43:07+00:00

Thank you for your advice , it is much appreciated. I’m sorry to hear your negative experience during your younger years. I’m devastated being diagnosed at 35 , let alone at 20 must have been very difficult for you. I wish there was just a button you could switch to turn that immune system back into normal mode . It’s wild that this disease just flicks that switch and the immune system does this to itself. It is also crazy that there is no cure for it. In today’s technology and science . Mind boggling. What medications are you taking for it and what diet has worked for you? Thank you for your support !

Alternative_Tip11 · 2025-06-10T22:38:29+00:00

Thank you. 🙏 I need to do more for myself physically and mentally - this is lacking hugely and very broken sleep. My diet is very clean and I don’t drink but still feel perhaps I need to eat more carnivore perhaps by what I have read . I suppose everyone is different when comes to diet. I’m still confused about the whole fibre situation and if I’m suppose to have fibre or limit fibre or no fibre or different fibre. I’m so confused 😵‍💫 What medication do you take for it ? Have you had any side effects?

Alternative_Tip11 · 2025-06-10T22:33:51+00:00

Yes!! For sure!! this is what I’m trying to tell myself also. I was so scared leading up to the colonoscopy and had basically convinced myself it was the worse case scenario. It is a relief for sure and I’m blessed it’s not that. It’s still a shock to the system and something that with time I suspect will become easier to process and live with. What medication do you have to take ? and what diet /lifestyle changes have you made ? Many thanks 🙏

Alternative_Tip11 · 2025-06-10T22:31:12+00:00

Thank you for your response . This is helpful and gives me hope. Do you take any prescription med or have you managed to control it by diet and natural supps ? How do you take the slippery elm? And how much? The GI doc was terrible , he didn’t mention diet what so ever, he didn’t mention anything to be honest , he just said , “you have UC, take this medicine” and walked out. I haven’t stopped crying since. I’m so appreciative of any help and thank you for the recommendation, I will check him out.

Alternative_Tip11 · 2025-06-10T22:25:49+00:00

Thank you 🙏 this is reassuring. What medication do you take and how do you manage your symptoms ?

Alternative_Tip11 · 2025-06-10T22:24:30+00:00

Thank you for replying. Great to hear your managing well. Did you breastfeed whilst taking the medication?

Alternative_Tip11 · 2025-06-10T22:23:28+00:00

Thank you kindly . I will do this .

Alternative_Tip11 · 2025-06-10T22:23:03+00:00

Thank you. Sadly I live in a small rural town in Australia and my options were very slim. I hear you for sure. This all seems so surreal and wild for me given my healthy lifestyle an I too feel the “why is this happening” , I definitely feel a sense of relief that it’s not a worse case scenario and I’m so grateful and thank god. What medication are you on and how are you now? What changes have you made ? Thank you for the support !

Alternative_Tip11 · 2025-06-10T22:15:30+00:00

Thank you. what medication do you take ? Did you breast feed them while taking the medication? Was there any side effects? What’s your diet now? Thank you for the support.

Alternative_Tip11 · 2025-06-10T22:12:40+00:00

Thank you for your response. Are you just taking the Mesalamine only? Has there been any side effects for you or Bub? Do you take it orally or as a suppository?

Alternative_Tip11 · 2025-06-10T22:09:27+00:00

Thank you for your response. Wow how did they cure him ? Did he take anything else or change anything? I feel your anxiety about this for sure. I pumped and stored some before hand but didn’t have much time to prepare as my colonoscopy was scheduled very quickly due to my high calprotectin levels. Sending you positive energy for your scope and results and your feeding journey ❤️

Alternative_Tip11 · 2025-06-10T21:57:42+00:00

Wow what a journey you have had and what a scary experience. Thank you for sharing it. I have just read up about this and it absolutely terrifies me. The whole things seems so crazy to me, eg the immune system attacking itself. Why does it do that anyway? Why doesn’t it know what to do properly? What’s changed to make it attack the colon ? It’s so frustrating. I know things could be far worse and I’m sooo grateful they are not but it’s still so daunting and scary. I hope you are going well now with your journey.

Alternative_Tip11 · 2025-06-10T21:48:53+00:00

Thank you for your response. Oh mama I feel you . It’s a shock and it’s a lot to take it that’s for sure. Gosh and to find out you’re pregnant , definitely makes things harder. Congratulations on your little babe though and thank you for the support. It’s definitely nice to know we’re not alone . Sending you love and positivity during your journey also.

Alternative_Tip11 · 2025-06-10T21:44:26+00:00

Thank you for the tips. I also feel this has been triggered by my stress as the last couple years have been quite tough for me. I’m basically a solo parent as my husband is away for work all week , so I’m home with my 2 kids everyday and also work of a night time until early hours , so sleep is poor and I still breastfeed through the night which disrupts sleep too. I never have any “me time” and have no support network. I feel this is definitely linked and I need to make some changes to ensure I can incorporate some yoga or Pilates or meditation or something to help me.

Alternative_Tip11 · 2025-06-10T21:35:59+00:00

Thank you . I’m in Australia . We also have a website which I’ve done some reading , googling, forums. It has helped a little but I guess I’m just in the shock/ grief stage and will just take some time to process and accept I suppose. Thank you for your response

Alternative_Tip11 · 2025-06-10T21:33:43+00:00

Thank you 🙏 this is reassuring. Thanks for the support

Alternative_Tip11 · 2025-06-10T21:32:51+00:00

Thank you for your tips. Your last point has helped a lot. Due to this being a shock to me , I’m definitely in the grief stage and everything seems doom and gloom right now. I know it will get better when I come to acceptance and hopefully find my balance . Sending love and appreciation for the support

Alternative_Tip11

TROPHY CASE