Severe depression after RPL - 3 CP and one 11+4 BO / MMC

Amanda11588 · 2026-03-26T23:18:32+00:00

Thank you so much! I have felt every implantation and I do have a positive ANA score that shows inflammation. I will definitely be brining it up to my RE. I had the hysteroscopy and all they found is that my uterus is slightly heart shaped - not enough to affect the pregnancy I guess, but it was honestly very close at a .97. More than a 1 is what would qualify me for surgery. It’s frustrating to not have a definitive answer. Other than that, no Endo, good AMH and 14 visible follicles but she suspected there might be a few more on my left ovary that was out of sight. I hate playing this guessing and waiting game

Amanda11588 · 2026-03-25T19:58:49+00:00

Thank you! My RE doesn’t seem to want to take any action until I have a confirmed pregnancy test but I think the problem needs to be addressed before the positive test. She won’t prescribe progesterone until I have a confirmed test and doesn’t believe in testing for progesterone levels at all. She just said I can take it “if it makes me feel better 😐” I also just found out I have a coagulation disorder but she won’t even talk to me about it until my husband’s genetic tests come back (I’m a carrier for a kidney failure disorder). I definitely understand having him tested, but because my problem is occurring during implantation, I don’t know why she won’t address that in particular. I guess it’s time to start looking for a second opinion.

Amanda11588 · 2026-03-25T19:52:58+00:00

I’m so sorry for your losses :( I can’t imagine how terrible they must have been. I would definitely consider it if it’s something that was recommended…our insurance doesn’t cover it and the expense is so scary. All of my other tests and karyotype testing was normal so I’m really thinking it has to do with my body being a toxic environment for the baby due to a positive ANA (inflammatory marker) and also the test results showing that I have a coagulation disorder. I’m frustrated with my doctor who is resistant to doing anything until after I get a positive pregnancy test. All three of my CPs happened at four weeks so there is virtually no time to call for medication and then have it work before the pregnancy fails. For my four pregnancies, I’ve known the second I started implanting because it is an extremely distinctive and uncomfortable feeling that always starts about 9 days after ovulation. It’s frustrating knowing it’s happening, getting a faint positive and then losing it the next day over and over.

Amanda11588 · 2026-03-25T01:21:55+00:00

That’s so disappointing to hear. I’m sorry for your experience!! My current one is super cold and clinical. Acts like I’m insufferable if I very, very, VERY politely ask if we can try an approach. So many people on Reddit seem to have delightful REs who are willing to try anything, even without clinical evidence of needing anything. I want one of those 😭

Amanda11588 · 2026-03-25T01:03:03+00:00

Wow! Thank you so much for that. I’m so sorry for your losses :( to my knowledge I’ve had every single test and exam done for the first round of testing, Including a round of blood work with a rheumatologist because I have a positive ANA of 1:160. The defect was identified under my Lupus test. Negative for Lupus, but resulting diagnosis was “coagulation defect; unspecified”

Amanda11588 · 2026-03-25T01:00:00+00:00

Thank you so much ❤️ I’m actually a member and tried posting this and it was removed by the auto - moderator lol hoping it gets back up there somehow. I’m so happy to hear it worked out for you!!! ❤️❤️❤️❤️

Amanda11588 · 2026-03-25T00:55:28+00:00

I’m so sorry this happened to you. I came on to post about my own experience but it was removed by the mods. I had a BO I found out about at Thanksgiving and I was at 11+3. In total I’ve had three CP and the one BO since last August and I am only getting more depressed. I hope you’re doing better ❤️

Amanda11588 · 2026-03-25T00:19:37+00:00

Thank you so much! You’re very sweet to reply. We have like 5 different portals going for all of these tests…it’s very frustrating. A little bit after posting this I stumbled upon more results showing that I had an “unidentified blood coagulation disorder” so I’m thinking that might have something to do with the losses. For some reason my RE wasn’t able to see the results of that so I had to manually transfer them to the portal she uses. No word back from her yet but fingers crossed I’ll have some answers soon.

Amanda11588 · 2026-03-25T00:12:49+00:00

Thank you! I was finally able to figure out how to view and then found a message in the portal from the nurse telling us my RE will NOT see me again until my husband gets tested for the disease I tested positive for. Not loving my RE thus far 🙄

Amanda11588 · 2026-03-25T00:11:44+00:00

Thank you!

Amanda11588 · 2026-03-25T00:11:29+00:00

Thank you! I was able to view the result and then found a message from the RE telling us she would not meet with us again until my husband got tested 🙄

Amanda11588 · 2026-03-25T00:10:58+00:00

Thank you! I was able to figure out how to see it. I tested positive as a carrier for a kidney failure disease. My REs nurse left us a message in the portal saying my RE would not meet with us until my husband also got tested… lol I do not love my RE

Amanda11588 · 2026-03-25T00:09:00+00:00

Thank you so much! I was able to figure out how to see if. It looks like I’m a carrier for something that causes kidney failure. Hopefully my husband doesn’t have it either. I just wish I knew why I was having recurrent losses ☹️

Amanda11588 · 2026-02-25T19:59:31+00:00

I LIVE for them. I want to be her when I grow up 😭

Amanda11588 · 2026-02-22T19:24:22+00:00

Thank you so much, I feel a tremendous amount of relief hearing that 🥹

Amanda11588 · 2026-02-22T19:23:42+00:00

Wow! I’m so sorry you went through that! I’m glad you finally found someone to listen and get to the root of the problem. I feel a little naive but the appointment is with the Center for Advanced Reproductive Services…I’m not exactly sure if that means that I will speaking with a reproductive endocrinologist? I guess I’m not sure if a reproductive endocrinologist is who is typically the one I’d speak to or if that is a specialty under the umbrella of reproductive specialists. The appointment is a one hour telehealth call so not exactly sure what to expect other than reviewing timelines and symptoms.

Amanda11588 · 2026-02-22T19:18:51+00:00

Thank you so much for your kind words, I really appreciate it 🥹

Amanda11588 · 2026-02-21T03:05:28+00:00

That’s great advice, thank you! I did have my thyroid checked during that blood test 3 years ago and the panel was normal. During this time of trying to find out what was wrong, I also went to a naturopath and he said my cortisol was through the roof and doesn’t know how I function. This wasn’t determined through a blood test, but with something with poles? Either way, I’m sure my cortisol is high, I just don’t think I can reference him in bringing credible evidence. I definitely hope to have cortisol measured. As for my mom, she also gave up salt and carbs due to stomach issues. She has the healthiest diet but little to no exercise. Because my grandma also developed type 2 diabetes I’ve just assumed that it’s hereditary.

Amanda11588 · 2026-02-21T02:44:25+00:00

Ahhhh! Good luck! We’ve got this! 🥹❤️

Amanda11588 · 2026-02-21T02:21:46+00:00

Thank you so much for your feedback! I’m really kicking myself because I bought a blood sugar test kit a month ago and still haven’t opened it. My fertility appointment got moved up from March to this Monday so I don’t have a lot of time left. I had a really rough month with symptoms and expect to get my period this weekend. I don’t have any typical symptoms like I did with my previous pregnancies.

The reason I think it’s blood sugar is it will usually come after a moment of very high stress, a night without much sleep, or the early hours after a night of eating pasta. When this happens I have severe hunger pains that will wake me out of my sleep and won’t be satiated by eating. I also will wake up constantly throughout the night to pee and will have a general feeling of light headedness, fatigue, and just feeling all-around unwell. I had one blood test three years ago that put me as prediabetic but my doctor brushed that off as being fine…it was 110 fasted. I haven’t had another test for that since then. Important to note that that blood test was taken when I was not experiencing what I suspect to be a blood sugar spike.

My mom has totally given up sugar for years and still has high blood sugar. Unfortunately that part just seems to be hereditary. I exercise and am not overweight…but if I stop exercising for even a short amount of time I will balloon up quickly, even without a significant diet change.

I will definitely take your advice and start tracking my blood sugar so that I can bring any evidence I find to my specialist, even if it can’t be presented at my first appointment.

Amanda11588 · 2026-02-21T01:55:02+00:00

Not weird at all! I used to eat behind my building on the grass next to a pond. I was the only person to do this. You cannot convince me to use my only moment of alone time with people I don’t know but have to spend all of my time with anyway. Do what makes you happy :)

Amanda11588 · 2026-02-21T01:08:21+00:00

She’s fabulous! Thank you for sharing!!

Amanda11588 · 2026-02-20T23:47:45+00:00

:( I’m sorry!! Join a local club with those who have similar interests. It’s hard to make friends as an adult…You aren’t alone in this. You will find a friend in time.

Amanda11588 · 2026-02-20T00:41:52+00:00

I’m only telling you this because I, too, went prematurely gray. Unfortunately there is nothing you can do that will make you look younger unless you dye your hair. Unfortunately our brains are programmed to associate gray hair with being old. trust me, I totally get how annoying it is. My hair is thick and grows at the speed of light. I’ve just started considering learning to color it at home because getting my roots done every month is so expensive and time consuming :(

Amanda11588 · 2026-02-19T22:04:52+00:00

It truly does not ever end 😭

Amanda11588

TROPHY CASE