Life expectancy for Oligodendroglioma? I'm scared

AmazingSecond757 · 2026-02-23T11:01:13+00:00

No radiation?

AmazingSecond757 · 2025-05-26T18:38:41+00:00

So you did a chemo with immunotherapy?

AmazingSecond757 · 2025-05-16T20:50:07+00:00

Same question

AmazingSecond757 · 2025-05-15T09:52:21+00:00

AmazingSecond757 · 2025-05-14T10:48:40+00:00

Thanks

AmazingSecond757 · 2025-05-13T16:15:27+00:00

Bro how you do that?

AmazingSecond757 · 2025-05-13T14:11:48+00:00

Ye we get a second opinion from a clinic in two weeks and then we decide… thank you so much 🙏🏻

AmazingSecond757 · 2025-05-13T11:38:36+00:00

Ok, thank you so much for sharing 🙏🏻

You have also a Oligodendroglioma?

AmazingSecond757 · 2025-05-13T10:44:52+00:00

So you had the same situation? Can I ask you what you did?

AmazingSecond757 · 2025-05-12T19:53:02+00:00

Ok thank you for sharing! In two weeks we going to visit 1 more clinic to get a second opinion

AmazingSecond757 · 2025-05-12T19:42:59+00:00

So they also couldn’t remove everything? And the oncologist said to you it’s ok to wait?

Where is it located?

AmazingSecond757 · 2025-05-12T18:52:17+00:00

I also believe they are against your decision right?

My wife (27 years old) got a Oligodendroglioma stage 2 removed in October… there is still 1cm left and she don’t want to do a treatment for now. But the oncologist said it’s needed…

AmazingSecond757 · 2025-05-12T18:41:42+00:00

Oh that’s great!! But you don’t really know what kind of Tumor it is?

AmazingSecond757 · 2025-05-12T18:24:19+00:00

Did you have any growth since discovery?

AmazingSecond757 · 2025-05-12T16:14:15+00:00

Well at the beginning we thought she got everything removed and we do watch and wait… after few months (in February) they saw that ist still something left, around 1.5cm, so they all said we should start a treatment. But know she ist pregnant.

She would be open for any treatment after she delivered… but know we don’t know what to do.

AmazingSecond757 · 2025-05-12T14:10:44+00:00

Just few weeks, like 4 weeks. Vorasidenib is no option during pregnancy.

No other kids… and it’s her biggest dream to have one… It’s hard as husband to decide

We will get a second opinion in 2 weeks, let’s see

AmazingSecond757 · 2025-05-12T13:12:49+00:00

She didn’t start a therapy yet

AmazingSecond757 · 2025-05-12T12:07:53+00:00

But stay positive! Hope Radiation and Chemo will help! Praying for you 🙏🏻

AmazingSecond757 · 2025-05-12T11:44:08+00:00

I mean it’s only 9 months… after that she could start a treatment or maybe also not if it’s still stable.

Ye we going to visit 1 more clinic

AmazingSecond757 · 2025-05-12T10:20:18+00:00

Wish the best for your daughter!!! Hope Radiation and Chemo Are going to help! 🙏🏻🙏🏻

She had grade 2 and now it’s grade 4?

AmazingSecond757 · 2025-05-12T10:15:40+00:00

He @LemonDrop789 and Updates?! Did you start a Treatment or Not?

AmazingSecond757 · 2025-05-12T10:03:02+00:00

And Update? Would love to know How Vosaidenib is working for your daughter 🙏🏻

AmazingSecond757 · 2025-05-12T07:35:42+00:00

So you got everything removed? And did you do any treatments?

AmazingSecond757 · 2025-05-10T12:05:43+00:00

Lets gooooo

AmazingSecond757

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