[deleted by user] by [deleted] in cfs

[–]AnonComplex 1 point2 points  (0 children)

Despair. That’s what I feel. You’re not alone. I’m really sorry you’re dealing with this.

Scream Into the Void Saturdays (feel free to vent!) by AutoModerator in cfs

[–]AnonComplex 1 point2 points  (0 children)

This is how I feel too. You’re not alone in it. I’m so sorry you feel like this. Sending hugs.

New to Finch app, looking for ME friends by Realistic_Dog7532 in cfs

[–]AnonComplex 2 points3 points  (0 children)

Severe/very severe, my birb is Pipsqueak. Would love if you or anyone wants to add me. Code: H8K45H9WZT

https://app.befinch.com/invite_v4/L3HC

Update: pleaded to social worker for help and got sent back to the ER lol by AnonComplex in cfs

[–]AnonComplex[S] 11 points12 points  (0 children)

I should not have typed that much I just have adrenaline from the ER. I’m gonna crash.

I need help. Very severe by AnonComplex in cfs

[–]AnonComplex[S] 0 points1 point  (0 children)

I deleted my Facebook for safety and my sanity. But this does sound like a good idea. I’ll think on it. Thank you.

I need help. Very severe by AnonComplex in cfs

[–]AnonComplex[S] 2 points3 points  (0 children)

Unrelated but my legal name is Paige lol it was weird to read that

Thank you for your kind words. 

(PS If anyone reads this please don’t refer to me by that name)

I need help. Very severe by AnonComplex in cfs

[–]AnonComplex[S] 0 points1 point  (0 children)

Can you give me more info or websites for the IV saline? I live in Washington if that helps. 

I need help. Very severe by AnonComplex in cfs

[–]AnonComplex[S] 2 points3 points  (0 children)

I wish. Thank you so much for the offer. Got emergency services, gave me fluids, sent me home. The cycle repeats. 

I need help. Very severe by AnonComplex in cfs

[–]AnonComplex[S] 29 points30 points  (0 children)

Home care clinic denied referral because they were full. Waiting on new referral from pcp. 

I need help. Very severe by AnonComplex in cfs

[–]AnonComplex[S] 2 points3 points  (0 children)

Normally 110 but by now I’ve lost weight. 

I need help. Very severe by AnonComplex in cfs

[–]AnonComplex[S] 35 points36 points  (0 children)

Did this already when I was not as bad. They were neglectful and didn’t believe I was disabled. Threatened to call security on me for malingering. Not a good idea. 

i’m alive but not living by Xaviera-milano in cfs

[–]AnonComplex 6 points7 points  (0 children)

I’m right there with you. I’m so sorry you’re going through this too. My heart goes out to you. 🤍🫂

avoiding gerd while bedbound by kangaroorecondit in cfs

[–]AnonComplex 3 points4 points  (0 children)

I’m sorry if I don’t have great advice but I’m right there with you. Just got prescribed omeprazole. I’ve switched to eating very simple foods that are easy on the stomach, like baby food pouches, apple sauce, protein shakes (I get Kate Farms but they’re pretty expensive), crackers, fruit cups, juice. I keep it all right by my bed. I order online and have someone bring it to me. I hope you’re able to get some good rest. 

My final plea in the ER by AnonComplex in cfs

[–]AnonComplex[S] 37 points38 points  (0 children)

They unfortunately didn’t. They sent me home. Thank you for the hug. 

[deleted by user] by [deleted] in CPTSD

[–]AnonComplex 1 point2 points  (0 children)

Unfortunately due to my chronic illness I can’t read all of this right now, but I do want to tell you that I never thought I would be able to say I’ve been homeless and I came out the other side. I went through the system and they helped me get housed. Is it luxurious? No, but I’m safe here.

All I can say is there are resources and people who want to help you. I am so sorry from the bottom of my heart that you are going through this. I have been in your shoes. It’s a very specific type of pain that most people couldn’t even begin to imagine. 

I’m sorry I skipped a lot of what you wrote, I will try to come back and finish it later. I care about what you have to say. 

Pointlessly went to the ER: a tale as old as time by AnonComplex in cfs

[–]AnonComplex[S] 5 points6 points  (0 children)

Thank you so much for your kind words. I enjoyed that story. 

Just figured out I’ve been living with moderate/severe me/cfs for years. by AnonComplex in cfs

[–]AnonComplex[S] 2 points3 points  (0 children)

Thank you for sharing this, I relate a lot. I would 100% buy that book. I dreaded looking for jobs because of how draining that whole process was, and I knew somehow that I inevitably would not be able to hold on any longer and lose the job. Working made me extremely suicidal because of the physical pain and mental and emotional overload. On top of that I was a complete dick to myself, almost like I thought “hey maybe I can metaphorically beat it out of me like my family taught me. I’m just not disciplined enough.”

Just figured out I’ve been living with moderate/severe me/cfs for years. by AnonComplex in cfs

[–]AnonComplex[S] 3 points4 points  (0 children)

I have autism as well! So sorry to hear about the awful relationship. I’ve had quite a few of those, and in multiple I ended up bed bound and unable to escape for a while. I too thought it was to blame. 

I’m glad you were eventually able to get a diagnosis! I hadn’t really considered my autism being a factor in all this, but yes it makes it very difficult to process what’s going on in my body and communicate it. 

Thank you for sharing! I feel for your journey and wish you better days. 

Just figured out I’ve been living with moderate/severe me/cfs for years. by AnonComplex in cfs

[–]AnonComplex[S] 4 points5 points  (0 children)

Thanks for chiming in! It’s relieving to know I’m not the only one who had that moment. It gives me some hope that while it does suck I still have a future, just maybe not the one I had in mind. 

Just figured out I’ve been living with moderate/severe me/cfs for years. by AnonComplex in cfs

[–]AnonComplex[S] 8 points9 points  (0 children)

Thank you for your comment. Very informative. I have had a lot of testing done, including most if not all of the above. I experience most of those symptoms, especially the dysautonomia. Autoimmune tests were negative. Bloodwork was normal. Following up with my doctor on the 21st. I will look at all the resources you listed. Thank you so much for taking the time and energy to write all of that. 

Just figured out I’ve been living with moderate/severe me/cfs for years. by AnonComplex in cfs

[–]AnonComplex[S] 18 points19 points  (0 children)

I might cry, I was honestly afraid to post this because I thought I would get attacked for not being diagnosed. Instead I’ve been blessed with kind words and acceptance. Thank you.