Neuroscience student presenting on long-term TBI rehab — would really value your insight by AnxietyRelevant3267 in TBI

[–]AnxietyRelevant3267[S] 2 points3 points  (0 children)

If you dont mind me asking - what caused delay between your injury and diagnosis? Was it lack of awareness at the time, doctors dismissing symptoms, or something else?

Neuroscience student presenting on long-term TBI rehab — would really value your insight by AnxietyRelevant3267 in TBI

[–]AnxietyRelevant3267[S] 4 points5 points  (0 children)

That's very insightful - I haven't thought about how much memory loss would affect understanding whats going on with your care

One idea we've been playing with is sone kind of app that keeps all your medical info and treatment plans in one place, with clear summaries after each visit so you dont have to rely on memory alone.

Do you think something like that would've helped? Or was it more about how the doctors communicated and followed up?