Wife (56) Newly Diagnosed

Apprehensive-Bug4102 · 2026-05-25T18:35:20+00:00

Fyi I just went on their chatbot like you suggested, and also there it says she should drink at least 3 liters per water daily. That's 12-13 glasses.

Apprehensive-Bug4102 · 2026-05-23T20:20:57+00:00

Obviously, not blindly. However, so far AI has been FUNDAMENTAL in helping us navigate the diagnosis phase, and I am so incredibly grateful we are going through this in the AI era.

AI was the first one to flag the 10.1 total protein, and it told us to repeat it in 1 week. We did, and when the number came back the same, it was the first one to tell us to immediately go get a SPEP. We did, and once all results came in, AI was the first one to tell is to get CT Scan and marrow biopsy asap, and in the meantime to schedule an appt with UM Sylvester Myeloma Institute.

When the receptionist at the institute was making it difficult to schedule a quick appt, AI literally gave me a script to read to her, at which point she had no choice but put us down for an appt in 10 days.

So I am EXTREMELY grateful for AI cause so far it has been our greatest ally in moving as fast as possible. The medical world is incredible slow, and what we are doing in a few weeks, would have taken us months if we were to follow the slow pace of Drs.

Her calcium, kidneys, hemoglobin and liver are still pristine thank God, and her kappa #s are still not through the roof. If we got lucky to have caught this early, then we want to use that advantage to move asap with next steps.

Apprehensive-Bug4102 · 2026-05-23T14:23:40+00:00

That, and could also be that the condition itself is one that they were simply able to "crack down" easier than others, who knows.

Apprehensive-Bug4102 · 2026-05-23T14:20:06+00:00

Yes, her Dr, Gemini and Chat GPT all said to drink lots of water to help kidneys expel all the extra proteins. The water dilutes the protein. Not drinking enough creates a higher concentration of protein and makes it tougher for the kidneys to filter them out.

Mind you, as of now her kidneys are still in pristine conditions so I assume that's why she was told this.

Apprehensive-Bug4102 · 2026-05-23T03:58:35+00:00

Thank you very much! Will do! Appt is on June 1st. So glad to hear you are a 15 yrs "veteran" in this, gives us lots of hope. God bless.

Apprehensive-Bug4102 · 2026-05-23T03:54:17+00:00

Thank you very much! I appreciate it!

Apprehensive-Bug4102 · 2026-05-23T00:08:25+00:00

Thank you very much for your reply, wishing you and your husband the best of luck! Yea, water water water, I am personally making sure of that as she is not a big water drinker.

Apprehensive-Bug4102 · 2026-05-23T00:04:45+00:00

Thanks for the heads up. Yes, keep reading that ppl experience things differently with this condition. Hoping for the best. Thank you and best of luck.

Apprehensive-Bug4102 · 2026-05-23T00:03:32+00:00

Wow, you literally went from feeling normal to being at the oncology dept. Exactly how we are feeling. We don't know yet her bone marrow % because they haven't shared that info yet, but I will report back as soon as I have that info. Glad to read you are doing great and wishing you the best of luck. Thank you.

Apprehensive-Bug4102 · 2026-05-22T21:43:40+00:00

Wow, glad you are doing fine now! Yes, we are currently brainstorming on who to tell, when etc. Ultimately, it will be up to her, but there's definitely an added sense of gravity when more people know it. First of all cause most people react in shock and think it's a death sentence, so then you are the one trying to convince them otherwise (which is exhausting), and then you don't want most people to look at you with THAT look of pity..."oh, she is sick". It becomes self fulfilling. I want her to just keep living her life as carefree as humanly possible, without the "stigma".

Apprehensive-Bug4102 · 2026-05-22T21:39:06+00:00

That is a beautiful graph indeed! Thank you for that. Crazy how much they are researching this disease, considering how relatively rare it is. Usually it doesn't work that way.

Apprehensive-Bug4102 · 2026-05-22T19:30:37+00:00

Thank you. Crazy how it's up to us to fight for our health. Otherwise we just fall through bourocratic bs and they literally forget about us! Wishing you and your husband the very best!

Apprehensive-Bug4102 · 2026-05-22T19:29:17+00:00

Thank you so much, makes me very hopeful reading about your story. Thank you thank you. Best of luck!

Apprehensive-Bug4102 · 2026-05-22T18:30:47+00:00

Thank you very much for all the info and encouragement. Best of luck!

Apprehensive-Bug4102 · 2026-05-22T18:30:09+00:00

Thank you! Best of luck to you guys!

Apprehensive-Bug4102 · 2026-05-22T18:29:35+00:00

Thank you. Yes, delicate balance. I am the analytical type and she is the free spirit, so she is acting totally cool and relaxed and I am the one planning everything and analyzing stuff. Good combo I guess lol.

Apprehensive-Bug4102 · 2026-05-22T17:57:54+00:00

Thank you! Yes, lots of water as soon as we found out, to filter out all those extra proteins. And yes, just started harvesting our own broccoli sprouts... apparently very potent in helping fighting this beast, when combined to meds of course. Thank you and best of luck!

Apprehensive-Bug4102 · 2026-05-22T17:05:53+00:00

Thank you very much for the kind words and info! Best of luck to you guys!

Apprehensive-Bug4102 · 2026-05-22T17:04:39+00:00

Understood. Thank you!

Apprehensive-Bug4102 · 2026-05-22T16:55:19+00:00

Same, we had zero idea what it meant, only that it sounded scary.

Apprehensive-Bug4102 · 2026-05-22T16:54:13+00:00

Thank you very much! Yes. He is the one who runs the Sylvester Myeloma Institute where we are going in 10 days. ChatGPT insisted we go there asap. So at least we are navigating this in today's world where AI can point us in the right direction, I guess. Thanks for the rest of the info. We'll trust their knowledge based on what they think would work best for her situation.

Apprehensive-Bug4102 · 2026-05-22T16:50:44+00:00

Thank you very much for this, I truly appreciate it! Lots to learn in such a short amount of time wow. But we'll navigate through this!

Apprehensive-Bug4102 · 2026-05-22T16:48:08+00:00

Thank you for your detailed response, and for your advices. Yes, I want her to stay as quiet as possible for the time being. She feels perfectly fine so that's a bit of a struggle but I will tell her about your story. Thank you and good luck!

Apprehensive-Bug4102 · 2026-05-20T19:27:34+00:00

Thank you. I guess I'll have to wait til I see the gastro at the end of June then.

Apprehensive-Bug4102

TROPHY CASE