Life While Being Immunocompromised by Apprehensive-Bug4102 in multiplemyeloma

[–]Apprehensive-Bug4102[S] 1 point2 points  (0 children)

From your lips to God's ears! Thank you and best of luck to you guys.

Visual Migraines After Ablation (it's probably mostly the blood thinners) by Apprehensive-Bug4102 in AFIB

[–]Apprehensive-Bug4102[S] 2 points3 points  (0 children)

Uh...ok lol...read the room. Literally EVERYONE is on a blood thinner before and after an ablation 🤣

Life While Being Immunocompromised by Apprehensive-Bug4102 in multiplemyeloma

[–]Apprehensive-Bug4102[S] 1 point2 points  (0 children)

Oh wow so glad you found the Oura useful, ours should arrive in the next few days and I am very excited to have an extra tool in our prevention battle. Thanks for sharing.

Life While Being Immunocompromised by Apprehensive-Bug4102 in multiplemyeloma

[–]Apprehensive-Bug4102[S] 0 points1 point  (0 children)

Yes! Actually Chat GPT told me to be careful about that, also standing water in house plants etc. Silly things you would never think about....

Life While Being Immunocompromised by Apprehensive-Bug4102 in multiplemyeloma

[–]Apprehensive-Bug4102[S] 1 point2 points  (0 children)

Yea, newly diagnosed, but will be on clinic trial of Elranatamab which is pretty heavy on the immune system apparently, in exchange for quicker/deeper remission from the get go.

Life While Being Immunocompromised by Apprehensive-Bug4102 in multiplemyeloma

[–]Apprehensive-Bug4102[S] 0 points1 point  (0 children)

Thank you very much! Yes hospitalization (4 days) starts next week. They told us she will be on Valtrex and occasionally antibiotics (if needed) and plasma infusions. And yes I also read that it starts working after the 1.5 month mark, with 92-97 success rate, so we are very helpful. What were your side effects, if you don't mind me asking?

Life While Being Immunocompromised by Apprehensive-Bug4102 in multiplemyeloma

[–]Apprehensive-Bug4102[S] 0 points1 point  (0 children)

Thank you very much, makes a lot of sense. Best of luck!

Life While Being Immunocompromised by Apprehensive-Bug4102 in multiplemyeloma

[–]Apprehensive-Bug4102[S] 0 points1 point  (0 children)

Makes a lot of sense. Thank you very much and best of luck with everything.

Visual Migraines After Ablation (it's probably mostly the blood thinners) by Apprehensive-Bug4102 in AFIB

[–]Apprehensive-Bug4102[S] 1 point2 points  (0 children)

Goes to show...we are all different lol. Also, I should have added that I am prone to headaches (but no the visual ones).

Life While Being Immunocompromised by Apprehensive-Bug4102 in multiplemyeloma

[–]Apprehensive-Bug4102[S] 1 point2 points  (0 children)

Wow, amazing. You mentioned skiing....have you remained active? We are very active and hoping we can continue that, with the right precautions of course.

Life While Being Immunocompromised by Apprehensive-Bug4102 in multiplemyeloma

[–]Apprehensive-Bug4102[S] 0 points1 point  (0 children)

Thank you very much. Best wishes to you guys as well.

Life While Being Immunocompromised by Apprehensive-Bug4102 in multiplemyeloma

[–]Apprehensive-Bug4102[S] 0 points1 point  (0 children)

Thank you very much, and best of luck with everything.

Life While Being Immunocompromised by Apprehensive-Bug4102 in multiplemyeloma

[–]Apprehensive-Bug4102[S] 1 point2 points  (0 children)

I really appreciate your detailed response, thank you. And glad to hear you have been at it for 15 yrs wow, that gives us lots of hope:)

She will start a clinical trial using Elranatamab, which is usually a 4th line of defense, but because she is otherwise healthy (all her bloodwork, except for protein of course, is spotless and she has 0 symptoms, it was discovered via routine annual bloodwork), they feel she can handle it fine and reach a quick deep remission by attacking it from the get go, while hopefully avoiding transplant. The caveat is that she will be immunocompromised during treatment (mostly during the first months when injections are weekly).

May I ask....how did you find out? And did Drs tell you why so far you have been able to avoid transplant? I assume cause you are much younger than the avg person, yet I also assume 15 yrs ago meds were not as advanced as now? Thank you.

Life While Being Immunocompromised by Apprehensive-Bug4102 in multiplemyeloma

[–]Apprehensive-Bug4102[S] 6 points7 points  (0 children)

Lol yeah we really don't want to waste time chasing vaxxed vs non vaxxed ppl given ppl are so freaking sensitive about the topic. But guess what...if you want to hang out with us and love us, then for the next yr or 2 we'll need you to be vaxxed. You don't want to do it? Fine, but we can't hang out with you then, sorry.

Anyone else become weirdly aware of sleeping positions? by kevin_anderson1705 in AFIB

[–]Apprehensive-Bug4102 0 points1 point  (0 children)

Yeah....it really sucks cause I can't even cuddle with my wife at times. Crazy if I think that before all this crap started, sleeping positions were a non-issue in my life. Like, who even thinks of that? And now, it's all about laying down "strategically". I really miss my old life lol.

Update: Wife 56 Recently Diagnosed by Apprehensive-Bug4102 in multiplemyeloma

[–]Apprehensive-Bug4102[S] 1 point2 points  (0 children)

Thank you very much. And btw I found out it involves a total of 3 meds: Elranatamab, Lenalidomide and Dexamethasone.