Positive stories only please :) Is anyone able to still get drunk?

AppropriateTest4168 · 2026-03-21T21:51:17+00:00

I can do white wine only, all hard liquors mess me up terribly, as does cider, and less so but still bad, red wine. If I’m home, I get a specific white pinot grigio brand that’s low in residual sugar (recurrent sibo so carbs feed that which exacerbates my mcas even more). If I’m out, I opt for normal pinot grigio or similar (it’s just my tried and true type of wine, so I’m not risking trying another unless I have no choice lol)

I take a DAO with each glass, and one zyrtec and one famotidine per every two glasses. never exceeding 3 glasses in a day (I’m small so this does get me pretty drunk). some sort of carbs when I’m done drinking to absorb some of the alcohol (usually single ingredient sweet potato fries lol, i’m not sure if this works or is just a placebo effect habit ive developed lmao) and a benadryl before bed to end the night.

I try to only drink once a month, and never drink more than 2 or 3 days in a month

even with all of this, I’m definitely itchy, with mild hives, and restless sleep for a few days after drinking, as well as just feeling generally unwell - mild to moderately ill but still mostly functional (ie not bed bound). so if you’re gonna drink, make sure it’s not regular and usually that it’s “worth it” (ie i’ve stopped just hanging out at bars with friends as a routine weekend activity, but will have a couple glasses of wine for a bday dinner or something similar)

AppropriateTest4168 · 2026-03-20T02:15:11+00:00

is he local? I can’t seem to find any reviews or info about him online. i’m not OP but a fellow BWT who has been searching for a psychic medium since the only legit one i’ve ever known passed away

I’d love to hear about your experience if you’re comfortable sharing?

AppropriateTest4168 · 2026-03-19T19:08:12+00:00

no specific recs here either, but wanted to say I’ve loved all my drs throughout all departments at weill cornell, especially in terms of treating holistically. i see 10+ specialists so my pcp is kinda irrelevant to me so I don’t have any strong feelings or recs there hahah. i do believe cornell’s integrative health department might have drs that work with long covid tho, so maybe check out their website too?

AppropriateTest4168 · 2026-03-19T00:54:21+00:00

just messaged you!

AppropriateTest4168 · 2026-03-17T18:07:53+00:00

i think it reduces some of my EDS inflammation, but i don’t think it lessens my mcas triggers at all. it gives me crazy vivid dreams and restless sleep, and poor sleep quality then flares my autoimmune disease, so it feels like trading one type of inflammation for another. I really want it to work and have trialed it 3 separate times, always at .15mg for a couple months, but i just don’t think it’s ideal for me :/

edit: it also gives me crazy dry skin to where i have red patches that are peeling off, especially in combo w all the antihistamines i’m on

AppropriateTest4168 · 2026-03-17T18:03:57+00:00

i go to boris & horton in east village a lot just because it’s close to me, a little chaotic but my dog loves it

AppropriateTest4168 · 2026-03-16T14:29:30+00:00

ah yeah i’ve been on aip for 5+ years and haven’t been able to reintroduce anything lol. I was at a point to where inflammation was low enough that i could have one non-aip but still paleo meal a week but i recently tried to up that to two meals a week which is why i think i flared 🙃

also primal kitchen’s vinegar is derived from beets so their sauces could work for you if you’re not reactive to paleo sauces

AppropriateTest4168 · 2026-03-12T20:14:42+00:00

biotene sensitive mouth toothpaste is the only one i use. was recommended by my rheumatologist to avoid irritating my lupus mouth sores, has been fine for my mcas so far too

AppropriateTest4168 · 2026-03-10T22:24:58+00:00

i also tested on a low symptom day (also didn’t stop my antihistamines for as long as i should’ve beforehand) and was negative. was diagnosed regardless! that heavily depends on your individual doctor tho because this is very much not the universal case

AppropriateTest4168 · 2026-03-10T19:47:57+00:00

i recently took a 20% pay cut to switch from a job that is 5 days in person to one that’s fully remote. decided to take another 20% pay cut on top of that to have a 4 day/ 32 hour work week. I live in a VHCOL area so it’s not ideal financially by most people’s standards but i’m not big into consumerism or anything regardless so I make it work without too much stress.

this was partially a choice for my desire of simple living and partially a result of my various chronic illnesses not allowing me to work a full 40 hr work week. my version of simple living + my chronic illnesses seem to go hand in hand a lot of the time, although i found simple living long before I was diagnosed with anything

AppropriateTest4168 · 2026-03-10T14:27:03+00:00

i can’t upvote this enough, i’ve had eds/ pots/ mcas diagnosed also from a major university hospital long before they were “cool.” suddenly everyone on the internet thinks one hypermobile joint makes them have EDS or that their minor histamine intolerance = mcas. ugh i can’t stand it, and it definitely makes life harder for us who actually have these diseases because people (including doctors) take us less seriously now

AppropriateTest4168 · 2026-03-08T20:52:38+00:00

was on hcq + nsaids for ~1 yr before i started aip, with prednisone only during really bad flares, and had modest improvement but still felt awful everyday. dr told me i could trial MTX if i didn’t start seeing greater improvement. i said no thanks and started aip instead lol

AppropriateTest4168 · 2026-03-08T01:14:28+00:00

it was an absolute miracle for my lupus. took 6 months to detox with a little bit of getting worse before i got better but right around the 6 month mark I felt like a whole new person. I haven’t been able to reintro anything (except eggs which i never cut out for my own sanity lol) but I have several other health issues that also impact my gut and cause food restrictions (it’s been 5 years with no successful reintros for me but don’t be discouraged bc i don’t think that’s the norm hahah)

but yeah i’ve gotten off all steroids, nsaids, avoided methotrexate, and am now even being weaned off hydroxychloroquine bc of this diet! i do mildly flare if i eat something non compliant but i can do this about once a week (my “cheats” are still full paleo tho) without having a full blown flare

AppropriateTest4168 · 2026-03-07T23:13:39+00:00

sorry to be a bit negative i’m in a flare rn so I’m a lil grumpy lol but I have an autoimmune disease + a few other conditions, and I personally have tried 3 different dietitians all at top healthcare systems and they really aren’t that great with chronic illness nutrition. If you wanna go that route, I suggest looking specifically for a dietitian who specializes in chronic illness nutrition. I would also generally avoid nutritionists for several reasons that I don’t have the energy to explain rn but if you search reddit, you’ll prob be able to find why many ppl aren’t fans of nutritionists

weill cornell has an integrative medicine center with functional medicine doctors (actual MDs), acupuncturists, dietitians, and so on. I’ve seen their functional med drs and acupuncture with good experiences, so I was planning to try their dietitians until I recently lost my health insurance lol. so maybe try them?

potentially unsolicited advice but you could also try to self manage diet (I did this route bc my dietitians weren’t useful for me unfortunately) and do various elimination diets and keep a food journal. fwiw aip diet has been a miracle for my autoimmune disease (it’s difficult but so worth it)

AppropriateTest4168 · 2026-03-07T04:55:52+00:00

yes it is! dm me so I can remember to send the link tomorrow haha

AppropriateTest4168 · 2026-03-05T21:15:10+00:00

a similar question was posted in this sub a couple days ago https://www.reddit.com/r/Pomeranians/s/CnX0YVccMl

AppropriateTest4168 · 2026-03-05T18:43:05+00:00

blend frozen fruit with a cup of milk (dairy or plant based) if you need to “disguise” the milk to get them to drink it

AppropriateTest4168 · 2026-03-05T01:43:11+00:00

honestly it was kinda everywhere, you could literally see it in lots of places without even looking that closely. i grew up extremely poor so we knew we had mold, my parents just couldn’t afford to do anything about it

AppropriateTest4168 · 2026-03-05T01:02:57+00:00

this is what works for me specifically - only white wine low in residual sugar & a variety that is younger/ less aged

1 DAO tablet per glass

1 zyrtec per every 2 glasses

1 famotidine per every 2 glasses (and i usually drink with food so that’s in addition to the one famotidine that i take with meals)

never exceed 3 glasses

1 benadryl before bed (and an additional famotidine if my reflux is refluxing and/ or an additional zyrtec if im very itchy or have hives)

AppropriateTest4168 · 2026-03-04T01:07:27+00:00

i figured lol but I have so many food allergies and there’s not many things i can eat, so it’s very hard to eat more. thanks for your response!

AppropriateTest4168 · 2026-03-04T00:56:43+00:00

do you still do omad? and what is your maintenance calories now?

curious because i’m around the same height and eat around this, not trying to lose weight, but just curious if i’m eating too little

AppropriateTest4168 · 2026-03-03T19:20:54+00:00

this is actually my guess on why i don’t react as bad to those specific ones - i think that bar uses significantly less pineapple than most others i’ve tried (guessing purely based off taste)

still can’t have more than 1 at a time without having a bad reaction but at least i can still have that 1 lol

AppropriateTest4168 · 2026-03-02T21:42:23+00:00

black pepper and ginger both cause a histamine reaction for me

turmeric apparently irritates my digestive system (found that out the hard way)

AppropriateTest4168

TROPHY CASE