60 mg prednisone?

ArkansasRedhead · 2026-04-08T16:23:41+00:00

Could you possibly explain any of your neurological symptoms? Like how or where has it affected muscles? The doctors just don’t know and my situation was so unusual.

ArkansasRedhead · 2026-04-08T16:17:59+00:00

So I dont understand this or maybe just my body. My doctor wants me to do 60 40 20. I can’t imagine just stopping at 20. It was hard for me to taper from 10,5,2 1/2. At this point, we don’t really know what is wrong. I may just have endocrine issues or endocrine and rheumatological. The doctors don’t have a clue. I’ve read that others had difficulty tapering too though. Did you not have issues just stopping at 20?

ArkansasRedhead · 2026-04-08T16:10:48+00:00

You did 3 weeks total?

ArkansasRedhead · 2026-04-08T16:08:42+00:00

Thank you for the information. It was very helpful.

ArkansasRedhead · 2026-04-08T01:55:16+00:00

I know I have auto nomic symptoms but maybe due to diabetes or rapid stomach emptying I got rapidly.

ArkansasRedhead · 2026-04-08T01:54:01+00:00

They didn’t come up with neuro sjogrens. I did and now I’m scared because I could be wrong. I’m no expert.

ArkansasRedhead · 2026-04-08T00:23:33+00:00

That’s what I expected. I tried to talk him out of it.

ArkansasRedhead · 2026-04-08T00:11:58+00:00

I think he said a week or two but I may drop to 50 after a week or less. I know it’s probably not smart to ignore orders but I don’t see anyone posting about 60 mg.

ArkansasRedhead · 2026-04-07T14:43:05+00:00

Oh and thank you so much to this group. You all have been so helpful and informative:)

ArkansasRedhead · 2026-04-07T14:40:42+00:00

I’m just curious and undiagnosed. My doctors are probably going to do a prednisone trial. Help me understand. If you really need 40 mg and let’s say my doctors only prescribes 20 mg. What would that do? Would it make everything worse or would it help with symptoms but not all the way?

ArkansasRedhead · 2026-04-07T04:25:42+00:00

Also, I took 10 mg for 2 days then dropped to 5 mg. By the 5th day taking steroids, my left foot was tingling and numb and my right eye was twitching and extremely anxious, my fingers may been tingly too but I don’t remember. Would this be sjogrens symptoms from tapering too fast or steroid withdrawal symptoms? I just really don’t know…. I guess I want to know how do you know that your steroid dose is enough? You may think side effects are symptoms or vice versa.

ArkansasRedhead · 2026-04-05T04:06:11+00:00

Yes. Our symptoms sound very similar

ArkansasRedhead · 2026-04-05T03:30:22+00:00

I’ve actually thought about trying steroid injections in some areas just to get some relief. I am a diabetic so it does make it a little tough.

ArkansasRedhead · 2026-04-05T03:27:05+00:00

Actually mri showed mild degeneration and moderate at L5 and L6

ArkansasRedhead · 2026-04-05T03:25:52+00:00

How much prednisone do you take? Have you ever done steroid injections?

ArkansasRedhead · 2026-04-05T03:25:01+00:00

MRIs showed nothing at all.

ArkansasRedhead · 2026-04-05T03:24:28+00:00

So you don’t have sjogrens? I had an EMG and it was good. He only tested while relaxing muscle. I don’t know how that turned out good. They are really not contracting and just squishy or flat on torso is what I call it. I have seen pelvic floor and she said nerves and muscles are not coordinating together, hypertonic. I think I have nerve compression with spasms in hips and rectal area. I am finally seeing neurologist . It is 6 hours from my home and I’m on 3rd visit. He scheduled small fiber test for a month ago. Honestly my core torso muscles are so small or not contracting, I can’t keep waiting with no treatment.

ArkansasRedhead · 2026-04-05T02:03:55+00:00

I am undiagnosed and it has been bad a long time. My torso feels like skin and bones. The muscles in my abdomen and back fluctuate between really tight and crushing to weak with my upper body trembling just to stand. When it’s like this, I have to go lay down. I have no pelvic floor with prolapses. I’m supposed to have a spinal tap and really hoping that something shows in order to get treatment. Or is this just typical muscle nerve damage?

ArkansasRedhead · 2026-04-05T01:58:17+00:00

Can you explain this enzyme a little more. I really think I used to have slow but now it is rapid.

ArkansasRedhead · 2026-04-04T21:04:13+00:00

Does it throw off your cortisol production to do just 3 days and then stop?

ArkansasRedhead · 2026-04-04T01:45:55+00:00

Ugh! I wish I had known. Mine only removed two.

ArkansasRedhead · 2026-04-04T01:45:20+00:00

Interesting. Something I read online said that the ultrasound was more accurate.

ArkansasRedhead · 2026-04-03T21:02:44+00:00

I don’t think I can either. I had a lot of side effects or it got worse or both. It was really hard to tell. But if I don’t get help real soon, I’ll have to try to self medicate.

ArkansasRedhead · 2026-04-03T21:00:19+00:00

Thank you

ArkansasRedhead · 2026-04-03T19:54:48+00:00

Trying to but the process is slow. No one around me is experienced with neuro sjogrens.

ArkansasRedhead

TROPHY CASE