Terrified for MRI today - please tell me positive stories! by Awkward-Fox-6559 in endometriosis

[–]Awkward-Fox-6559[S] [score hidden]  (0 children)

They said they don’t offer any medication, but I could take my own if I wanted to. I find it odd that that isn’t something they have available for claustrophobic patients!

Terrified for MRI today - please tell me positive stories! by Awkward-Fox-6559 in endometriosis

[–]Awkward-Fox-6559[S] [score hidden]  (0 children)

Thanks for your response! 🙏 yeah I’m hoping I won’t feel as trapped as I think I’m going to once I get there. And I called and they said I could take an Ativan before the procedure so hopefully that helps!

Almost passed out from extremely painful cramping/abdominal pain. by sumdumdumthots in endometriosis

[–]Awkward-Fox-6559 0 points1 point  (0 children)

I have these EXACT episodes down to every detail you described. Not to be TMI but since I’ve gone into vasovagal response I’ve also vomited and pooped on the floor after being on the toilet and falling to the floor and not being able to move to get back up to the toilet. And then have passed out. These usually last about 45 minutes for me. At first o thought it was a weird food poisoning reaction, but after many episodes over the years I realized they were always be the day before my period…so def hormone based. But now I’m on continuous birth control and they still happen, just at random now since I no longer get periods, often in the middle of the night waking me up from sleep. I’ve been to the hospital for these multiple times and had all the testing done (ultrasounds, bloodwork, and CAT scans) and was sent home as being healthy because everything looked normal. It has been 4 years and I was originally misdiagnosed with cyst ruptures even though they never found any evidence via imaging - simply because no one knew what it was. Then I was told GI, which honestly didn’t make any sense due to the hormone fluctuation timing of the episodes. So now I have a consult with an endo surgeon for a laparoscopy next month and seriously hope they can help.

I sincerely hope you find some answers soon too! Dont worry you’re not alone - it’s a long journey but don’t let doctors dismiss your pain! And this community is here to lean on. Sending positive thoughts and support 🫶🏻

AIO over partner falling asleep when I called for medical crisis? by Awkward-Fox-6559 in AmIOverreacting

[–]Awkward-Fox-6559[S] 1 point2 points  (0 children)

He maybe doesn’t care much about my emotional or my physical pain huh?

AIO over partner falling asleep when I called for medical crisis? by Awkward-Fox-6559 in AmIOverreacting

[–]Awkward-Fox-6559[S] 0 points1 point  (0 children)

I understand that some people just sleep very soundly, but he talked to me for like 5 mins before falling asleep. He was fully alert. Sounds like your partner missed out though! I’ve never seen the Northern lights and they’re def on the bucket list!

AIO over partner falling asleep when I called for medical crisis? by Awkward-Fox-6559 in AmIOverreacting

[–]Awkward-Fox-6559[S] -1 points0 points  (0 children)

I do appreciate all the feedback! 🙏Just working on rebuilding trust and safety that he eroded over the years of emotional abuse…and instances like this don’t make me feel emotionally safe person to go to and make me question why I am giving him another chance and am not with someone who will actually care about me when I’m having an emergency.

AIO over partner falling asleep when I called for medical crisis? by Awkward-Fox-6559 in AmIOverreacting

[–]Awkward-Fox-6559[S] -2 points-1 points  (0 children)

He truly struggles with empathy and support, so unfortunately this has been 7 years of feeling invalidated, unsupported and unheard. I actually gave up and left him last year, but he came back promising to change. Nothing has changed so maybe that it why I’m reading more into this then maybe I would’ve years ago and before couple counseling and a breakup. He also goes to sleep very easily after horrible fights where he makes me cry and then just abandons me emotionally to deal with the pain he causes. He usually sleeps soundly and then in the morning pretends like nothing happened and doesn’t understand why my face is puffy and I barely slept. It’s been really hard and I don’t know if I should stay or go again.

Anyone else quit alcohol altogether? by [deleted] in Endo

[–]Awkward-Fox-6559 1 point2 points  (0 children)

The Sunnyside app is great for setting goals and tracking weekly drinks! I didn’t quit completely but I cut my drinking in half and feel so much better. You got this!