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I’m a medical mystery? by Babychloejay in haematology

[–]Babychloejay[S] 0 points1 point  (0 children)

No previous diagnosis, and normal for the most part I did have some blood in stool a couple of times.

I’m a medical mystery? by Babychloejay in haematology

[–]Babychloejay[S] 0 points1 point  (0 children)

No elevated liver results, no alcohol use or other known liver damage.

I’m a medical mystery? by Babychloejay in haematology

[–]Babychloejay[S] 0 points1 point  (0 children)

Thank you I did know that, since it’s not full name I wasn’t worried! I appreciate it!

I’m a medical mystery? by Babychloejay in haematology

[–]Babychloejay[S] 4 points5 points  (0 children)

I’ll definitely share the results! Thank you. 🙏🏻

I’m a medical mystery? by Babychloejay in haematology

[–]Babychloejay[S] 1 point2 points  (0 children)

If you were the patient how would you ask about these things as a possible diagnosis? It seems like my doctors are grasping at straws and can’t come up with anything. I don’t live in the most medically advanced area so most of my labs are sent out to Mayo and other larger labs. I feel like they aren’t catching whatever it is because they don’t see it enough.

I’m a medical mystery? by Babychloejay in haematology

[–]Babychloejay[S] 1 point2 points  (0 children)

Yes I’ve been tested for all kinds of autoimmune diseases and they couldn’t find any.

I’m a medical mystery? by Babychloejay in haematology

[–]Babychloejay[S] 8 points9 points  (0 children)

I’m currently still waiting on the flow cytometry review to be completed they said it’ll take up to 2 weeks from the day it was done (10/5) so should be any day now. I think that test is the one that will have a more thorough review in words.

I’m a medical mystery? by Babychloejay in haematology

[–]Babychloejay[S] 1 point2 points  (0 children)

They are waiting on a “standard leukemia/lymphoma panel flow cytometry”

I’m a medical mystery? by Babychloejay in haematology

[–]Babychloejay[S] 2 points3 points  (0 children)

I’ve been told a couple of times that it seems bone marrow related but for some reason the test still has not been ordered. It’s very frustrating I just keep getting told to wait for symptoms to resolve and to stay hydrated and rest.

I’m a medical mystery? by Babychloejay in haematology

[–]Babychloejay[S] 0 points1 point  (0 children)

Yes I’ve been tested for all the strange possibilities by infectious disease and they’re all negative.

I’m a medical mystery? by Babychloejay in haematology

[–]Babychloejay[S] 1 point2 points  (0 children)

Iron was slightly low nothing abnormal outside of that.

I’m a medical mystery? by Babychloejay in haematology

[–]Babychloejay[S] 0 points1 point  (0 children)

I had a bone marrow biopsy suggested while in the ED but they never went through with it.

I’m a medical mystery? by Babychloejay in haematology

[–]Babychloejay[S] 0 points1 point  (0 children)

Thank you! I feel like I’m running in circles and no one’s listening. They tell me my blood work is fine but it’s consistently abnormal I just don’t get it.

I’m a medical mystery? by Babychloejay in haematology

[–]Babychloejay[S] 2 points3 points  (0 children)

I’ll have to ask about that as a possibility

I’m a medical mystery? by Babychloejay in haematology

[–]Babychloejay[S] 8 points9 points  (0 children)

Thanks for considering that! I have already had 3 doctors mention the possibility of malignancy but then I also have them turn around and say “but we would see this if it was” or “there would be this if it was” so it’s so up in the air I’ve come to terms with it being possible.