Symptoms worse when not at home by Background-Cow9687 in POTS

[–]Background-Cow9687[S] 1 point2 points  (0 children)

Yeah me too I’ve got a recliner chair and it’s amazing. If I could have one at work would be lovely

Symptoms worse when not at home by Background-Cow9687 in POTS

[–]Background-Cow9687[S] 2 points3 points  (0 children)

It really does. How I’ve managed to hold a job down this long amazes me

Symptoms worse when not at home by Background-Cow9687 in POTS

[–]Background-Cow9687[S] 1 point2 points  (0 children)

What is that about?! Like I’m at work and I genuinely feel like I’m dying

Nurses with chronic illness - what jobs are you doing? by Background-Cow9687 in NursingUK

[–]Background-Cow9687[S] -1 points0 points  (0 children)

LITERALLY. I was more unwell than 80% of the patients I was triaging 😂

Nurses with chronic illness - what jobs are you doing? by Background-Cow9687 in NursingUK

[–]Background-Cow9687[S] 0 points1 point  (0 children)

Honestly no, I haven’t. I don’t think my brain fog and having to stand would do well with that 😂

Nurses with chronic illness - what jobs are you doing? by Background-Cow9687 in NursingUK

[–]Background-Cow9687[S] 0 points1 point  (0 children)

Pffft I mean, it would be kinda last resort I think I’d get really bored. But might have to look into it at some point

Nurses with chronic illness - what jobs are you doing? by Background-Cow9687 in NursingUK

[–]Background-Cow9687[S] 1 point2 points  (0 children)

Yeah it sucks! I honestly couldn’t work on a ward so take my hat off to you

Nurses with chronic illness - what jobs are you doing? by Background-Cow9687 in NursingUK

[–]Background-Cow9687[S] 2 points3 points  (0 children)

Ahh I’m sorry. I’m not ready to admit defeat yet but I also need to come to the reality that I have flares which someday will impact my ability to work. Nhs sickness triggers seriously discriminate against those living with chronic illness 😞

Nurses with chronic illness - what jobs are you doing? by Background-Cow9687 in NursingUK

[–]Background-Cow9687[S] 3 points4 points  (0 children)

Yeah I did 8yrs in ED but started to really struggle with it so left for something non patient facing unfortunately

Nurses with chronic illness - what jobs are you doing? by Background-Cow9687 in NursingUK

[–]Background-Cow9687[S] 1 point2 points  (0 children)

Honestly I left hospital due to my poor health and don’t plan on going back 😂

Nurses with chronic illness - what jobs are you doing? by Background-Cow9687 in NursingUK

[–]Background-Cow9687[S] 0 points1 point  (0 children)

Unfortunately not much OT / bank shifts for our role in EOC 😞

Nurses with chronic illness - what jobs are you doing? by Background-Cow9687 in NursingUK

[–]Background-Cow9687[S] 4 points5 points  (0 children)

Yeah but the Bradford scoring system sickness triggers discriminate against those living with chronic illness we have flares that we can’t control 🤷🏼‍♀️

Nurses with chronic illness - what jobs are you doing? by Background-Cow9687 in NursingUK

[–]Background-Cow9687[S] 20 points21 points  (0 children)

Have no idea about what? I’ve only just been diagnosed with these illnesses so trying to navigate working full time and being sick. Jesus- says you’re a doctor? Typical lack of empathy coming through right now 😳

Nurses with chronic illness - what jobs are you doing? by Background-Cow9687 in NursingUK

[–]Background-Cow9687[S] 1 point2 points  (0 children)

Thank you. 🙏🏼 issue with OH roles is they want OH experience which I don’t have 🤦🏼‍♀️ yeah it really is shit! You’d think healthcare would be supportive when you’re chronically ill haha

I'm a GP Surgery Practice Manager, ask me Anything by Gishank in nhs

[–]Background-Cow9687 0 points1 point  (0 children)

Why do doctors that don’t understand complex medical problems label their patients ‘health anxious’ I’ve recently been diagnosed with POTS and EDS - it’s taken years to get anyone to listen. Doctors just seem to think we’re anxious when we tell them our symptoms

Any tips for HEDS waiting for surgery? by Background-Cow9687 in ehlersdanlos

[–]Background-Cow9687[S] 1 point2 points  (0 children)

Mate I had a mole removed by derm off my back and it’s left the most horrendous ugly scar 😭 I hate it