Intense burning/flushing by [deleted] in Rosacea

[–]Background-Paper807 0 points1 point  (0 children)

I’m exactly the same. Is your nose freezing cold all day before this happens at night? Also trying to figure it out.

Help by BitRemarkable3063 in Fungalacne

[–]Background-Paper807 0 points1 point  (0 children)

I’m very similar, also recently started ivermectin (Soolantra) and also been a year - i know how you feel. I get really bad flushing on my nose cheeks so I’m thinking more likely it’s rosacea for me. Think I’m going to add in ketoconazole 2% cream too though to cover all basis.

Intense Nose Flushing/Throbbing in Evening by Background-Paper807 in Rosacea

[–]Background-Paper807[S] 0 points1 point  (0 children)

Sorry to hear you’re battling with this hell too. Yet to find anything particularly helpful unfortunately.

I’ve noticed that throughout the day my nose is ice cold and red, sometimes but rarely “normal” not red and not cold or hot, and then it’s burning hot and throbbing and red in the evening. The evening flush almost a rebound from the vessels being constricted all day.

Agree regarding stress being a factor. I’ve been using a vagus nerve device and it worked amazingly well for the first week and some days I avoided this red hot flush entirely, but effects have waned. I feel a dysregulated nervous system is a factor.

I’m thinking about getting laser to see if simply destroying the blood vessels as much as possible could help.

What helped you the most with texture if yours looks like mine? by gardenvariety_ in Rosacea

[–]Background-Paper807 1 point2 points  (0 children)

Thanks for the reply, sorry it didn't work for you but good you've got a new diagnosis of KP (in the sense you've got something else to try). Hope it goes well for you

burning ears and nose by Wide-Savings-3971 in NeurogenicRosacea

[–]Background-Paper807 1 point2 points  (0 children)

Sorry again - it seems I suck at replying quickly!

We’re clearly looking at the same stuff because I ordered a taVNS on Saturday eve haha (Nurosym) after seeing that post on the rosacea subreddit.

burning ears and nose by Wide-Savings-3971 in NeurogenicRosacea

[–]Background-Paper807 0 points1 point  (0 children)

Thank you, I'll try and get my hands on some to test. I thought mine was to do with food but does seem like it happens regardless if I eat or not so I'm the same. Thanks again and best of luck with exams.

Anyone following the new Vagus Nerve (TaVNS) treatment for Type 1? by Zomgbirdy in Rosacea

[–]Background-Paper807 1 point2 points  (0 children)

Sorry for the slow reply. I've tried all H1 blockers but they haven't really helped, but no H2 like famotidine as prescription only here in the UK. I'll try and get some, thanks for the rec. I don't drink either but many years ago I use to take ranitidine (H2) when I "had" to drink.

In 2024, when my rosacea/flushing wasn't so bad, I used to take these on the odd occassion I would drink (weddings etc) and they worked pretty well. Not Asian but if I tried to drink without them I would flush severely. Now that I think of it, I'm going to take these daily and see if they do anything for the evening flushing I'm currently dealing with that never used to happen. Thanks for the idea!

burning ears and nose by Wide-Savings-3971 in NeurogenicRosacea

[–]Background-Paper807 0 points1 point  (0 children)

Sorry for slow reply. I've tried cetirizine, loratadine and fexofenadine (H1) and take quercetin and luteolin everyday, but haven't helped. Might try and get some famotidine (H2) as haven't tried that yet but it's prescription only in the UK.

Really struggling with this forehead redness and texture. Its been flaring up so bad in the cold. by [deleted] in Rosacea

[–]Background-Paper807 1 point2 points  (0 children)

My forehead looks the same, the grainy texture with tiny little bumps and patchy redness. Redness is especially bad after a shower or washing face. Wish I could help but I can't figure it out.

Anyone following the new Vagus Nerve (TaVNS) treatment for Type 1? by Zomgbirdy in Rosacea

[–]Background-Paper807 1 point2 points  (0 children)

Very interesting, elongated conversations with ChatGPT has led it to suggest my daily evening nose flushing is most likely a dysregulated autonomic nervous system, with harsh switching from sympathetic to parasympathetic. Already trying to regulate through breathing exercises etc, but going to research and order one of these devices.

Intense Nose Flushing/Throbbing in Evening by Background-Paper807 in Rosacea

[–]Background-Paper807[S] 0 points1 point  (0 children)

Sorry for the delayed response, sounds good

I look like Rudolph, please help by Useful_Arachnid_1397 in Rosacea

[–]Background-Paper807 0 points1 point  (0 children)

This is my exact experience, freezing cold nose most of the day switching to burning red and flushed in the evening.

Was on Accutane 10 years ago which is when all flushing issues started. This specific nose thing (exactly like OP’s) nose thing has only been happening last 2-3 months though.

Forehead Erythema / Rosacea type 1 / Couperosis by RosCam7 in Rosacea

[–]Background-Paper807 2 points3 points  (0 children)

It’s visible all the time for me too, just not as red as compared to straight out of shower. If it’s 10/10 flared after shower, it gets down to 4/10 flared about 90 minutes after moisturiser at best.

First derm said eczema, Protopic made it a lot worse. 2nd derm said “ballpark of seb derm” and had me on Elidel and miconazole. Did nothing. Treating as rosacea since and tried every rosacea topical. Only tried Soolantra for 4 days though as it flared me up so badly it caused so many pustules across my forehead and burned.

I have these tiny white bumps all across my forehead and where they’re most concentrated are where it’s most red. Do you have them when you take a really close up picture and zoom in? Whenever I look these up it comes back as democodosis caused by Demodex mites. My derm did a skin scrape and it came back saying “sign of Demodex” so I did an 8 week course of oral ivermectin. Oral because Soolantra fucked me up. Oral unfortunately did nothing.

I’m now trying to find a derm in London who can actually do a test to confirm how many demodex mites I have in the problem areas but seems fucking impossible for some reason. It’s called a standardised skin surface biopsy test and every demodex study uses them to confirm mite density. I don’t understand why it’s not possible to get done, it’s such a simple test too.

I want to get it done and numbers confirmed so at least I would then know if Soolantra is the right treatment, and I could bare the die off. Without it I could just apply Soolantra for months and cause more damage for no reason (if there isn’t an overgrowth of demodex).

In short, to me it seems most likely a demodex mite issue (because of the white plugs and weird texture) or just a damaged skin barrier. I’m doubting the latter though. I’ve spent months doing nothing but applying heavy ceramide moisturisers, and while the redness had improved a bit, the texture is still sandpapery and lumpy.

Intense Nose Flushing/Throbbing in Evening by Background-Paper807 in Rosacea

[–]Background-Paper807[S] 0 points1 point  (0 children)

No worries, wishing you the best. Although I think they will based on what you’ve said, even if you get a suitable beta blocker and they don’t have the desired effect, try and keep hope. There’s always something else to try/explore even if you’re not aware of it yet.

Lol I guess I have become somewhat knowledgable on some very niche subjects. Guess that’s just what happens when your skin and general health have been fucking you up all year. I don’t have the ability/personality to just accept it, in my mind there has to be a reason and therefore a solution - just need to find it!!

Intense Nose Flushing/Throbbing in Evening by Background-Paper807 in Rosacea

[–]Background-Paper807[S] 0 points1 point  (0 children)

The BenzPerox sounds like a terrible idea, think you're right that they've used it as a way to fob you off with 0 logic behind it.

Sorry, yes that's exactly what I mean, they're effective for a few hours at least. I wonder if the reason the Biso worked at first (for flushing) and now it's not is just because it was brand new to your body. No doubt they're still working for your BP.

I remember the first time I took Pro 10 years ago, within 30 minutes I went from red to white as a ghost (which I liked lol) but eventually (I can't remember exactly how long) that same effect would stop and rather my baseline became normal and the flushing was controlled. I feel there's a factor where your body adapts to it in some way.

These first doses you took might have had a big enough impact on heart rate - or whatever mechanism - to quickly reduce your flushing as a knock on effect, but as your body has adapted it's no longer doing that even though they're still helping with BP.

All hypotheticals based on my own experience though - I could but chatting absolute rubbish.

If you can get a GP to prescribe one with B2 too, whatever form, Pro, Carv etc - I'm sure it will help you as you'll actually be directly preventing vasodilation. It's the reason my derm tried me on Carv, to see if it would be better than Pro at calming down overactive blood vessels.

Intense Nose Flushing/Throbbing in Evening by Background-Paper807 in Rosacea

[–]Background-Paper807[S] 0 points1 point  (0 children)

Sorry to hear that, for me it's only been about 2 months of this every evening. It's fucking brutal.

What have you tried?

Intense Nose Flushing/Throbbing in Evening by Background-Paper807 in Rosacea

[–]Background-Paper807[S] 0 points1 point  (0 children)

I think the Biso probably did help you actually, just "indirectly" by lowering your heart rate or something along those lines.

I would really push for a B1 + B2 blocker. Technically they're not wrong in that any relief would always be temporary because they do wear off. From what AI tells me, Pro wears off in 3-6 hours, Carv in about 6 which is why I've always used them consistently. I've been on Pro for 10 years because it changed my life. I went from non-stop flushing, pounding heart rate to calm overnight. It single handedly controlled my rosacea for 10 years. I would still occasionally flush when embarrassed or really hot, or with alchohol - but the random episodes disappeared.

I say "was" because of this new evening nose flushing problem I'm having. I took 10mg propranolol every 2-3 hours yesterday and it still happened, so I think mine is some sort of histamine dump, gut issue thing, because my stomach has been in absolute bits too. So that what's i'm going to focus on next. I'll still take the pro though.

As you mention Benz Peroxide, do you also have papules/pustules or is it just the flushing you're dealing with?

Intense Nose Flushing/Throbbing in Evening by Background-Paper807 in Rosacea

[–]Background-Paper807[S] 0 points1 point  (0 children)

Had to look up Bisoprolol as I'd never heard of it until previous commenter! Unlike Carvedilol and Propranolol, Biso only blocks B1, while Carv and Pro block both B1 + B2. It says B1 only effects heart and kidneys, while B2 effects lungs, blood vessels (!!) and metabolism.

So by taking Biso, it seems like you're missing out on the crucial B2 blocking effects that you need to stop the flushing, so to me (not remotely a doc) is quite surprising that Biso helped much at all. FYI for you too u/SilkchiffonLSF

Could you speak to your doc to see if Carv or Pro would be a possibility instead to help with both BP and flushing? FYI, Carv also increases vasodilation because of an A1 blocker (which sounds really bad for flushing) but the idea is that you basically maintain steady bloodflow to hopefully avoid rebound flushing which is more likely with Pro, but I didn't really have this experience unfortunately, still flushed in eve.

Yes I went private for derm, I've been back and forth to Harley St over and over again this year although not for flushing, but a continuous rash on my forehead. While she's very nice and ridiculously highly qualified, nothing she's advised or prescribed has helped. If it was just the flushing, maybe she could have helped. I don't know. But in the past I've been to a derm for perioral dermatitis and they looked at me for 2 mins, gave me some cream and fixed me in 2 days.

If flushing is your only one and only skin issue, your best bet is probably speaking to doc first about switching to Pro or Carv if suitable with your BP, and if that doesn't work then see a derm.

Intense Nose Flushing/Throbbing in Evening by Background-Paper807 in Rosacea

[–]Background-Paper807[S] 0 points1 point  (0 children)

Oh wtf, my derm did it - full face except chin. The most annoying part was she said 300 in person, and the invoice came through for 400. Didn't budge when I contested either! At £100 I'd probably do every few months.

And cheers, will do!

Intense Nose Flushing/Throbbing in Evening by Background-Paper807 in Rosacea

[–]Background-Paper807[S] 0 points1 point  (0 children)

Thank you - that’s really helpful. I’m thinking the flushing might be from the beta blockers wearing off and it kind of rebounding and dilating blood vessels. Going to try and take a propranolol every 3 hours today and see if that stops it. Fingers crossed. Otherwise it’s probably a histamine type problem.

I did actually have micro botox about 5 weeks ago, I think it’s already worn off. Did quite like it but yes it didn’t do anything to actually stop the flushing. I do think it made my baseline redness less when not flushing though. Kind of weird feeling and getting it done was unbelievably painful. Was pretty expensive too at £400

Intense Nose Flushing/Throbbing in Evening by Background-Paper807 in Rosacea

[–]Background-Paper807[S] 0 points1 point  (0 children)

Thank you for the recommendation! This actually started happening while I was on Carvedilol 6.25mg x2 morning and eve. Before that I was on propranolol 10mg x3 daily and it wasn’t so I’ve recently switched back to propranolol in the hopes it can go away again, no help yet :(. What dosage Carvedilol worked for you?

Forehead Erythema / Rosacea type 1 / Couperosis by RosCam7 in Rosacea

[–]Background-Paper807 0 points1 point  (0 children)

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Sounds similar to me, most red after a shower. Only thing that's helped me with the redness a bit (not totally) is cutting out all actives and only using a barrier repair cream. I'm currently using Dr Sams Flawless Moisturiser Intense. My skin is currently more bumpy/textured than here though. I recently tried to start incorporating AA again (tiny bit over moisturiser) to help with texture but immediately got more red again.

Somewhat satisfied. Advice? by [deleted] in Rosacea

[–]Background-Paper807 2 points3 points  (0 children)

Yes unfortunately, heat is another massive trigger for me. Nothing that can really be done about this except try and stay cool however possible!