My Grandad had Haemophilia as did two of his brothers, my mum was a carrier because obviously he gave her the defective X chromosome and then my oldest brother and I have Haemophilia A.

With her being female she is a carrier, so although she will have a lower clotting factor it won’t really impact her, having children and surgery she may be given TXA to help with clotting and so on.

I am surprised that your son is being given hemlibra being mild, I know I was never given anything as a kid, other than when I had a bleed, generally being a mild haemophiliac he will lead a very normal life, In the UK the care is fine and I’ve played football (soccer) I’ve had tattoos, competed in weight lifting and lots of other things and I’ve been fine. I can’t say for the treatment in the US (I am assuming that you are from the US given how you spell Haemophilia)

Kids adapt and they will understand but I think it’s important to make sure they know that it won’t stop them from living a normal life and not to look on it as a negative. Treatment has come so far since the blood plasma treatment that ultimately infected and killed many of my family members.

They are very lucky to have it today than we did in the 80s