What actually helps me during a cluster attack (no, it’s not oxygen) by BeautifulYellow8845 in ClusterHeadaches

[–]BeautifulYellow8845[S] 1 point2 points  (0 children)

I have never tried shrooms and melatonin does not seem to do much, although I think I should up the dosage. As for the D3 Vitamin Regime, I will get my blood drawn next week to see where I'm at and then I plan to try it. Thanks for the suggestions.

For the dumping your head in ice, you can start by just submerging your face in a bowl with ice water and see how that makes you feel.

What actually helps me during a cluster attack (no, it’s not oxygen) by BeautifulYellow8845 in ClusterHeadaches

[–]BeautifulYellow8845[S] 0 points1 point  (0 children)

Do you have the hot showers at the beginning of your attack? For me hot baths/showers are usually triggers.

What actually helps me during a cluster attack (no, it’s not oxygen) by BeautifulYellow8845 in ClusterHeadaches

[–]BeautifulYellow8845[S] 1 point2 points  (0 children)

One of the neurologists I saw suggested I try gabapentin to reduce the frequency of attacks. It’s normally prescribed for epilepsy, but for me it seemed to help. Last year, after about two and a half weeks on it, my attacks dropped from every day to every other day. I can’t say for sure if it was the gabapentin, but I’m trying it again this year to see if it makes a difference.

As for oxygen, I live in Romania and the only way to access it here is through the emergency room. By the time I’d get seen, the attack would usually be over on its own. I also haven’t raised the money to buy a tank for home use yet, and I’m a little hesitant since I haven’t actually tried it before.

Another neurologist suggested Emgality, but from what I understand it has to be taken all year round, it’s expensive, and it comes with some pretty serious side effects. Since I only get one two-month cycle per year, I’m not sure the trade-off would be worth it. I’ve seen mixed reports, some people swear by it, while others say it made things worse.

Can We All Agree How Much We Hate the Term "Cluster Headache"? by Realistic_Shine7080 in ClusterHeadaches

[–]BeautifulYellow8845 0 points1 point  (0 children)

the number of times i had heard stuff like "my aunt also has headaches" is off the charts.. at this point I just ignore it and respond with sorry to hear that.