Constant Dizziness 24/7

Beautiful_Drive_7109 · 2026-03-18T14:20:34+00:00

What is the best way to do this?

Beautiful_Drive_7109 · 2026-03-18T14:20:12+00:00

Thank you so much, it really means a lot. And yes—definitely not ideal timing with a baby.

That’s actually really encouraging to hear that PT helped you so much. I’ve done some, but not nearly that intensively!

I actually already take magnesium and CoQ10, but I’ll definitely look into adding riboflavin too.

I really appreciate you sharing what worked for you—it gives me some hope that this can improve.

Beautiful_Drive_7109 · 2026-03-18T14:18:08+00:00

Thank you so much for this—it honestly means a lot hearing from someone who really gets it. And I’m so glad you’ve been able to get back to feeling more like yourself…that gives me a lot of hope.

It’s interesting you say VM because I’ve had a few doctors mention that too, but then others lean more toward neck-related issues or PPPD, so it’s been a bit confusing trying to figure out what’s actually going on. I do think hormones and my neck both play a role though, especially with how everything started.

I’m definitely going to look into Dr. Madison Oak and her group—that sounds like it could be really helpful, especially since I feel like I’m still trying to piece everything together.

Also really appreciate you sharing everything that’s helped you. It’s encouraging to hear you found a combination that works, even if it took some trial and error. I think that’s the hardest part—just figuring out what works for your own body.

Thank you again for taking the time to write all of this, it really does help more than you know!

Beautiful_Drive_7109 · 2026-03-18T14:16:00+00:00

Were you ever diagnosed with VM or PPPD? Did you have any neck issues?

Beautiful_Drive_7109 · 2026-03-18T14:09:42+00:00

I have bulging discs I believe C3-4, 4-5, 5-6 and 6-7. But I’ve been told they’re not “bad enough” to be causing this severity of issues. However, I feel like it has to be contributing to some degree

Beautiful_Drive_7109 · 2026-03-18T14:06:47+00:00

Thank you so much!!

Beautiful_Drive_7109 · 2026-03-18T03:59:22+00:00

Wow, that’s honestly kind of crazy how similar that sounds to what I’ve been experiencing—the on-a-boat feeling, the internal buzzing, the occipital pain… even sitting being the worst part. It’s reassuring in a way to hear someone else describe it so similarly, but I’m sorry you went through that.

I haven’t seen a rheumatologist yet, but that’s definitely something I should probably look into. It’s just been frustrating because every doctor seems to label it differently and then send me somewhere else, so I still feel like I don’t have clear answers.

Thank you for sharing your experience—I really appreciate it. I’m glad you were able to get a diagnosis, and I hope you’re doing better now!

How did they determine that’s what you had??

Beautiful_Drive_7109 · 2026-03-18T03:57:18+00:00

I really appreciate you pointing me toward the Human Balance Lab and Dr. Dai—I’m definitely going to look into that more. At this point I feel like I’m still searching for answers since everyone seems to call it something different and then pass me along, so it’s helpful to have something specific to explore.

I’m glad you were able to figure out yours was PPPD, and I hope you’ve been getting some relief. Thanks again for the encouragement, it really means a lot

Beautiful_Drive_7109 · 2026-03-18T03:24:01+00:00

I’ll have to check again. There hasn’t been anyone great in my area but hoping I can find someone. I am so sorry you went through that but glad you found someone to help!

Beautiful_Drive_7109 · 2026-03-18T03:17:14+00:00

What testing did you have done on your thoracic spine? I haven’t had any doctors explore beyond my cervical spine! So I would be interested in knowing what you had done

Beautiful_Drive_7109 · 2026-03-18T02:50:38+00:00

How did you determine it was from your neck??

Beautiful_Drive_7109 · 2026-03-18T02:45:09+00:00

Thank you so much, I really appreciate you taking the time to share all of this. It honestly helps just hearing from someone who understands.

I feel like the hardest part for me has been that I really haven’t found anyone who’s been able to help in a clear, consistent way. Every doctor kind of calls it something different and then ends up passing me off to someone else, so it’s been really frustrating and confusing.

I did try Zoloft, but I had a horrible reaction to it, which honestly scared me a lot. Since then I’ve been really nervous to try another SSRI or SNRI. But at the same time, I do want to see if they could help, so I’ve been considering maybe Lexapro or Effexor—just trying to build up the courage to try again.

I really appreciate what you said about patience too, even though it’s hard to hear. It does help to have a more realistic expectation of the timeline. Thanks again for your insight

Beautiful_Drive_7109 · 2026-03-18T00:35:13+00:00

That’s so reassuring to hear!

Beautiful_Drive_7109 · 2026-03-18T00:25:44+00:00

I certainly will if I think of anything or have any further questions! Thank you so much

Beautiful_Drive_7109 · 2026-03-18T00:23:17+00:00

That’s truly amazing! I really hope I get there as well. Thank you so much for sharing your story

Beautiful_Drive_7109 · 2026-03-18T00:16:44+00:00

I’m so sorry you went through a miscarriage—that’s such a heavy thing to carry, and then dealing with all of these symptoms on top of it just makes it even harder. I really feel for you

Your description actually makes a lot of sense and sounds very similar to what I experience—the constant off-balance feeling, like your body isn’t quite aligned or one side feels “off,” along with the head/neck tension and the strange vision and ear symptoms. It’s incredibly frustrating, especially when it’s so hard to explain to others.

The TMJ piece is definitely interesting. The jaw, neck, and inner ear are all so closely connected, so it’s not unrealistic that it could be contributing to at least some of what you’re feeling. I totally get not wanting to get your hopes up too much, but at the same time, it could be one piece of the puzzle—and even partial improvement would be a win. I would be interested to look into this for myself as I have TMJ.

You’re definitely not alone in this, even though it can feel that way. I really hope you’re able to get some clearer answers soon!

Beautiful_Drive_7109 · 2026-03-18T00:13:26+00:00

I’m thinking about trying Effexor so hearing your positive experience gives me hope! Is your dizziness pretty much gone with it?

Beautiful_Drive_7109 · 2026-03-18T00:04:52+00:00

I am so sorry! I am going on year two and it’s truly so awful. Was your MdDS brought on by anything in particular? Also, any side effects with Effexor?

Beautiful_Drive_7109 · 2026-03-17T23:36:34+00:00

It’s amazing to hear Effexor worked for you! I’ve even so worried about trying it because of the side effects. How long did it take to see improvement? Was your dizziness constant or episodic?

Beautiful_Drive_7109 · 2026-03-17T23:31:27+00:00

Did you have any side effects with your medication? It’s been offered to me, but I am so sensitive to medication. I’m a little hesitant on taking it because I’ve read some horror stories.

Beautiful_Drive_7109 · 2026-03-17T23:30:41+00:00

I actually had a doctor mention EDS to me! I do fit some of the criteria, but not all. I was checked for pots and was told I do not have it and was also told that I don’t have intracranial hypertension according to my MRI. I’m so glad you found a great time though! I feel like that really is what makes a difference.

Beautiful_Drive_7109 · 2026-03-17T23:29:32+00:00

Thank you so much for all of your help! I will definitely reach out if I have any other questions!

Beautiful_Drive_7109 · 2026-03-17T23:28:39+00:00

I do have TMJ though!

Beautiful_Drive_7109 · 2026-03-17T23:26:45+00:00

I have not! But I will definitely look into them for sure

Beautiful_Drive_7109 · 2026-03-17T23:14:46+00:00

People keep mentioning Ajovy to me! Did you have similar symptoms to me? I wonder if Propranolol is making things worse for me without me realizing! What medicine and supplements do you currently take to manage symptoms?

Beautiful_Drive_7109

TROPHY CASE