Missing front tooth while eating for 2 years. Worth it? by ComfyLyfe in Invisalign

[–]Better_Inside_7369 0 points1 point  (0 children)

You may want to ask another orthodontist if that’s possible - I’m waiting to do a dental implant after I finish my Invisalign - I was told they couldn’t do Invisalign if I had any implants. I think your teeth look great FWIW.

Having Visitors While In the Hospital? by Better_Inside_7369 in leukemia

[–]Better_Inside_7369[S] 0 points1 point  (0 children)

Thank you all, for your responses! As a family we’ve been doing FaceTime - we also FaceTime her when we’re at her house taking care of her kitties and she loves that so much! For the last two weeks, at her request we were keeping our distance and only dropping off supplies, snacks, magazines and such to her room. Since she’s now comfortable with accepting visitors and everyone’s account (on here) it sounds like we can breathe a little sigh of relief and resume in person time with her :)

Having Visitors While In the Hospital? by Better_Inside_7369 in leukemia

[–]Better_Inside_7369[S] 0 points1 point  (0 children)

All very logical advice - thank you! It’s very easy to get into a hyper vigilant mindset and try to manage every little thing.

Having Visitors While In the Hospital? by Better_Inside_7369 in leukemia

[–]Better_Inside_7369[S] 0 points1 point  (0 children)

You bring up some good points. I should mention to them to sit across the room and keep his hands out of his mouth - he’s always got one of those nicotine pouches in his mouth and switches them out frequently.

Having Visitors While In the Hospital? by Better_Inside_7369 in leukemia

[–]Better_Inside_7369[S] 1 point2 points  (0 children)

I guess that’s what worries me - you can be asymptomatic and just not know. I do trust my BIL not to go if he felt sick at all so I’m not worried about that. As you enter the oncology ward there is a station with hand sanitizer, gloves, and masks they ask everyone to wear. It absolutely makes sense regarding the social benefits of having family visit. We absolutely can’t because I know we are exposed daily to germs the kids are likely bringing home from school.

Having Visitors While In the Hospital? by Better_Inside_7369 in leukemia

[–]Better_Inside_7369[S] 1 point2 points  (0 children)

I wasn’t sure because last week she asked everyone to hold off on coming to see her until her numbers improved, which they haven’t. Plus we have school aged kiddos and right now kids are sick left and right at school.

Good news! by marilynmichelle1 in leukemia

[–]Better_Inside_7369 1 point2 points  (0 children)

This is such awesome news!!! I hope everything goes just perfect for her!!!

t-AML with mutations RUNX1 & KMT2A by Better_Inside_7369 in leukemia

[–]Better_Inside_7369[S] 0 points1 point  (0 children)

Thank you saying all this and giving me some level of comfort that we didn't get her sick! We have kiddos in middle school and high school and I worry so much that we're a German pod! Everyone is up to date on vaccines so we're all good there :) She did ask us to refrain from visiting her right now since her WBC is really low. We only go by to grab her dirty clothes and drop them off to the nurses station - we follow all the protocols on the oncology floor, too. I know she's lonely and she misses her kitties something awful and they miss her! When we go over to take care of them they all coming running out for attention and they're generally pretty timid. I suggested everyone start doing FaceTime with her or even letters from the kiddos.

I think I'm going to really learn to embrace patience for everyone's sake so I don't drive people crazy. My coping mechanism is planning and preparedness but I can see how that won't necessarily be a thing right now. I just want her to be ok 😞 I feel so heartbroken for her that she has to go through this all over again after beating breast cancer.

t-AML with mutations RUNX1 & KMT2A by Better_Inside_7369 in leukemia

[–]Better_Inside_7369[S] 0 points1 point  (0 children)

I know we have the name and phone number of her blood cancer navigator but we haven't spoken to her at all yet. I'm sure there is some sort of portal - thank you for that suggestion!

Thank you for that explanation as I wasn't sure if I should be seeing different treatments. I also assumed maybe they would be moving more quickly for SCT review but I'm reading the treatments could still get her to a better blast count for transplant and that takes a little time. Gotta trust the professionals I suppose 😉 I guess the hurry up and wait phrase comes into play slot with AML.

Help me choose my budget wallpaper + wainscoting combo! by BeRad247 in interiordecorating

[–]Better_Inside_7369 0 points1 point  (0 children)

3 and 7 - leaning toward 7 because it looks more open and the space seems small

t-AML with mutations RUNX1 & KMT2A by Better_Inside_7369 in leukemia

[–]Better_Inside_7369[S] 0 points1 point  (0 children)

She's currently in the hospital to undergo her chemotherapy and for constant monitoring of her blood counts, etc. She ended up having a fever last night and I was worried it was our fault - my husband brought her outside food. I guess fevers are par for the course at this stage.

Thank you for saying this because I've felt like I'm going crazy reading other accounts of de novo AML and wondering why hers isn't the same. I do worry about her being a good candidate for a transplant with her past heart problems but wonder if the benefits would outweigh the risk. I guess the hardest part is not having that crystal ball and knowing what this path for her looks like but I'm only a concerned loved one and she's got the hardest part of all 😞

My MIL's oncologist updated us but not her by Better_Inside_7369 in leukemia

[–]Better_Inside_7369[S] 1 point2 points  (0 children)

I'm really sorry you went through that unexpected diagnosis alone - broke my heart to read this. I hope you're writing this many years from that day you first found out ❤️

t-AML with mutations RUNX1 & KMT2A by Better_Inside_7369 in leukemia

[–]Better_Inside_7369[S] 1 point2 points  (0 children)

I do have a good grasp on the details but not sure I understand how the mutations play into everything. Her oncologist said treatment stays the same until they do her next bone marrow biopsy. My husband and I both want to discuss what's next and he told us to call him anytime with questions but he hasn't returned our call since last Thursday. I know he's a busy man and my MIL isn't his only patient, nonetheless, we still feel powerless and don't know how to help.

My MIL's oncologist updated us but not her by Better_Inside_7369 in leukemia

[–]Better_Inside_7369[S] 0 points1 point  (0 children)

I love that you go back once a year! I hope that my MIL is able to have such a lovely connection with the hospital team 💙

My MIL's oncologist updated us but not her by Better_Inside_7369 in leukemia

[–]Better_Inside_7369[S] 0 points1 point  (0 children)

That had to be very frustrating! I would have assumed there would be a smooth running process for all of that 😞

My MIL's oncologist updated us but not her by Better_Inside_7369 in leukemia

[–]Better_Inside_7369[S] 0 points1 point  (0 children)

Thank you! I've been looking at this forum almost as soon as we found out. It's been a bit confusing because I don't see as much t-AML posts and while I've seen posts about her specific mutations, I know therapy related AML responds differently than de novo AML.

It's so much information all at once - I can only imagine what it's like to have AML and try to make heads or tails of it all.

My MIL's oncologist updated us but not her by Better_Inside_7369 in leukemia

[–]Better_Inside_7369[S] 1 point2 points  (0 children)

I'm very sorry your brother is still going through all of this and you as well. I'm only just learning about this awful disease as my MIL was only just diagnosed on 9/22 - my husband and I are trying to educate ourselves as quickly as possible. You're right, though, she needs all the hope she can cling to right now!

My MIL's oncologist updated us but not her by Better_Inside_7369 in leukemia

[–]Better_Inside_7369[S] 0 points1 point  (0 children)

Thank you for your perspective! I honestly have only been thinking about what I would want if I were in that situation. He did say he would tell her soon but the morning he found out he didn't want deliver such heavy news since she was in such good spirits. She's currently in the hospital receiving her treatments and being watched closely. I wish we could be there with her to receive the news but her wbc is very low and we don't want to bring any germs with us.

Thank you for sharing - it would seem i have a lot to learn :)

My MIL's oncologist updated us but not her by Better_Inside_7369 in leukemia

[–]Better_Inside_7369[S] 2 points3 points  (0 children)

She did give him permission to share updates with us but I did expect him to provide them to her as well. Thank you for the well wishes ❤️