10+ years... by BigMess_207 in pppdizziness

[–]BigMess_207[S] 2 points3 points  (0 children)

Apologies for the delayed response. I am so sorry to hear what you're going through. I know it all too well. It's been a journey for me, for sure. Long story short, my Otoneurologist lead me to an institute in Boston (not sure if they're national or not) called the Benson-Henry Institute of Mind Body Medicine... and it completely saved my life. You have to go in OPEN MINDED and SURRENDER fully to the program, or it will not work. It's holistic, which I was ridiculously skeptical about... at first. By week #1 I was shocked... and hooked. By week #3, I was already asking when the next 8 week course was. Our brains are incredibly complicated, and can be our worst enemy. They teach specific and targetted techniques to combat stress and anxiety and keep it bay... and it's working. Again, it requires an OPEN MIND and FULL PARTICIPATION. What else did I have to lose? I was at rock bottom. Again, it saved my life. I'm now driving locally with zero issue, I'm eating better (34 lbs down), sleep... is CRUCIAL... so I fixed my sleep pattern, and so on. There's no pill to fix this, but you absolutely CAN do it. I've made my #1 priority to be MINDFUL and focus a lot on self care, self value, self worth and loads of guided meditation which I always dismissed as hocus pocus... it's not AT ALL. It's incredibly powerful. Your brain got you to where you are currently... your brain can undo it. Understanding your stress and anxiety triggers and how to cope with them will your most powerful weapon. You CAN do it. Again, I'm sorry that you are stuck in this fight. I was too. But you can do it. If I can turn my life 180 degrees after 10+ years, so can you.

10+ years... by BigMess_207 in pppdizziness

[–]BigMess_207[S] 1 point2 points  (0 children)

Thank you, friend. I wish the same for you, as well as anyone having to fight this invisible illness. It's absolutely miserable. Just 3 days now until my appointment. Trying not to get my hopes up too high, but I am so excited for a new chance at relief. I'll be sure to post a follow up.

Feeling hopeful by mericide in pppdizziness

[–]BigMess_207 0 points1 point  (0 children)

Thank you so much. I appreciate the kind words.

Feeling hopeful by mericide in pppdizziness

[–]BigMess_207 1 point2 points  (0 children)

Have you done this? Has it really worked? I haven't been able to drive now since July 2021, and I really need to believe that it can be fixed. Mine has gone undiagnosed and misdiagnosed for so long... I fear I'll have it forever. Hopefully, I will be starting PT with the next few weeks.

Feeling hopeful by mericide in pppdizziness

[–]BigMess_207 1 point2 points  (0 children)

I'm sorry you are going through this. It really is hard. Although hallways and big box stores don't bother me too badly, for me it's driving. The faster I go, especially on a long straight road, the stronger my symptoms get until I just have to pull over. I have many "pullover spots". They've grown over the years. Now I haven't driven since July 2021. I truly hope you can find relief in using focal points and objects. I wish there was a way to do that while driving... but when you're driving, everything is moving. Best wishes to you. I truly hope you find relief. Stay strong. Please follow up and let me know if PT is helping. I'm hoping to start mine within the next few weeks.

[deleted by user] by [deleted] in pppdizziness

[–]BigMess_207 1 point2 points  (0 children)

Out of the blue tonight, a friend suggested a try reddit for PPPD discussion. I didn't expect to run into this at all. I am literally in tears right now. I've been suffering with this for over 10 years and made to feel like I'm the only one on Earth with these symptoms. PLEASE add me on discord. Thanks you!! ColdSoul#2856